The Tele-STELLA protocol: Telehealth-based support for families living with later-stage Alzheimer's disease.
caregiving
dementia
family care
technology
Journal
Journal of advanced nursing
ISSN: 1365-2648
Titre abrégé: J Adv Nurs
Pays: England
ID NLM: 7609811
Informations de publication
Date de publication:
Oct 2021
Oct 2021
Historique:
revised:
04
06
2021
received:
11
04
2021
accepted:
27
06
2021
pubmed:
22
7
2021
medline:
22
9
2021
entrez:
21
7
2021
Statut:
ppublish
Résumé
We aim to establish the feasibility and acceptability of the Tele-STELLA (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease and Related Dementias) intervention. We will also assess the efficacy of the intervention in reducing the frequency of behavioural symptoms of dementia as well as family Care Partner reactivity to the symptoms. This is a multi-component, quasi-experimental study that focuses on facilitating effective management of behavioural symptoms that occur in the later stages of dementia. Family Care Partners (n = 124) for persons with Alzheimer's disease will participate in two 8-week videoconferencing components that address behavioural symptoms-in both the persons with Alzheimer's disease and their Care Partners. In the first component ('Nova'), Care Partners work with one nurse for an hour/week for 4 weeks, then they join a small group for another 4 weeks. In the second component ('Constellation'), Care Partners work in a larger group to hone skills and knit supportive relationships. Behavioural symptom frequency and Care Partner reactivity to the behaviours will be measured prior to, during and after the intervention. The study is funded by the United States National Institute on Aging (R01AG067546); funding was initiated as on February, 2021. Tele-STELLA fills a gap in current videoconference-based psychoeducational interventions in that it offers real-time interaction with nurses and peers. The intervention was designed with feedback by pilot participants. This study will assess Tele-STELLA in its current, novel format; thus, preparing it for a larger, future randomized controlled trial. Tele-STELLA addresses symptoms that occur in the later stages of dementia, providing families with tools to facilitate effective behavioural management. Because Tele-STELLA is implemented via videoconferencing, it targets Care Partners who face barriers to support, such as cost and transportation. This trial is registered with ClinicalTrials.gov (#NCT04627662).
Identifiants
pubmed: 34288013
doi: 10.1111/jan.14980
pmc: PMC8449811
mid: NIHMS1723329
doi:
Banques de données
ClinicalTrials.gov
['NCT04627662']
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
4254-4267Subventions
Organisme : NIA NIH HHS
ID : P30AG066518
Pays : United States
Organisme : NIA NIH HHS
ID : P30AG008017
Pays : United States
Organisme : NIA NIH HHS
ID : P30 AG008017
Pays : United States
Organisme : NIA NIH HHS
ID : R01 AG067546
Pays : United States
Organisme : NIA NIH HHS
ID : R01AG067546
Pays : United States
Organisme : NIA NIH HHS
ID : P30 AG028383
Pays : United States
Organisme : NIA NIH HHS
ID : P30 AG072946
Pays : United States
Organisme : NIA NIH HHS
ID : P30 AG024978
Pays : United States
Organisme : NIA NIH HHS
ID : P30 AG066518
Pays : United States
Informations de copyright
© 2021 John Wiley & Sons Ltd.
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