Establishing a National Community of Practice for Newborn Screening Follow-Up.
community of practice
follow-up
newborn screening
short-term follow-up
technical assistance
Journal
International journal of neonatal screening
ISSN: 2409-515X
Titre abrégé: Int J Neonatal Screen
Pays: Switzerland
ID NLM: 101665400
Informations de publication
Date de publication:
26 Jul 2021
26 Jul 2021
Historique:
received:
09
06
2021
revised:
06
07
2021
accepted:
22
07
2021
entrez:
27
8
2021
pubmed:
28
8
2021
medline:
28
8
2021
Statut:
epublish
Résumé
Newborn screening (NBS) follow-up programs in the United States are managed at the state level, leaving limited opportunities for collaboration across programs and coordinated resource sharing. The Newborn Screening Technical assistance and Evaluation Program (NewSTEPs), a program of the Association of Public Health Laboratories (APHL), has established a national community of practice for NBS follow-up by creating a network of follow-up staff and stakeholders through education and engagement opportunities. The activities of NewSTEPs in support of NBS follow-up have strengthened information dissemination, collaboration, data collection and technical assistance-driven mentorship across the national system.
Identifiants
pubmed: 34449529
pii: ijns7030049
doi: 10.3390/ijns7030049
pmc: PMC8395728
pii:
doi:
Types de publication
Journal Article
Langues
eng
Subventions
Organisme : HRSA HHS
ID : U22MC24078
Pays : United States
Références
Int J Neonatal Screen. 2019 Feb 12;5(1):13
pubmed: 33072973
Int J Neonatal Screen. 2020 Jun 11;6(2):48
pubmed: 33073038
MMWR Morb Mortal Wkly Rep. 2011 May 20;60(19):619-23
pubmed: 21597455
Genet Med. 2008 Apr;10(4):259-61
pubmed: 18414208
Int J Neonatal Screen. 2019 Sep 12;5(3):34
pubmed: 33072993