Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients.
cancer survivors
community of practice
group processes
patient participation
self-help groups
Journal
Journal of community psychology
ISSN: 1520-6629
Titre abrégé: J Community Psychol
Pays: United States
ID NLM: 0367033
Informations de publication
Date de publication:
03 2022
03 2022
Historique:
revised:
30
06
2021
received:
27
01
2021
accepted:
06
08
2021
pubmed:
25
8
2021
medline:
11
3
2022
entrez:
24
8
2021
Statut:
ppublish
Résumé
Breast cancer patients are primary users of Internet Health Forums, virtual self-help communities where they find and share information, preoccupations, and support. Previous literature has mainly focused on analysing the contents and the outcomes of breast cancer forums' participation. In light of the Community of Practice theoretical model, our research investigated the psychosocial processes that build and shape patients' experience and participation in the forum. We conducted 16 semi-structured email interviews with breast cancer patients recruited within a well-established online community. Thematic analysis identified five processes-mirroring, monitoring, modelling, belonging, and distancing-that marked three phases of users' experience: initiation, participation, detachment. An interactive dynamic characterised the identified processes: the disease's experience was shaped by and, in turn, it crafted this virtual community. These community processes contributed to participants' empowerment at practical, informative, and emotional levels through the development of a shared repertoire of resources, stories, and ways of dealing with patients' recurring problems.
Identifiants
pubmed: 34428308
doi: 10.1002/jcop.22696
pmc: PMC9290070
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
992-1007Informations de copyright
© 2021 The Authors. Journal of Community Psychology Published by Wiley Periodicals LLC.
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