Scope and heterogeneity of outcomes reported in randomized trials in patients receiving peritoneal dialysis.

outcomes patient-reported outcomes peritoneal dialysis trials

Journal

Clinical kidney journal
ISSN: 2048-8505
Titre abrégé: Clin Kidney J
Pays: England
ID NLM: 101579321

Informations de publication

Date de publication:
Jul 2021
Historique:
received: 22 07 2020
accepted: 14 09 2020
entrez: 5 7 2021
pubmed: 6 7 2021
medline: 6 7 2021
Statut: epublish

Résumé

Randomized trials can provide evidence to inform decision-making but this may be limited if the outcomes of importance to patients and clinicians are omitted or reported inconsistently. We aimed to assess the scope and heterogeneity of outcomes reported in trials in peritoneal dialysis (PD). We searched the Cochrane Kidney and Transplant Specialized Register for randomized trials in PD. We extracted all reported outcome domains and measurements and analyzed their frequency and characteristics. From 128 reports of 120 included trials, 80 different outcome domains were reported. Overall, 39 (49%) domains were surrogate, 23 (29%) patient-reported and 18 (22%) clinical. The five most commonly reported domains were PD-related infection [59 (49%) trials], dialysis solute clearance [51 (42%)], kidney function [45 (38%)], protein metabolism [44 (37%)] and inflammatory markers/oxidative stress [42 (35%)]. Quality of life was reported infrequently (4% of trials). Only 14 (12%) trials included a patient-reported outcome as a primary outcome. The median number of outcome measures (defined as a different measurement, aggregation and metric) was 22 (interquartile range 13-37) per trial. PD-related infection was the most frequently reported clinical outcome as well as the most frequently stated primary outcome. A total of 383 different measures for infection were used, with 66 used more than once. Trials in PD include important clinical outcomes such as infection, but these are measured and reported inconsistently. Patient-reported outcomes are infrequently reported and nearly half of the domains were surrogate. Standardized outcomes for PD trials are required to improve efficiency and relevance.

Sections du résumé

BACKGROUND BACKGROUND
Randomized trials can provide evidence to inform decision-making but this may be limited if the outcomes of importance to patients and clinicians are omitted or reported inconsistently. We aimed to assess the scope and heterogeneity of outcomes reported in trials in peritoneal dialysis (PD).
METHODS METHODS
We searched the Cochrane Kidney and Transplant Specialized Register for randomized trials in PD. We extracted all reported outcome domains and measurements and analyzed their frequency and characteristics.
RESULTS RESULTS
From 128 reports of 120 included trials, 80 different outcome domains were reported. Overall, 39 (49%) domains were surrogate, 23 (29%) patient-reported and 18 (22%) clinical. The five most commonly reported domains were PD-related infection [59 (49%) trials], dialysis solute clearance [51 (42%)], kidney function [45 (38%)], protein metabolism [44 (37%)] and inflammatory markers/oxidative stress [42 (35%)]. Quality of life was reported infrequently (4% of trials). Only 14 (12%) trials included a patient-reported outcome as a primary outcome. The median number of outcome measures (defined as a different measurement, aggregation and metric) was 22 (interquartile range 13-37) per trial. PD-related infection was the most frequently reported clinical outcome as well as the most frequently stated primary outcome. A total of 383 different measures for infection were used, with 66 used more than once.
CONCLUSIONS CONCLUSIONS
Trials in PD include important clinical outcomes such as infection, but these are measured and reported inconsistently. Patient-reported outcomes are infrequently reported and nearly half of the domains were surrogate. Standardized outcomes for PD trials are required to improve efficiency and relevance.

Identifiants

pubmed: 34221389
doi: 10.1093/ckj/sfaa224
pii: sfaa224
pmc: PMC8243273
doi:

Types de publication

Journal Article

Langues

eng

Pagination

1817-1825

Informations de copyright

© The Author(s) 2020. Published by Oxford University Press on behalf of ERA-EDTA.

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Auteurs

Karine E Manera (KE)

Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia.
Centre for Kidney Research, Children's Hospital at Westmead, Sydney, NSW, Australia.

David W Johnson (DW)

Department of Nephrology, Princess Alexandra Hospital, Brisbane, QLD, Australia.
Australian Kidney Trials Network, University of Queensland, Brisbane, QLD, Australia.
Centre for Kidney Disease Research, University of Queensland at Princess Alexandra Hospital, Brisbane, QLD, Australia.

Yeoungjee Cho (Y)

Department of Nephrology, Princess Alexandra Hospital, Brisbane, QLD, Australia.
Australian Kidney Trials Network, University of Queensland, Brisbane, QLD, Australia.

Benedicte Sautenet (B)

Department of Nephrology-Hypertension, Dialysis, Kidney Transplantation, Tours Hospital, Tours, France.
INSERM, U1246, SPHERE, Tours, France.

Jenny Shen (J)

Division of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Torrance, CA, USA.

Ayano Kelly (A)

Centre for Kidney Research, Children's Hospital at Westmead, Sydney, NSW, Australia.
School of Medicine, Australian National University, Canberra, ACT, Australia.

Angela Yee-Moon Wang (A)

Department of Medicine, Queen Mary Hospital, University of Hong Kong, Hong Kong, China.

Edwina A Brown (EA)

Imperial College Renal and Transplant Centre, Hammersmith Hospital, London, UK.

Gillian Brunier (G)

Sunnybrook Research Institute, Toronto, ON, Canada.

Jeffrey Perl (J)

Division of Nephrology, Department of Medicine, St. Michael's Hospital, University of Toronto, Toronto, ON, Canada.

Jie Dong (J)

Renal Division, Department of Medicine, Peking University First Hospital, Beijing, China.

Martin Wilkie (M)

Department of Nephrology, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK.

Rajnish Mehrotra (R)

Division of Nephrology/Department of Medicine, Kidney Research Institute and Harborview Medical Center, University of Washington, Seattle, WA, USA.

Roberto Pecoits-Filho (R)

School of Medicine, Pontifícia Universidade Católica do Paraná, Curitiba, Paraná, Brazil.
Arbor Research Collaborative for Health, Ann Arbor, MI, USA.

Saraladevi Naicker (S)

Department of Internal Medicine, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.

Tony Dunning (T)

South Bank TAFE, Brisbane, QLD, Australia.

Jonathan C Craig (JC)

College of Medicine and Public Health, Flinders University, Bedford Park, SA, Australia.

Allison Tong (A)

Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia.
Centre for Kidney Research, Children's Hospital at Westmead, Sydney, NSW, Australia.

Classifications MeSH