Clinical outcome assessments in Duchenne muscular dystrophy and spinal muscular atrophy: past, present and future.

Duchenne muscular dystrophy clinical outcome assessment functional outcome motor development motor performance spinal muscular atrophy

Journal

Neuromuscular disorders : NMD
ISSN: 1873-2364
Titre abrégé: Neuromuscul Disord
Pays: England
ID NLM: 9111470

Informations de publication

Date de publication:
10 2021
Historique:
received: 30 06 2021
revised: 12 07 2021
accepted: 16 07 2021
pubmed: 21 8 2021
medline: 3 2 2022
entrez: 20 8 2021
Statut: ppublish

Résumé

Scores and scales used in pediatric motor development for neuromuscular disorders have evolved greatly since the beginning of their development. In this review we provide a brief history of scales used in pediatric patients with neuromuscular disorders and an update regarding the advancement of the scales commonly used in patients with spinal muscular atrophy and Duchenne muscular dystrophy. We focus on the collaborative effort that has led to the development of outcomes and speak to the possible future of Clinical Outcome Assessments.

Identifiants

pubmed: 34412961
pii: S0960-8966(21)00202-9
doi: 10.1016/j.nmd.2021.07.015
pii:
doi:

Types de publication

Journal Article Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

1028-1037

Informations de copyright

Copyright © 2021 Elsevier B.V. All rights reserved.

Déclaration de conflit d'intérêts

Declaration of Competing Interests The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.

Auteurs

Leslie L Nelson (LL)

Department of Physical Therapy, University of Texas Southwestern Medical Center, 6011 Harry Hines Blvd, Dallas, TX, United States. Electronic address: Leslie.nelson@utsouthwestern.edu.

Susan T Iannaccone (ST)

Department of Pediatrics and Neurology, University of Texas Southwestern Medical Center, 5323 Harry Hines Blvd, Dallas, TX, United States. Electronic address: Susan.iannaccone@utsouthwestern.edu.

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Classifications MeSH