Psychological difficulties of LVAD patients and caregivers: A follow up over one year from discharge.
LVAD patients
caregivers
clinical psychology
follow-up
psychological health
rehabilitation
Journal
Artificial organs
ISSN: 1525-1594
Titre abrégé: Artif Organs
Pays: United States
ID NLM: 7802778
Informations de publication
Date de publication:
Mar 2022
Mar 2022
Historique:
revised:
24
07
2021
received:
18
06
2021
accepted:
31
08
2021
pubmed:
15
9
2021
medline:
9
3
2022
entrez:
14
9
2021
Statut:
ppublish
Résumé
After the rehabilitation program, patients with left ventricular assist device (LVAD) are discharged home, but the adaption to the daily life with the implant is challenging, both with practical and psychological consequences. Literature is lacking detailed information about the quality of life of LVAD patients and caregivers after discharge to home. This study aimed at evaluating the post-discharge outcomes of both LVAD patients and their caregivers in terms of quality of life, affectivity, and psychological health. In this observational follow-up study, LVAD dyads discharged home from 1 year to 6 years were re-contacted by phone and received by mail an envelope with self-report questionnaires. Responses of 39 complete dyads of patients (mean age 68.59 ± 4.31; males: 92.31%) and their caregivers (mean age 61.59 ± 11.64; males: 17.95%) were analyzed. Patients and caregivers reported the moderate levels of anxiety, depression, and caregiver strain, and Illness denial and conscious avoidance were associated between them. The couples often reported that the LVAD has impairments for their sleep and for their affective-sexual relationship. Caregivers often reported impairment in social life and self-care. Despite the satisfaction for the medical and territorial assistance, patients showed psychological difficulties such as anxious and depressive symptoms and caregivers tend to neglect themselves. Even after a long time from discharge to home, the psychological distress of LVAD patients and caregivers is still considerable. Structured and continuous psychological interventions are required to support their psychological health overtime after the discharge to home.
Sections du résumé
BACKGROUND
BACKGROUND
After the rehabilitation program, patients with left ventricular assist device (LVAD) are discharged home, but the adaption to the daily life with the implant is challenging, both with practical and psychological consequences. Literature is lacking detailed information about the quality of life of LVAD patients and caregivers after discharge to home.
OBJECTIVE
OBJECTIVE
This study aimed at evaluating the post-discharge outcomes of both LVAD patients and their caregivers in terms of quality of life, affectivity, and psychological health.
METHODS
METHODS
In this observational follow-up study, LVAD dyads discharged home from 1 year to 6 years were re-contacted by phone and received by mail an envelope with self-report questionnaires. Responses of 39 complete dyads of patients (mean age 68.59 ± 4.31; males: 92.31%) and their caregivers (mean age 61.59 ± 11.64; males: 17.95%) were analyzed.
RESULTS
RESULTS
Patients and caregivers reported the moderate levels of anxiety, depression, and caregiver strain, and Illness denial and conscious avoidance were associated between them. The couples often reported that the LVAD has impairments for their sleep and for their affective-sexual relationship. Caregivers often reported impairment in social life and self-care.
DISCUSSIONS
CONCLUSIONS
Despite the satisfaction for the medical and territorial assistance, patients showed psychological difficulties such as anxious and depressive symptoms and caregivers tend to neglect themselves. Even after a long time from discharge to home, the psychological distress of LVAD patients and caregivers is still considerable. Structured and continuous psychological interventions are required to support their psychological health overtime after the discharge to home.
Identifiants
pubmed: 34519060
doi: 10.1111/aor.14071
pmc: PMC9292387
doi:
Types de publication
Journal Article
Observational Study
Langues
eng
Sous-ensembles de citation
IM
Pagination
479-490Informations de copyright
© 2021 The Authors. Artificial Organs published by International Center for Artificial Organ and Transplantation (ICAOT) and Wiley Periodicals LLC.
