Concerns, coping and the electronic Holistic Needs Assessment: experiences of UK breast cancer survivors.
breast cancer
holistic needs assessment
qualitative
survivorship
unmet needs
Journal
Journal of research in nursing : JRN
ISSN: 1744-988X
Titre abrégé: J Res Nurs
Pays: England
ID NLM: 101234311
Informations de publication
Date de publication:
Mar 2020
Mar 2020
Historique:
entrez:
16
8
2021
pubmed:
1
3
2020
medline:
1
3
2020
Statut:
ppublish
Résumé
Physical and psychological concerns associated with a breast cancer diagnosis continue long after treatment. Macmillan Cancer Support developed an electronic Holistic Needs Assessment (eHNA) to help identify these concerns and allow a healthcare professional to address these as part of The Recovery Package. The study aim was to understand the women's experiences of having breast cancer, and of completing Macmillan's eHNA as part of their care. A qualitative approach was adopted. Semi-structured interviews were undertaken with 15 women, 12-18 months following surgical treatment for invasive breast cancer. Thematic analysis identified key themes. Four main themes were identified in relation to experiences of the eHNA, experiences of breast cancer, coping with breast cancer and the psychological effects of surviving. Perceptions towards the eHNA varied; some women viewed the eHNA as a research tool for hospital use rather than a beneficial aspect of their care. Several participants felt unable to raise their psychological concerns on the eHNA. Although experiences differ, psychological issues remain a key factor for women with breast cancer, lasting long after treatment. The eHNA is not currently used to its potential or recognised by women as a tool to support their care. Further research is needed into how the eHNA can be used effectively to capture psychological concerns and determine best approaches to implementation of the tool to support individualised care.
Sections du résumé
BACKGROUND
BACKGROUND
Physical and psychological concerns associated with a breast cancer diagnosis continue long after treatment. Macmillan Cancer Support developed an electronic Holistic Needs Assessment (eHNA) to help identify these concerns and allow a healthcare professional to address these as part of The Recovery Package.
AIMS
OBJECTIVE
The study aim was to understand the women's experiences of having breast cancer, and of completing Macmillan's eHNA as part of their care.
METHODS
METHODS
A qualitative approach was adopted. Semi-structured interviews were undertaken with 15 women, 12-18 months following surgical treatment for invasive breast cancer. Thematic analysis identified key themes.
RESULTS
RESULTS
Four main themes were identified in relation to experiences of the eHNA, experiences of breast cancer, coping with breast cancer and the psychological effects of surviving. Perceptions towards the eHNA varied; some women viewed the eHNA as a research tool for hospital use rather than a beneficial aspect of their care. Several participants felt unable to raise their psychological concerns on the eHNA.
CONCLUSIONS
CONCLUSIONS
Although experiences differ, psychological issues remain a key factor for women with breast cancer, lasting long after treatment. The eHNA is not currently used to its potential or recognised by women as a tool to support their care. Further research is needed into how the eHNA can be used effectively to capture psychological concerns and determine best approaches to implementation of the tool to support individualised care.
Identifiants
pubmed: 34394613
doi: 10.1177/1744987119829801
pii: 10.1177_1744987119829801
pmc: PMC7932206
doi:
Types de publication
Journal Article
Langues
eng
Pagination
97-110Informations de copyright
© The Author(s) 2019.
Déclaration de conflit d'intérêts
The author(s) declared no potential conflicts of interest with respect to the research, authorship and/or publication of this article.
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