Healthy Parent Carers programme: mixed methods process evaluation and refinement of a health promotion intervention.

Caregivers Child Feasibility Studies Female Health Promotion Humans Male Parents Surveys and Questionnaires
preventive medicine qualitative research statistics & research methods

Journal

BMJ open
ISSN: 2044-6055
Titre abrégé: BMJ Open
Pays: England
ID NLM: 101552874

Informations de publication

Date de publication:
25 08 2021
Historique:
entrez: 26 8 2021
pubmed: 27 8 2021
medline: 15 9 2021
Statut: epublish

Résumé

Parent carers of children with special educational needs or disability are at risk of poorer mental and physical health. In response to these needs, we codeveloped the 'Healthy Parent Carers' (HPC) programme. This study examined the views and experiences of participants in the HPC feasibility trial to inform programme refinement. HPC is a peer-led group-based intervention (supported by online materials) for primary carers of disabled children, encouraging behaviours linked with health and well-being. It was delivered by two lead and six assistant peer facilitators in six community sites (one lead and one assistant per group) in South West England over six or 12 sessions. Control participants had online materials only. The trial involved 47 intervention and 45 control parent carers (97% female and 97% white) and eight facilitators (one male). A preplanned mixed methods process evaluation using questionnaires and checklists (during and after the intervention), qualitative interviews with participants after intervention (n=18) and a focus group with facilitators after trial. HPC was highly acceptable to participants and facilitators and experiences were very positive. Participants reported that the programme increased awareness of what parent carers could and could not change and their self-efficacy to engage in health-promoting behaviours. The intended mechanisms of action (social identification and peer support) matched participants' expectations and experiences. Control participants found the online-only programme flexible but isolating, as there were no opportunities to share ideas and problem solve with peers, the key function of the programme. Areas for improvement were identified for programme content, facilitator training and delivery. HPC was acceptable, well received and offers considerable potential to improve the health of parent carers. Under the pandemic, the challenge going forward is how best to maintain reach and fidelity to function while delivering a more virtual programme. ISRCTN151144652.

Identifiants

DOI: 10.1136/bmjopen-2020-045570 PMID: 34433591 PMC: PMC8388296
pubmed: 34433591
pii: bmjopen-2020-045570
doi: 10.1136/bmjopen-2020-045570
pmc: PMC8388296
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

e045570

Subventions

Organisme : Department of Health
ID : PB-PG-0317-20044
Pays : United Kingdom

Informations de copyright

© Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

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Auteurs

Jenny Lloyd (J)

NIHR Applied Research Collaboration South West Peninsula (PenARC), University of Exeter Medical School, University of Exeter, Exeter, UK J.J.Lloyd@exeter.ac.uk.
Relational Health Group, Institute of Health Research, University of Exeter Medical School, University of Exeter, Exeter, UK.
ORCID: 0000-0003-3211-5972

Gretchen Bjornstad (G)

NIHR Applied Research Collaboration South West Peninsula (PenARC), University of Exeter Medical School, University of Exeter, Exeter, UK.
Peninsula Childhood Disability Research Unit (PenCRU), University of Exeter Medical School, University of Exeter, Exeter, UK.

Aleksandra Borek (A)

Medical Sciences Division, Nuffield Department of Primary Care Health Sciences, Oxford University, Oxford, UK.
ORCID: 0000-0001-6029-5291

Beth Cuffe-Fuller (B)

Peninsula Childhood Disability Research Unit (PenCRU), University of Exeter Medical School, University of Exeter, Exeter, UK.

Mary Fredlund (M)

NIHR Applied Research Collaboration South West Peninsula (PenARC), University of Exeter Medical School, University of Exeter, Exeter, UK.
Peninsula Childhood Disability Research Unit (PenCRU), University of Exeter Medical School, University of Exeter, Exeter, UK.

Annabel McDonald (A)

Peninsula Childhood Disability Research Unit (PenCRU), University of Exeter Medical School, University of Exeter, Exeter, UK.

Mark Tarrant (M)

NIHR Applied Research Collaboration South West Peninsula (PenARC), University of Exeter Medical School, University of Exeter, Exeter, UK.

Vashti Berry (V)

NIHR Applied Research Collaboration South West Peninsula (PenARC), University of Exeter Medical School, University of Exeter, Exeter, UK.

Kath Wilkinson (K)

Peninsula Childhood Disability Research Unit (PenCRU), University of Exeter Medical School, University of Exeter, Exeter, UK.

Siobhan Mitchell (S)

NIHR Applied Research Collaboration South West Peninsula (PenARC), University of Exeter Medical School, University of Exeter, Exeter, UK.

Annette Gillett (A)

Peninsula Childhood Disability Research Unit (PenCRU), University of Exeter Medical School, University of Exeter, Exeter, UK.

Stuart Logan (S)

NIHR Applied Research Collaboration South West Peninsula (PenARC), University of Exeter Medical School, University of Exeter, Exeter, UK.
Peninsula Childhood Disability Research Unit (PenCRU), University of Exeter Medical School, University of Exeter, Exeter, UK.

Christopher Morris (C)

NIHR Applied Research Collaboration South West Peninsula (PenARC), University of Exeter Medical School, University of Exeter, Exeter, UK.
Peninsula Childhood Disability Research Unit (PenCRU), University of Exeter Medical School, University of Exeter, Exeter, UK.
ORCID: 0000-0002-9916-507X

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Classifications MeSH

questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Personnel de santé › Aidants › Healthy Parent Carers programme: mixed methods...
questionsmedicales.fr › Personnes › Tranches d'âge › Enfant › Healthy Parent Carers programme: mixed methods...
questionsmedicales.fr › Environnement et santé publique › Santé publique › Méthodes épidémiologiques › Caractéristiques des études épidémiologiques › Études de faisabilité › Healthy Parent Carers programme: mixed methods...
questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Services de santé › Services de médecine préventive › Éducation pour la santé › Promotion de la santé › Healthy Parent Carers programme: mixed methods...
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Healthy Parent Carers programme: mixed methods...
questionsmedicales.fr › Personnes › Parents › Healthy Parent Carers programme: mixed methods...
questionsmedicales.fr › Environnement et santé publique › Santé publique › Méthodes épidémiologiques › Collecte de données › Enquêtes et questionnaires › Healthy Parent Carers programme: mixed methods...