Terms and conditions apply: Critical issues for readability and jargon in mental health depression apps.

Jargon Mental health apps Privacy policies Readability Service users

Journal

Internet interventions
ISSN: 2214-7829
Titre abrégé: Internet Interv
Pays: Netherlands
ID NLM: 101631612

Informations de publication

Date de publication:
Sep 2021
Historique:
received: 05 01 2021
revised: 20 05 2021
accepted: 14 07 2021
entrez: 17 8 2021
pubmed: 18 8 2021
medline: 18 8 2021
Statut: epublish

Résumé

Mental health services are turning to technology to ease the resource burden, but privacy policies are hard to understand potentially compromising consent for people with mental health problems. The FDA recommends a reading grade of 8. To investigate and improve the accessibility and acceptability of mental health depression app privacy policies. A mixed methods study using quantitative and qualitative data to improve the accessibility of app privacy policies. Service users completed assessments and focus groups to provide information on ways to improve privacy policy accessibility, including identifying and rewording jargon. This was supplemented by comparisons of mental health depression apps with social media, music and finance apps using readability analyses and examining whether GDPR affected accessibility. Service users provided a detailed framework for increasing accessibility that emphasised having critical information for consent. Quantitatively, most app privacy policies were too long and complicated for ensuring informed consent (mental health apps mean reading grade = 13.1 (SD = 2.44)). Their reading grades were no different to those for other services. Only 3 mental health apps had a grade 8 or less and 99% contained service user identified jargon. Mental health app privacy policies produced for GDPR weren't more readable and were longer. Apps specifically aimed at people with mental health difficulties are not accessible and even those that fulfilled the FDA's recommendation for reading grade contained jargon words. Developers and designers can increase accessibility by following a few rules and should, before launching, check whether the privacy policy can be understood.

Sections du résumé

BACKGROUND BACKGROUND
Mental health services are turning to technology to ease the resource burden, but privacy policies are hard to understand potentially compromising consent for people with mental health problems. The FDA recommends a reading grade of 8.
OBJECTIVE OBJECTIVE
To investigate and improve the accessibility and acceptability of mental health depression app privacy policies.
METHODS METHODS
A mixed methods study using quantitative and qualitative data to improve the accessibility of app privacy policies. Service users completed assessments and focus groups to provide information on ways to improve privacy policy accessibility, including identifying and rewording jargon. This was supplemented by comparisons of mental health depression apps with social media, music and finance apps using readability analyses and examining whether GDPR affected accessibility.
RESULTS RESULTS
Service users provided a detailed framework for increasing accessibility that emphasised having critical information for consent. Quantitatively, most app privacy policies were too long and complicated for ensuring informed consent (mental health apps mean reading grade = 13.1 (SD = 2.44)). Their reading grades were no different to those for other services. Only 3 mental health apps had a grade 8 or less and 99% contained service user identified jargon. Mental health app privacy policies produced for GDPR weren't more readable and were longer.
CONCLUSIONS CONCLUSIONS
Apps specifically aimed at people with mental health difficulties are not accessible and even those that fulfilled the FDA's recommendation for reading grade contained jargon words. Developers and designers can increase accessibility by following a few rules and should, before launching, check whether the privacy policy can be understood.

Identifiants

pubmed: 34401392
doi: 10.1016/j.invent.2021.100433
pii: S2214-7829(21)00073-7
pmc: PMC8350589
doi:

Types de publication

Journal Article

Langues

eng

Pagination

100433

Informations de copyright

© 2021 The Authors.

Déclaration de conflit d'intérêts

The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.

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Auteurs

Sagar Jilka (S)

Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
South London and Maudsley NHS Foundation Trust, London, UK.

Sara Simblett (S)

Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
South London and Maudsley NHS Foundation Trust, London, UK.

Clarissa M Odoi (CM)

Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
South London and Maudsley NHS Foundation Trust, London, UK.

Janet van Bilsen (J)

Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

Ania Wieczorek (A)

Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

Sinan Erturk (S)

Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

Emma Wilson (E)

Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

Magano Mutepua (M)

Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

Til Wykes (T)

Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
South London and Maudsley NHS Foundation Trust, London, UK.

Classifications MeSH