Assessing Shared Decision-Making in Cystic Fibrosis Care Using collaboRATE: A Cross-Sectional Study of 159 Programs.

There are numerous opportunities for shared decision-making (SDM) in cystic fibrosis (CF) care, yet little is known about patients' SDM experiences. This study evaluated SDM across 159 CF care programs (4024 participants) in the United States. Shared decision-making was assessed using the patient-reported

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© The Author(s) 2021.

Déclaration de conflit d'intérêts

Declaration of Conflicting Interests: The author(s) declared the following potential conflicts of interest with respect to the research, authorship, and/or publication of this article: Pamela Mertz and Karen Homa were paid consultants for the CF Foundation during the conduct of this study. Gabrielle Stevens and Glyn Elwyn are supported by an award from the CF Foundation (see 'Funding') to conduct other research projects in addition to this work. Glyn Elwyn’s academic interests are focused on shared decision-making and coproduction. He edited and published the book Shared Decision Making (Oxford University Press) that provides royalties on sales by its publishers. He owns copyright in measures of shared decision-making including collaboRATE, incorpoRATE (physicians' willingess to incorporate shared decision-making in practice), Observer OPTION-5 and Observer OPTION-12 (observer measures of shared decision-making). He has in the past provided consultancy for organizations, including: (1) Emmi Solutions LLC who developed patient decision support tools; (2) National Quality Forum on the certification of decision support tools; (3) Washington State Health Department on the certification of decision support tools; (4) SciMentum LLC, Amsterdam (workshops for shared decision-making). He is the Founder and Director of &think LLC which owns the registered trademark for Option GridsTM patient decision aids; Founder and Director of SHARPNETWORK LLC, a provider of training for shared decision-making. He provides advice in the domain of shared decision-making and patient decision aids to (1) Access Community Health Network, Chicago (Adviser to Federally Qualified Medical Centers); (2) EBSCO Health for Option Grids TM patient decision aids (Consultant); (3) Bind On-Demand Health Insurance (Consultant), (4) PatientWisdom Inc (Adviser); (5) abridge AI Inc (Chief Clinical Research Scientist).