Dementia Caregivers' Experiences Engaging Supportive Services While Residing in Under-Resourced Areas.
Caregiving
dementia
health disparities
social support
Journal
Journal of Alzheimer's disease : JAD
ISSN: 1875-8908
Titre abrégé: J Alzheimers Dis
Pays: Netherlands
ID NLM: 9814863
Informations de publication
Date de publication:
2021
2021
Historique:
pubmed:
7
9
2021
medline:
5
1
2022
entrez:
6
9
2021
Statut:
ppublish
Résumé
Family caregivers of people living with dementia benefit from supportive service use to address care needs associated with caregiving. Yet, research consistently demonstrates low rates of service use. Existing research has focused on barriers and facilitators to service use, with few studies examining the influence of caregivers' environmental context which often patterns social advantage and health services accessibility. To describe the perspectives of caregivers residing in socially disadvantaged areas have in regards to utilizing supportive services. Ten informal caregivers residing in socially disadvantaged areas participated in in-depth interviews that were analyzed using thematic analysis. Across all interviews, caregivers spontaneously described common precedents of service use (crisis or accumulation of unmet needs) and a distinct sequence of stages (seeking, initiating, and utilizing) surrounding service engagement. Major themes characterizing caregivers' experiences throughout service engagement highlight the varied influence of personal, familial, health, and social system-related factors. Findings demonstrate that caregivers may have different service needs as dementia progresses and that gerontological social work practice can facilitate service use. While preliminary, these findings provide important insights into new domains that can be further examined in future research and intervention efforts to improve supportive service use in socially disadvantaged and underserved communities.
Sections du résumé
BACKGROUND
Family caregivers of people living with dementia benefit from supportive service use to address care needs associated with caregiving. Yet, research consistently demonstrates low rates of service use. Existing research has focused on barriers and facilitators to service use, with few studies examining the influence of caregivers' environmental context which often patterns social advantage and health services accessibility.
OBJECTIVE
To describe the perspectives of caregivers residing in socially disadvantaged areas have in regards to utilizing supportive services.
METHODS
Ten informal caregivers residing in socially disadvantaged areas participated in in-depth interviews that were analyzed using thematic analysis.
RESULTS
Across all interviews, caregivers spontaneously described common precedents of service use (crisis or accumulation of unmet needs) and a distinct sequence of stages (seeking, initiating, and utilizing) surrounding service engagement. Major themes characterizing caregivers' experiences throughout service engagement highlight the varied influence of personal, familial, health, and social system-related factors. Findings demonstrate that caregivers may have different service needs as dementia progresses and that gerontological social work practice can facilitate service use.
CONCLUSION
While preliminary, these findings provide important insights into new domains that can be further examined in future research and intervention efforts to improve supportive service use in socially disadvantaged and underserved communities.
Identifiants
pubmed: 34487046
pii: JAD210609
doi: 10.3233/JAD-210609
pmc: PMC8565358
mid: NIHMS1738809
doi:
Types de publication
Journal Article
Research Support, N.I.H., Extramural
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
169-177Subventions
Organisme : NIA NIH HHS
ID : K24 AG054560
Pays : United States
Organisme : NIA NIH HHS
ID : R36 AG072033
Pays : United States
Organisme : NIGMS NIH HHS
ID : R25 GM083252
Pays : United States
Organisme : NIMHD NIH HHS
ID : R01 MD010243
Pays : United States
Organisme : NIA NIH HHS
ID : K76 AG060005
Pays : United States
Organisme : NIA NIH HHS
ID : RF1 AG057784
Pays : United States
Organisme : NIA NIH HHS
ID : P30 AG062715
Pays : United States
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