Validation of the Gait Outcomes Assessment List questionnaire and caregiver priorities for individuals with cerebral palsy.
Activities of Daily Living
Adolescent
Adult
Caregivers
Cerebral Palsy
/ complications
Child
Child, Preschool
Cross-Sectional Studies
Exercise
/ physiology
Fatigue
/ diagnosis
Female
Gait Disorders, Neurologic
/ diagnosis
Humans
Male
Pain
/ diagnosis
Patient Reported Outcome Measures
Reproducibility of Results
Retrospective Studies
Severity of Illness Index
Young Adult
Journal
Developmental medicine and child neurology
ISSN: 1469-8749
Titre abrégé: Dev Med Child Neurol
Pays: England
ID NLM: 0006761
Informations de publication
Date de publication:
03 2022
03 2022
Historique:
revised:
06
08
2021
received:
05
03
2021
accepted:
11
08
2021
pubmed:
18
9
2021
medline:
19
2
2022
entrez:
17
9
2021
Statut:
ppublish
Résumé
To expand upon previous validation of the Gait Outcomes Assessment List (GOAL) questionnaire in individuals with cerebral palsy (CP), to rank items by importance, and to summarize written-in (free text) goals. For this cross-sectional study, the parent-version 5.0 of the GOAL was completed by 310 consecutive caregivers of 310 individuals aged 3 to 25 years with CP (189 males, 121 females; mean [SD] age: 10y [4y 2mo]; Gross Motor Function Classification System [GMFCS] levels I-IV) concurrent with a gait analysis. Distribution properties and validity were quantified using questionnaires, kinematics, and oxygen consumption. Items classified as at least 'difficult' to perform and 'very important' to improve were considered caregiver priorities and rank ordered. Free text goals were categorized. Results were summarized for everyone and by GMFCS level. Most scores were normally distributed. Validity was acceptable, with concurrent greater than construct validity. Among all 310 caregivers, fatigue was the highest priority, followed by gait pattern and appearance items. The rank of priorities varied by GMFCS level. Common free text goals included toileting independently as well as improved fine motor and ball sport skills. The GOAL is a valid tool that can help prioritize goals across GMFCS levels I to IV. Identifying the top goals may improve shared decision-making and prioritize research for this sample.
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Validation Study
Langues
eng
Sous-ensembles de citation
IM
Pagination
379-386Informations de copyright
© 2021 Mac Keith Press.
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