Establishing a National Community of Practice for Newborn Screening Follow-Up.

community of practice follow-up newborn screening short-term follow-up technical assistance

Journal

International journal of neonatal screening
ISSN: 2409-515X
Titre abrégé: Int J Neonatal Screen
Pays: Switzerland
ID NLM: 101665400

Informations de publication

Date de publication:
26 Jul 2021
Historique:
received: 09 06 2021
revised: 06 07 2021
accepted: 22 07 2021
entrez: 27 8 2021
pubmed: 28 8 2021
medline: 28 8 2021
Statut: epublish

Résumé

Newborn screening (NBS) follow-up programs in the United States are managed at the state level, leaving limited opportunities for collaboration across programs and coordinated resource sharing. The Newborn Screening Technical assistance and Evaluation Program (NewSTEPs), a program of the Association of Public Health Laboratories (APHL), has established a national community of practice for NBS follow-up by creating a network of follow-up staff and stakeholders through education and engagement opportunities. The activities of NewSTEPs in support of NBS follow-up have strengthened information dissemination, collaboration, data collection and technical assistance-driven mentorship across the national system.

Identifiants

pubmed: 34449529
pii: ijns7030049
doi: 10.3390/ijns7030049
pmc: PMC8395728
pii:
doi:

Types de publication

Journal Article

Langues

eng

Subventions

Organisme : HRSA HHS
ID : U22MC24078
Pays : United States

Références

Int J Neonatal Screen. 2019 Feb 12;5(1):13
pubmed: 33072973
Int J Neonatal Screen. 2020 Jun 11;6(2):48
pubmed: 33073038
MMWR Morb Mortal Wkly Rep. 2011 May 20;60(19):619-23
pubmed: 21597455
Genet Med. 2008 Apr;10(4):259-61
pubmed: 18414208
Int J Neonatal Screen. 2019 Sep 12;5(3):34
pubmed: 33072993

Auteurs

Erin Darby (E)

Association of Public Health Laboratories, Silver Spring, MD 20910, USA.

John Thompson (J)

Newborn Screening Laboratory, Public Health Laboratories, Washington State Department of Health, Shoreline, WA 98155, USA.

Carol Johnson (C)

Stead Family Children's Hospital, University of Iowa, Iowa City, IA 52242, USA.

Sikha Singh (S)

Association of Public Health Laboratories, Silver Spring, MD 20910, USA.

Jelili Ojodu (J)

Association of Public Health Laboratories, Silver Spring, MD 20910, USA.

Classifications MeSH