The experiences of the caring dyad: (Un)articulated realities of living with cardiometabolic risk, metabolic syndrome and related diseases in severe mental illness.
dyad
informal carer
patient
qualitative
relationship
schizophrenia
thematic analysis
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
10 2021
10 2021
Historique:
revised:
12
07
2021
received:
06
01
2021
accepted:
14
07
2021
pubmed:
3
8
2021
medline:
26
10
2021
entrez:
2
8
2021
Statut:
ppublish
Résumé
Informal carers play an important role in the care of patients with mental illness. Little is known of the relationship experience of the patient and their informal carer (caring dyad) as the context for the intersection between physical and mental health. This study aimed to explore the impact of comorbid cardiometabolic risk (CMR), metabolic syndrome (MetS) and related diseases and severe mental illness (SMI) on the caring dyad. Between October 2018 and March 2020, we conducted 11 in-depth semi-structured interviews across 6 adult caring dyads, interviewing each individual separately. Dyads were recruited within the United Kingdom; informal carers were nominated by the patient as a person who provided a significant amount of support. Participants were asked about the impacts of illness and caring on daily life. Data were analysed at the dyad level using thematic analysis, comparing and contrasting responses from each individual. Themes were identified: enhanced closeness, dissonance and balance within the caring dyad. This study uses a particular population of patients with comorbid CMR factors, MetS and related diseases and SMI and their informal carers to explore the relevance and utility of caring dyads as an analytical framework to inform practice and policy. Future interventions should consider factors impacting on dyadic relationships to formulate effective and sustainable dyadic care and treatment to improve health outcomes for both patients with SMI and their informal carers. In this study, patients and informal carers were participants. Topic guides were piloted with a patient and informal carer.
Sections du résumé
BACKGROUND
Informal carers play an important role in the care of patients with mental illness. Little is known of the relationship experience of the patient and their informal carer (caring dyad) as the context for the intersection between physical and mental health.
AIM
This study aimed to explore the impact of comorbid cardiometabolic risk (CMR), metabolic syndrome (MetS) and related diseases and severe mental illness (SMI) on the caring dyad.
DESIGN
Between October 2018 and March 2020, we conducted 11 in-depth semi-structured interviews across 6 adult caring dyads, interviewing each individual separately.
SETTING
Dyads were recruited within the United Kingdom; informal carers were nominated by the patient as a person who provided a significant amount of support.
VARIABLE BEING STUDIED
Participants were asked about the impacts of illness and caring on daily life.
DATA ANALYSIS
Data were analysed at the dyad level using thematic analysis, comparing and contrasting responses from each individual.
RESULTS
Themes were identified: enhanced closeness, dissonance and balance within the caring dyad.
DISCUSSION AND CONCLUSIONS
This study uses a particular population of patients with comorbid CMR factors, MetS and related diseases and SMI and their informal carers to explore the relevance and utility of caring dyads as an analytical framework to inform practice and policy. Future interventions should consider factors impacting on dyadic relationships to formulate effective and sustainable dyadic care and treatment to improve health outcomes for both patients with SMI and their informal carers.
PATIENT/PUBLIC INVOLVEMENT
In this study, patients and informal carers were participants. Topic guides were piloted with a patient and informal carer.
Identifiants
pubmed: 34339575
doi: 10.1111/hex.13322
pmc: PMC8483201
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
1821-1832Informations de copyright
© 2021 The Authors. Health Expectations Published by John Wiley & Sons Ltd.
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