The Impact of the Digital Age and Social Media on Connecting the Clubfoot Community.
clubfoot
community
information sharing
ponseti
social media
support
talipes equinovarus
Journal
Cureus
ISSN: 2168-8184
Titre abrégé: Cureus
Pays: United States
ID NLM: 101596737
Informations de publication
Date de publication:
Jul 2021
Jul 2021
Historique:
accepted:
31
07
2021
entrez:
13
9
2021
pubmed:
14
9
2021
medline:
14
9
2021
Statut:
epublish
Résumé
Background Internet chat rooms played an important role in the late 1990s promoting the Ponseti method as the preferred initial treatment for congenital clubfoot. The social media boom has created multiple new methods for caregivers to seek support from a global community using a variety of platforms that are now easily available. This study assesses the reach of information shared across social media platforms about congenital clubfoot and analyzes topics most commonly discussed among members in these groups. Methodology Posts and pages across Facebook, Instagram, Twitter, and TikTok were evaluated to identify the top clubfoot-related hashtags and accounts. In addition, content themes were analyzed for posts across all platforms. Results There were 122 clubfoot-focused Facebook groups for parent support, and the five Facebook groups with the highest number of posts during the study period were found to frequently discuss the following topics: successful treatment stories, questions about casting, bracing, relapse, and commercial items compatible with clubfoot treatment. Twitter pages contained information about live webinars, educational resources for parents and providers, and the impact of the coronavirus disease 2019 pandemic on clubfoot treatment. A search across visual platforms using "#clubfoot" yielded over 59,000 cumulative posts on Instagram and over 34.7 million total views on TikTok. Conclusions Parents of clubfoot patients are increasingly connecting through digital social media platforms, relying on them for information on clubfoot, and utilizing them as a network for social support. Clubfoot physicians should be aware of this content on social media to promote education and discussion that addresses parent concerns, provides accurate information, and guides expectations.
Identifiants
pubmed: 34513387
doi: 10.7759/cureus.16780
pmc: PMC8405383
doi:
Types de publication
Journal Article
Langues
eng
Pagination
e16780Informations de copyright
Copyright © 2021, Tonkovich et al.
Déclaration de conflit d'intérêts
The authors have declared financial relationships, which are detailed in the next section.
Références
Inflamm Bowel Dis. 2016 May;22(5):1231-8
pubmed: 26894839
J Pediatr Orthop B. 2020 Jul;29(4):375-378
pubmed: 31725533
Front Psychol. 2015 May 07;6:567
pubmed: 25999884
J Med Internet Res. 2003 Oct 10;5(4):e24
pubmed: 14713652
J Bone Joint Surg Am. 1995 Oct;77(10):1477-89
pubmed: 7593056
Eur Spine J. 2012 Oct;21(10):1972-7
pubmed: 22820914
J Pediatr Orthop B. 2005 Mar;14(2):129-33
pubmed: 15703525
J Child Orthop. 2021 Feb 1;15(1):81-88
pubmed: 33643463
Curr Rev Musculoskelet Med. 2017 Mar;10(1):141-145
pubmed: 28110391
Iowa Orthop J. 2003;23:83-6
pubmed: 14575256
J Bone Joint Surg Am. 1980 Jan;62(1):23-31
pubmed: 7351412
World J Orthop. 2014 Nov 18;5(5):585-90
pubmed: 25405086
Clin Orthop Relat Res. 2006 Oct;451:171-6
pubmed: 16788408
J Pediatr Orthop. 2002 Mar-Apr;22(2):261-4
pubmed: 11856943