The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID-19 Lockdown Period.
COVID‐19
carers
intellectual disability
lockdown
parents
Journal
Journal of policy and practice in intellectual disabilities
ISSN: 1741-1122
Titre abrégé: J Policy Pract Intellect Disabil
Pays: United States
ID NLM: 101201084
Informations de publication
Date de publication:
Dec 2021
Dec 2021
Historique:
received:
15
12
2020
revised:
26
03
2021
accepted:
29
04
2021
pubmed:
7
7
2021
medline:
7
7
2021
entrez:
6
7
2021
Statut:
ppublish
Résumé
The recent COVID-19 pandemic led to widespread international restrictions, severely impacting on health and social care services. For many individuals with an intellectual disability (ID) this meant reduced access to services and support for them and their carers. The aim of this study was to gain insight into the ways parents of adults with ID coped during the first 2020 lockdown period. Eight parents of adults with ID were interviewed. The recordings of these interviews were subjected to a thematic analysis. Four main themes were identified: powerless and unappreciated; coping under lockdown; support; and the impact of lockdown on well-being. The parents of adults with ID who made up our sample reported that they received little support from services and experienced a sense of powerlessness. Nevertheless, they were open to accepting support from family and friends and showed remarkable resilience. These findings are discussed in the light of the Willner et al. (2020) survey results on parental mental health and coping, and suggestions for future service provision during pandemic conditions are proposed.
Sections du résumé
Background
UNASSIGNED
The recent COVID-19 pandemic led to widespread international restrictions, severely impacting on health and social care services. For many individuals with an intellectual disability (ID) this meant reduced access to services and support for them and their carers.
Aim
UNASSIGNED
The aim of this study was to gain insight into the ways parents of adults with ID coped during the first 2020 lockdown period.
Methods
UNASSIGNED
Eight parents of adults with ID were interviewed. The recordings of these interviews were subjected to a thematic analysis.
Results
UNASSIGNED
Four main themes were identified: powerless and unappreciated; coping under lockdown; support; and the impact of lockdown on well-being.
Conclusions
UNASSIGNED
The parents of adults with ID who made up our sample reported that they received little support from services and experienced a sense of powerlessness. Nevertheless, they were open to accepting support from family and friends and showed remarkable resilience. These findings are discussed in the light of the Willner et al. (2020) survey results on parental mental health and coping, and suggestions for future service provision during pandemic conditions are proposed.
Identifiants
pubmed: 34226830
doi: 10.1111/jppi.12382
pii: JPPI12382
pmc: PMC8242525
doi:
Types de publication
Journal Article
Langues
eng
Pagination
254-262Informations de copyright
© 2021 The Authors. Journal of Policy and Practice in Intellectual Disabilities published by International Association for the Scientific Study of Intellectual and Developmental Disabilities and Wiley Periodicals LLC.
Déclaration de conflit d'intérêts
The authors declare no potential conflict of interests.