COVID-19, social isolation and the mental health of autistic people and their families: A qualitative study.


Journal

Autism : the international journal of research and practice
ISSN: 1461-7005
Titre abrégé: Autism
Pays: England
ID NLM: 9713494

Informations de publication

Date de publication:
05 2022
Historique:
pubmed: 8 8 2021
medline: 15 4 2022
entrez: 7 8 2021
Statut: ppublish

Résumé

In this study, we show that autistic people and their families have found it very difficult to deal with the lockdowns during the COVID-19 pandemic. Autistic and non-autistic researchers spoke to 144 people, including 44 autistic adults, 84 parents of autistic children and 16 autistic young people (12-18 years old). We asked them about their everyday lives and mental health during lockdown. People told us that they enjoyed having fewer obligations and demands compared to pre-COVID-19 life. They felt that life was quieter and calmer. But people also told us again and again how much they missed meeting people in real life, especially their friends, and their therapists and support workers. People told us that their mental health suffered because they did not have contact with their friends and services. Importantly, many people (including researchers) think that autistic people do not want friends or to be around people. But our results show that is not true. Many autistic people do want friends and to be around other people. Some people's mental health has been damaged by not being able to see people during COVID-19. Autistic people need support in many areas of life so they can keep socialising and seeing their friends even through difficult times, like pandemics.

Identifiants

pubmed: 34362263
doi: 10.1177/13623613211035936
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

914-927

Auteurs

Elizabeth Pellicano (E)

Macquarie University, Australia.
Cooperative Research Centre for Living with Autism (Autism CRC), Australia.

Simon Brett (S)

Macquarie University, Australia.

Jacquiline den Houting (J)

Macquarie University, Australia.
Cooperative Research Centre for Living with Autism (Autism CRC), Australia.

Melanie Heyworth (M)

Macquarie University, Australia.
Reframing Autism, Australia.

Iliana Magiati (I)

The University of Western Australia, Australia.

Robyn Steward (R)

Wellcome Trust, UK.

Marc Stears (M)

University of Sydney, Australia.

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Classifications MeSH