Research- and health-related youth advisory groups in Canada: An environmental scan with stakeholder interviews.
advisory group
engagement
environmental scan
health
qualitative interviews
research
youth
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
10 2021
10 2021
Historique:
revised:
25
06
2021
received:
24
02
2021
accepted:
28
06
2021
pubmed:
22
7
2021
medline:
26
10
2021
entrez:
21
7
2021
Statut:
ppublish
Résumé
Engaging youth throughout the research process improves research quality and outcomes. Youth advisory groups provide one way for youth to express their opinions on relevant issues. This study aimed to identify research- and health-related youth advisory groups ('groups') in Canada and understand the best practices of these groups. Google searches and supplementary methods were used to identify relevant groups in Canada. Group information was extracted from websites or through interviews with key informants. We identified 40 groups. Groups were commonly part of a hospital/healthcare facility, nonprofit/health organization or research group. The majority focused on a specific content area, most commonly, mental health. Over half the groups advised on health services. Members' ages ranged from 9 to 35 years. The number of members ranged from 5 to 130. Interviews (n = 12) identified seven categories relating to group practices: (a) group purpose/objectives, (b) group development, (c) group operations, (d) group structure, (e) adult involvement, (f) membership and recruitment and (g) group access. Challenges and facilitators to the success of groups were described within the following themes: (a) retaining engagement, (b) creating a safe environment and (c) putting youth in positions of influence. Advice and recommendations were provided regarding the development of a new group. This study provides a comprehensive overview of research- and health-related youth advisory groups in Canada. This information can be used to identify groups that stakeholders could access as well as inform the development of a new group. Youth advisory group representatives were interviewed as part of the study.
Sections du résumé
BACKGROUND
Engaging youth throughout the research process improves research quality and outcomes. Youth advisory groups provide one way for youth to express their opinions on relevant issues.
OBJECTIVE
This study aimed to identify research- and health-related youth advisory groups ('groups') in Canada and understand the best practices of these groups.
METHODS
Google searches and supplementary methods were used to identify relevant groups in Canada. Group information was extracted from websites or through interviews with key informants.
RESULTS
We identified 40 groups. Groups were commonly part of a hospital/healthcare facility, nonprofit/health organization or research group. The majority focused on a specific content area, most commonly, mental health. Over half the groups advised on health services. Members' ages ranged from 9 to 35 years. The number of members ranged from 5 to 130. Interviews (n = 12) identified seven categories relating to group practices: (a) group purpose/objectives, (b) group development, (c) group operations, (d) group structure, (e) adult involvement, (f) membership and recruitment and (g) group access. Challenges and facilitators to the success of groups were described within the following themes: (a) retaining engagement, (b) creating a safe environment and (c) putting youth in positions of influence. Advice and recommendations were provided regarding the development of a new group.
CONCLUSION
This study provides a comprehensive overview of research- and health-related youth advisory groups in Canada. This information can be used to identify groups that stakeholders could access as well as inform the development of a new group.
PATIENT OR PUBLIC CONTRIBUTION
Youth advisory group representatives were interviewed as part of the study.
Identifiants
pubmed: 34288282
doi: 10.1111/hex.13316
pmc: PMC8483214
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
1763-1779Informations de copyright
© 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd.
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