Child and caregiver experiences and perceptions of asthma self-management.
Journal
NPJ primary care respiratory medicine
ISSN: 2055-1010
Titre abrégé: NPJ Prim Care Respir Med
Pays: England
ID NLM: 101631999
Informations de publication
Date de publication:
09 09 2021
09 09 2021
Historique:
received:
03
11
2020
accepted:
19
08
2021
entrez:
10
9
2021
pubmed:
11
9
2021
medline:
29
10
2021
Statut:
epublish
Résumé
Asthma is the most common chronic condition of childhood. Self-management is integral to good asthma control. This qualitative paper explores how children with asthma and their parents perceive asthma, their experience with asthma, and how they manage symptoms, preventions and medications within and outside the home. We undertook 15 focus groups with 41 school-aged (6-11 years) children with asthma and 38 parents. Parents and their children attended the same focus groups. We used thematic analysis to analyse the transcripts. Our findings show the impact asthma can have on children's social and emotional wellbeing and highlight how reliant school-aged children are on their parents to effectively manage their asthma. Parents reported being unsure when their child's symptoms warranted visiting their doctor or hospital. Schools were identified as a source of difficulty regarding asthma management; families reported that children may be self-conscious about their asthma and using their inhaler at school. School policies and teachers' lack of asthma knowledge were reported to exacerbate children's reluctance to use their inhaler at school. Our results have implications for the design and implementation of children's self-management interventions for their asthma, particularly when they are at school and away from their parents.
Identifiants
pubmed: 34504105
doi: 10.1038/s41533-021-00253-9
pii: 10.1038/s41533-021-00253-9
pmc: PMC8429661
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
42Informations de copyright
© 2021. The Author(s).
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