Developing an integrated model of community-based palliative care into the primary health care (PHC) for terminally ill cancer patients in Iran.

Advanced cancer Community health care Home health care Palliative care Terminally ill

Journal

BMC palliative care
ISSN: 1472-684X
Titre abrégé: BMC Palliat Care
Pays: England
ID NLM: 101088685

Informations de publication

Date de publication:
28 Jun 2021
Historique:
received: 27 08 2020
accepted: 08 06 2021
entrez: 29 6 2021
pubmed: 30 6 2021
medline: 16 10 2021
Statut: epublish

Résumé

Patients with cancer commonly experience pain and suffering at the end of life days. Community-based palliative care can improve the quality of life of terminally-ill cancer patients and provide them with a merciful death. The purpose of this study was to develop an integrated model of community-based palliative care into PHC for terminally ill cancer patients. This study is a health system research (HSR) that was conducted in three phases from October 2016 to July 2020. In the first phase, dimensions of community-based palliative care were explored in patients with cancer using qualitative methods and conventional content analysis. In the second phase, a scoping review was carried out to complete the collected data from the qualitative phase of the study. Based on the collected data in the first and second phases of the study, a preliminary draft of community-based palliative care was developed for patients with cancer based on the framework of the World Health Organization. Finally, the developed model was validated using the Delphi technique in the third phase of the study. Data analysis indicated that providing community-based care to patients with cancer is influenced by the context of care. According to the developed model, patients are identified as terminally ill, and then are referred to the local comprehensive health center in a reverse manner. After patients' referral, they can receive appropriate healthcare until death by the home care team in relation to the comprehensive health center based on the framework of primary healthcare. This model was developed based on the current Iranian healthcare structure and the needs of terminally ill cancer patients. According to the model, healthcare is provided in a reverse manner from the subspecialty centers to patients' homes in order to provide easy access to palliative care. It is suggested to use this model as a pilot at the regional level.

Sections du résumé

BACKGROUND BACKGROUND
Patients with cancer commonly experience pain and suffering at the end of life days. Community-based palliative care can improve the quality of life of terminally-ill cancer patients and provide them with a merciful death. The purpose of this study was to develop an integrated model of community-based palliative care into PHC for terminally ill cancer patients.
METHOD METHODS
This study is a health system research (HSR) that was conducted in three phases from October 2016 to July 2020. In the first phase, dimensions of community-based palliative care were explored in patients with cancer using qualitative methods and conventional content analysis. In the second phase, a scoping review was carried out to complete the collected data from the qualitative phase of the study. Based on the collected data in the first and second phases of the study, a preliminary draft of community-based palliative care was developed for patients with cancer based on the framework of the World Health Organization. Finally, the developed model was validated using the Delphi technique in the third phase of the study.
RESULTS RESULTS
Data analysis indicated that providing community-based care to patients with cancer is influenced by the context of care. According to the developed model, patients are identified as terminally ill, and then are referred to the local comprehensive health center in a reverse manner. After patients' referral, they can receive appropriate healthcare until death by the home care team in relation to the comprehensive health center based on the framework of primary healthcare.
CONCLUSIONS CONCLUSIONS
This model was developed based on the current Iranian healthcare structure and the needs of terminally ill cancer patients. According to the model, healthcare is provided in a reverse manner from the subspecialty centers to patients' homes in order to provide easy access to palliative care. It is suggested to use this model as a pilot at the regional level.

Identifiants

pubmed: 34182980
doi: 10.1186/s12904-021-00795-2
pii: 10.1186/s12904-021-00795-2
pmc: PMC8240381
doi:

Types de publication

Journal Article Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

100

Subventions

Organisme : Lorestan University of Medical Sciences
ID : 356

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Auteurs

Suzanne Hojjat-Assari (S)

French Institute of Research and High Education (IFRES-INT), Paris, France.

Maryam Rassouli (M)

Cancer Research Center, Shahid Beheshti University of Medical Sciences, Tehran, Iran.

Maxwell Madani (M)

French Institute of Research and High Education (IFRES-INT), Paris, France.

Heshmatolah Heydari (H)

French Institute of Research and High Education (IFRES-INT), Paris, France. H-hidari@razi.tums.ac.ir.
Social Determinants of Health Research Center, Lorestan University of Medical Sciences, Khorramabad, Iran. H-hidari@razi.tums.ac.ir.

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Classifications MeSH