Références
J Clin Nurs. 2015 Sep;24(17-18):2376-82
pubmed: 26095074
J Cardiovasc Nurs. 2021 May-Jun 01;36(3):229-237
pubmed: 33605640
Artif Organs. 2020 Jun;44(6):655-660
pubmed: 31904106
Psychol Bull. 2010 Sep;136(5):894-914
pubmed: 20804242
Eur J Heart Fail. 2020 Jun;22(6):937-940
pubmed: 32437041
ESC Heart Fail. 2014 Dec;1(2):103-109
pubmed: 28834629
J Anxiety Disord. 2020 Oct;75:102293
pubmed: 32827868
Artif Organs. 2020 Aug;44(8):873-876
pubmed: 32464685
Front Psychol. 2019 Jan 11;9:2722
pubmed: 30687177
J Clin Med. 2020 Dec 25;10(1):
pubmed: 33375763
Circulation. 2020 Mar 17;141(11):934-936
pubmed: 32153210
J Cardiovasc Nurs. 2012 Sep-Oct;27(5):394-402
pubmed: 21912269
J Geriatr Cardiol. 2018 Jun;15(6):451-459
pubmed: 30108618
Nurs Res. 1981 Sep-Oct;30(5):258-63
pubmed: 6912987
Neuropsychiatr Dis Treat. 2021 Feb 11;17:413-422
pubmed: 33603379
Curr Heart Fail Rep. 2019 Oct;16(5):168-179
pubmed: 31631240
Obes Facts. 2018;11(1):25-36
pubmed: 29402854
Eur J Phys Rehabil Med. 2020 Apr;56(2):197-205
pubmed: 31976637
Front Psychol. 2020 Dec 17;11:596501
pubmed: 33391116
Artif Organs. 2020 Jan;44(1):67-71
pubmed: 31267546
J Affect Disord. 2020 Dec 1;277:55-64
pubmed: 32799105
J Cardiovasc Nurs. 2016 May-Jun;31(3):215-25
pubmed: 25882647
Front Psychol. 2017 Feb 17;8:214
pubmed: 28261143
Front Psychol. 2020 Nov 10;11:2177
pubmed: 33240140
BMC Psychiatry. 2020 Apr 15;20(1):167
pubmed: 32295581
Heart Lung. 2016 Sep-Oct;45(5):397-405
pubmed: 27342261
Circ Heart Fail. 2021 Apr;14(4):e007957
pubmed: 33813838
J Card Fail. 2020 Aug;26(8):713-726
pubmed: 32505816
Neuropsychiatr Dis Treat. 2017 Mar 23;13:909-916
pubmed: 28356745
BMJ. 2002 May 18;324(7347):1183
pubmed: 12016181
J Cardiol. 2018 Jan;71(1):81-87
pubmed: 28774573
Psychosom Med. 2019 Feb/Mar;81(2):192-199
pubmed: 30625121
Behav Sci (Basel). 2021 Jun 14;11(6):
pubmed: 34198572
Trials. 2018 Nov 29;19(1):659
pubmed: 30486868
Gen Thorac Cardiovasc Surg. 2016 Sep;64(9):501-8
pubmed: 27270581
J Fam Nurs. 2018 Feb;24(1):8-28
pubmed: 29353528
Artif Organs. 2015 Mar;39(3):220-7
pubmed: 25205291
Monaldi Arch Chest Dis. 2006 Dec;66(4):255-63
pubmed: 17312844
Psychol Res Behav Manag. 2019 Aug 22;12:727-739
pubmed: 31686929
Artif Organs. 2015 Aug;39(8):664-9
pubmed: 26148127
Circ Cardiovasc Qual Outcomes. 2017 Jan;10(1):
pubmed: 28073849
J Pers Assess. 2015;97(3):252-60
pubmed: 25257993
J Clin Nurs. 2010 Jan;19(1-2):275-83
pubmed: 20500263
Eat Weight Disord. 2017 Jun;22(2):361-367
pubmed: 27165047
Heart Lung. 2021 May-Jun;50(3):375-381
pubmed: 33621834
Front Psychol. 2020 Oct 02;11:567484
pubmed: 33132973
BMJ Open. 2016 Oct 5;6(10):e011694
pubmed: 27707824
J Am Heart Assoc. 2018 Mar 7;7(6):
pubmed: 29514804
Psychiatr Serv. 2012 Oct;63(10):963-73
pubmed: 23032675
ESC Heart Fail. 2020 Oct;7(5):3022-3028
pubmed: 32725771
Eur J Cardiovasc Nurs. 2021 May 22;20(4):342-347
pubmed: 33620456
Artif Organs. 2022 Mar;46(3):479-490
pubmed: 34519060
J Gerontol B Psychol Sci Soc Sci. 2000 Nov;55(6):P362-72
pubmed: 11078106
PLoS One. 2021 Aug 18;16(8):e0256041
pubmed: 34407127
Front Psychol. 2017 Feb 07;8:83
pubmed: 28223950
Artif Organs. 2020 Mar;44(3):248-256
pubmed: 31435951
Heart Lung. 2018 May - Jun;47(3):177-183
pubmed: 29551363
Eur J Phys Rehabil Med. 2021 Apr;57(2):288-297
pubmed: 33448752
Front Psychol. 2021 Mar 31;12:636129
pubmed: 33868105
Front Psychol. 2018 Jan 09;8:2289
pubmed: 29375422
Front Psychol. 2019 Sep 06;10:2045
pubmed: 31551881
Fam Pract. 2002 Feb;19(1):105-11
pubmed: 11818359