Safe and persistent growth-promoting effects of vosoritide in children with achondroplasia: 2-year results from an open-label, phase 3 extension study.


Journal

Genetics in medicine : official journal of the American College of Medical Genetics
ISSN: 1530-0366
Titre abrégé: Genet Med
Pays: United States
ID NLM: 9815831

Informations de publication

Date de publication:
12 2021
Historique:
received: 01 05 2021
accepted: 12 07 2021
revised: 08 07 2021
pubmed: 4 8 2021
medline: 23 3 2022
entrez: 3 8 2021
Statut: ppublish

Résumé

Achondroplasia is caused by pathogenic variants in the fibroblast growth factor receptor 3 gene that lead to impaired endochondral ossification. Vosoritide, an analog of C-type natriuretic peptide, stimulates endochondral bone growth and is in development for the treatment of achondroplasia. This phase 3 extension study was conducted to document the efficacy and safety of continuous, daily vosoritide treatment in children with achondroplasia, and the two-year results are reported. After completing at least six months of a baseline observational growth study, and 52 weeks in a double-blind, placebo-controlled study, participants were eligible to continue treatment in an open-label extension study, where all participants received vosoritide at a dose of 15.0 μg/kg/day. In children randomized to vosoritide, annualized growth velocity increased from 4.26 cm/year at baseline to 5.39 cm/year at 52 weeks and 5.52 cm/year at week 104. In children who crossed over from placebo to vosoritide in the extension study, annualized growth velocity increased from 3.81 cm/year at week 52 to 5.43 cm/year at week 104. No new adverse effects of vosoritide were detected. Vosoritide treatment has safe and persistent growth-promoting effects in children with achondroplasia treated daily for two years.

Identifiants

pubmed: 34341520
doi: 10.1038/s41436-021-01287-7
pii: S1098-3600(21)05439-3
pmc: PMC8327889
doi:

Substances chimiques

Natriuretic Peptide, C-Type 127869-51-6
vosoritide 7SE5582Q2P

Types de publication

Clinical Trial, Phase III Journal Article Randomized Controlled Trial Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

2443-2447

Informations de copyright

© 2021. The Author(s).

Références

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doi: 10.1016/0092-8674(94)90302-6
Horton WA, Hall JG, Hecht JT. Achondroplasia. Lancet. 2007;370:162–72.
doi: 10.1016/S0140-6736(07)61090-3
Lorget F, Kaci N, Peng J, Benoist-Lasselin C, Mugniery E, Oppeneer T, et al. Evaluation of the therapeutic potential of a CNP analog in a Fgfr3 mouse model recapitulating achondroplasia. Am J Hum Genet. 2012;91:1108–14.
doi: 10.1016/j.ajhg.2012.10.014
Yasoda A, Komatsu Y, Chusho H, Miyazawa T, Ozasa A, Miura M, et al. Overexpression of CNP in chondrocytes rescues achondroplasia through a MAPK-dependent pathway. Nat Med. 2004;10:80–86.
doi: 10.1038/nm971
Savarirayan R, Irving M, Bacino CA, Bostwick B, Charrow J, Cormier-Daire V, et al. C-type natriuretic peptide analogue therapy in children with achondroplasia. N Engl J Med. 2019;381:25–35.
doi: 10.1056/NEJMoa1813446
Savarirayan R, Tofts L, Irving M, Wilcox W, Bacino CA, Hoover-Fong J, et al. Once-daily, subcutaneous vosoritide therapy in children with achondroplasia: a randomised, double-blind, phase 3, placebo-controlled, multicentre trial. Lancet. 2020;396:684–92.
doi: 10.1016/S0140-6736(20)31541-5
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Savarirayan R, Irving M, Maixner W, et al. Rationale, design, and methods of a randomized, controlled, open-label clinical trial with open-label extension to investigate the safety of vosoritide in infants, and young children with achondroplasia at risk of requiring cervicomedullary decompression surgery. Sci Prog. 2021;104:1–19.
doi: 10.1177/00368504211003782

Auteurs

Ravi Savarirayan (R)

Murdoch Children's Research Institute, Royal Children's Hospital, and University of Melbourne, Parkville, VIC, Australia. ravi.savarirayan@mcri.edu.au.

Louise Tofts (L)

Kids Rehab, The Children's Hospital at Westmead, Westmead, NSW, Australia.

Melita Irving (M)

Guy's and St. Thomas' NHS Foundation Trust, Evelina Children's Hospital, London, UK.

William R Wilcox (WR)

Department of Human Genetics, Emory University, Atlanta, GA, USA.

Carlos A Bacino (CA)

Baylor College of Medicine, Houston, TX, USA.

Julie Hoover-Fong (J)

McKusick-Nathans Department of Genetic Medicine, Johns Hopkins University, Baltimore, MD, USA.

Rosendo Ullot Font (RU)

Hospital Sant Joan de Déu, Barcelona, Spain.

Paul Harmatz (P)

UCSF Benioff Children's Hospital Oakland, Oakland, CA, USA.

Frank Rutsch (F)

Department of General Pediatrics, Muenster University Children's Hospital, Muenster, Germany.

Michael B Bober (MB)

Nemours/Alfred I. du Pont Hospital for Children, Wilmington, DE, USA.

Lynda E Polgreen (LE)

Lundquist Institute for Biomedical Innovation at Harbor-UCLA Medical Center, Torrance, CA, USA.

Ignacio Ginebreda (I)

Hospital Universitario Quirón Dexeus, Barcelona, Spain.

Klaus Mohnike (K)

Otto-von-Guericke-Universität, Magdeburg, Germany.

Joel Charrow (J)

Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.

Daniel Hoernschemeyer (D)

University of Missouri-Columbia, Columbia, MO, USA.

Keiichi Ozono (K)

Osaka University Hospital, Osaka, Japan.

Yasemin Alanay (Y)

Acibadem Mehmet Ali Aydinlar University, School of Medicine, Istanbul, Turkey.

Paul Arundel (P)

Sheffield Children's NHS Foundation Trust, Sheffield Children's Hospital, Sheffield, UK.

Yumiko Kotani (Y)

Tokushima University Hospital, Tokushima, Japan.

Natsuo Yasui (N)

Tokushima University Hospital, Tokushima, Japan.

Klane K White (KK)

Seattle Children's Hospital, Seattle, WA, USA.

Howard M Saal (HM)

Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, USA.

Antonio Leiva-Gea (A)

Hospital Universitario Virgen de la Victoria, Málaga, Spain.

Felipe Luna-González (F)

Hospital Universitario Virgen de la Victoria, Málaga, Spain.

Hiroshi Mochizuki (H)

Saitama Children's Hospital, Saitama, Japan.

Donald Basel (D)

Medical College of Wisconsin, Milwaukee, WI, USA.

Dania M Porco (DM)

BioMarin Pharmaceutical Inc., Novato, CA, USA.

Kala Jayaram (K)

BioMarin Pharmaceutical Inc., Novato, CA, USA.

Elena Fisheleva (E)

BioMarin (U.K.) Limited, London, UK.

Alice Huntsman-Labed (A)

BioMarin (U.K.) Limited, London, UK.

Jonathan R S Day (JRS)

BioMarin (U.K.) Limited, London, UK.

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