Participatory Development and Preliminary Psychometric Properties of the User-Friendly Patient Information Material Checklist (UPIM-Check).

instrument development patient engagement patient information material pilot study psychometric properties quality assessment instrument service provider engagement

Journal

International journal of environmental research and public health
ISSN: 1660-4601
Titre abrégé: Int J Environ Res Public Health
Pays: Switzerland
ID NLM: 101238455

Informations de publication

Date de publication:
19 08 2021
Historique:
received: 07 07 2021
revised: 17 08 2021
accepted: 18 08 2021
entrez: 27 8 2021
pubmed: 28 8 2021
medline: 1 9 2021
Statut: epublish

Résumé

The aims of this study were (1) to design a user-friendly instrument to assess and optimize patient information material (PIM), (2) to develop an English version, and (3) to test its psychometric properties. The instrument was needed to optimize the top-down developed PIM of the psycho-oncological care programme isPO. First, a literature-based PIM checklist was developed by a team of patient representatives, cancer care experts and professional researchers. Next, the checklist's reliability and validity were analysed by having cancer survivors assess the initial and optimized version of the isPO-leaflet. The

Identifiants

pubmed: 34444518
pii: ijerph18168773
doi: 10.3390/ijerph18168773
pmc: PMC8393725
pii:
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

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Auteurs

Sandra Salm (S)

Faculty of Human Sciences and Faculty of Medicine, Institute of Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), University of Cologne, Eupener Str. 129, 50933 Cologne, Germany.

Judith Mollenhauer (J)

Faculty of Human Sciences and Faculty of Medicine, Institute of Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), University of Cologne, Eupener Str. 129, 50933 Cologne, Germany.

Carolin Hornbach (C)

Faculty of Human Sciences and Faculty of Medicine, Institute of Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), University of Cologne, Eupener Str. 129, 50933 Cologne, Germany.

Natalia Cecon (N)

Faculty of Human Sciences and Faculty of Medicine, Institute of Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), University of Cologne, Eupener Str. 129, 50933 Cologne, Germany.

Antje Dresen (A)

Faculty of Human Sciences and Faculty of Medicine, Institute of Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), University of Cologne, Eupener Str. 129, 50933 Cologne, Germany.

Stefanie Houwaart (S)

House of the Cancer Patient Support Associations of Germany (HKSH-BV), Thomas-Mann-Str. 40, 53111 Bonn, Germany.

Anna Arning (A)

Cancer Society North Rhine-Westphalia (KG-NRW), Volmerswerther Str. 20, 40221 Düsseldorf, Germany.

Andrea Göttel (A)

Cancer Society North Rhine-Westphalia (KG-NRW), Volmerswerther Str. 20, 40221 Düsseldorf, Germany.

Kathrin Schwickerath (K)

Cancer Society North Rhine-Westphalia (KG-NRW), Volmerswerther Str. 20, 40221 Düsseldorf, Germany.

Holger Pfaff (H)

Faculty of Human Sciences and Faculty of Medicine, Institute of Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), University of Cologne, Eupener Str. 129, 50933 Cologne, Germany.

Nadine Scholten (N)

Faculty of Human Sciences and Faculty of Medicine, Institute of Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), University of Cologne, Eupener Str. 129, 50933 Cologne, Germany.

Theresia Krieger (T)

Faculty of Human Sciences and Faculty of Medicine, Institute of Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), University of Cologne, Eupener Str. 129, 50933 Cologne, Germany.

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Classifications MeSH