Development of an Educational Video for Self-Assessment of Patients with RA: Steps, Challenges, and Responses.
DAS-28
Rheumatoid arthritis
composite measures
educational video
patient education
patient empowerment
self-assessment
treat-to-target
Journal
Mediterranean journal of rheumatology
ISSN: 2529-198X
Titre abrégé: Mediterr J Rheumatol
Pays: Greece
ID NLM: 101730166
Informations de publication
Date de publication:
Mar 2021
Mar 2021
Historique:
received:
05
07
2020
revised:
06
09
2020
accepted:
15
10
2020
entrez:
13
8
2021
pubmed:
14
8
2021
medline:
14
8
2021
Statut:
epublish
Résumé
The primary objective was to develop an educational video to teach patients with rheumatoid arthritis (RA) self-assessment of their disease activity. Secondary objectives were to validate the video, identify the challenges in producing it, and the responses to these challenges. Rheumatologists from 7 Middle Eastern Arab countries (MEAC) discussed unmet needs in the education of patients with RA. They reviewed pre-existing educational audiovisual material and drafted the script for a new video in Arabic. The video was produced in collaboration with a technical team, then validated by patients using a standardized interview. At each step of production, challenges were identified. Twenty-three rheumatologists from MEAC identified unmet needs in patients' education. A video was produced, explaining the concepts of treat-to-target and showing a patient performing self-assessment using DAS-28. Sixty-two patients were interviewed for validation and found the video to be useful and easy to understand, albeit not replacing the physician's visit. Most common challenges encountered included acceptance of patient empowerment, agreement on DAS-28 as composite measure, production of a comprehensible written Arabic text, and addressing the population cultural mix. Despite challenges, the video was well accepted among patients and can be used for clinical and research purposes. It is particularly useful in pandemic periods where social distancing is recommended.
Identifiants
pubmed: 34386703
doi: 10.31138/mjr.32.1.66
pii: MJR-32-1-66
pmc: PMC8314883
doi:
Types de publication
Journal Article
Langues
eng
Pagination
66-73Informations de copyright
© 2021 The Mediterranean Journal of Rheumatology (MJR).
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