[Negative effects of the patients' rights law and neuro-rights bill in Chile].

Efectos negativos en la investigación y el quehacer médico en Chile de la Ley 20.584 y la Ley de Neuroderechos en discusión: la urgente necesidad de aprender de nuestros errores.

Journal

Revista medica de Chile
ISSN: 0717-6163
Titre abrégé: Rev Med Chil
Pays: Chile
ID NLM: 0404312

Informations de publication

Date de publication:
Mar 2021
Historique:
received: 28 12 2020
accepted: 05 01 2021
entrez: 3 9 2021
pubmed: 4 9 2021
medline: 8 9 2021
Statut: ppublish

Résumé

Recently, the Chilean Senate approved the main ideas of a constitutional reform and a Neuro-rights bill. This bill aims to protect people from the potential abusive use of "neuro-technologies". Unfortunately, a literal interpretation of this law can produce severe negative effects both in the development of neuroscience research and medical practice in Chile, interfering with current treatments in countless patients suffering from neuropsychiatric diseases. This fear stems from the observation of the negative effects that recent Chilean legislations have produced, which share with the Neuro-Rights Law the attempt to protect vulnerable populations from potential abuse from certain medical interventions. In fact, Law 20,584 promulgated in 2012, instead of protecting the most vulnerable patients "incapacitated to consent", produced enormous, and even possibly irreversible, damage to research in Chile in pathologies that require urgent attention, such as many neuropsychiatric diseases. This article details the effects that Law 20.584 had on research in Chile, how it relates to the Neuro-Rights Law, and the potential negative effects that the latter could have on research and medical practice, if it is not formulated correcting its errors.

Identifiants

pubmed: 34479323
pii: S0034-98872021000300439
doi: 10.4067/s0034-98872021000300439
pii:
doi:

Types de publication

Journal Article

Langues

spa

Sous-ensembles de citation

IM

Pagination

439-446

Auteurs

Sergio Ruiz (S)

Departamento de Psiquiatría, Escuela de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.

Paulina Ramos-Vergara (P)

Centro de Bioética, Escuela de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.

Rodrigo Concha (R)

Escuela de Psicología, Pontificia Universidad Católica de Chile, Santiago, Chile.

Fernando Altermatt (F)

Departamento de Anestesiología, Escuela de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.

Rommy Von-Bernhardi (R)

Departamento de Neurología, Escuela de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.

Mauricio Cuello (M)

Departamento de Ginecología, División de Ginecología y Obstetricia, Escuela de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.

Jaime Godoy (J)

Departamento de Neurología, Escuela de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.

Luca Valera (L)

Centro de Bioética, Escuela de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.

Pablo Araya (P)

Escuela de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.

Edgardo Conde (E)

Facultad de Derecho, Pontificia Universidad Católica de Chile, Santiago, Chile.

Pablo Toro (P)

Departamento de Psiquiatría, Escuela de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.

Constanza Caneo (C)

Departamento de Psiquiatría, Escuela de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.

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Classifications MeSH