Rethinking autism spectrum disorder assessment for children during COVID-19 and beyond.


Journal

Autism research : official journal of the International Society for Autism Research
ISSN: 1939-3806
Titre abrégé: Autism Res
Pays: United States
ID NLM: 101461858

Informations de publication

Date de publication:
11 2021
Historique:
revised: 21 07 2021
received: 27 04 2021
accepted: 09 09 2021
pubmed: 24 9 2021
medline: 12 11 2021
entrez: 23 9 2021
Statut: ppublish

Résumé

The COVID-19 pandemic has posed unique challenges for families and caregivers, as well as for autism-focused clinicians, who are faced with providing a thorough and accurate evaluation of children's specific needs and diagnoses in the absence of in-person assessment tools. The shift to telehealth assessments has challenged clinicians to reconsider approaches and assumptions that underlie the diagnostic assessment process, and to adopt new ways of individualizing standard assessments according to family and child needs. Mandates for physical distancing have uncovered deficiencies in diagnostic practices for suspected autism and have illuminated biases that have posed obstacles preventing children and families from receiving the services that they truly need. This Commentary outlines several considerations for improving diagnostic practices as we move forward from the current pandemic and continue to strive to build an adaptable, sustainable, equitable, and family-centered system of care. LAY SUMMARY: Physical distancing and the abrupt end to in-person services for many children on the autism spectrum has forced clinicians to examine the existing challenges with autism spectrum disorder (ASD) diagnostic assessment and consider things they want to keep and things that should be changed in the years ahead. New approaches such as telehealth both alleviated and exacerbated existing disparities, and brought into stark focus the importance of equitable and timely access to family-centered care. This commentary suggests ways of improving clinical practices related to ASD assessment to continue along this path.

Identifiants

pubmed: 34553489
doi: 10.1002/aur.2615
pmc: PMC8646364
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

2251-2259

Subventions

Organisme : US National Institutes of Health
ID : RO1MH121416
Organisme : NIMH NIH HHS
ID : R01 MH100027
Pays : United States
Organisme : NIMH NIH HHS
ID : R01 MH121416
Pays : United States
Organisme : Canadian Institutes of Health Research Sex and Gender Science Chair
ID : GSB 171373
Organisme : Stollery Children's Hospital Foundation
Organisme : NICHD NIH HHS
ID : R01 HD093055
Pays : United States
Organisme : Autism Science Foundation
Pays : United States
Organisme : US National Institutes of Health
ID : R00MH10664
Organisme : Eunice Kennedy Shriver National Institute of Child Health and Human Development
ID : R01HD093055
Organisme : NIMH NIH HHS
ID : R00 MH106642
Pays : United States
Organisme : NICHD NIH HHS
ID : P50 HD103537
Pays : United States

Informations de copyright

© 2021 International Society for Autism Research and Wiley Periodicals LLC.

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Auteurs

Lonnie Zwaigenbaum (L)

Department of Pediatrics, University of Alberta, Edmonton, Alberta, Canada.

Somer Bishop (S)

Department of Psychiatry and Behavioral Sciences, University of California San Francisco, San Francisco, California, USA.

Wendy L Stone (WL)

Department of Psychology, University of Washington, Seattle, Washington, USA.

Lisa Ibanez (L)

Department of Psychology, University of Washington, Seattle, Washington, USA.

Alycia Halladay (A)

Autism Science Foundation, New York, New York, USA.
Department of Pharmacology and Toxicology, Rutgers University, Piscataway, New Jersey, USA.

Sylvie Goldman (S)

Department of Neurology, G.H. Sergievsky Center, Columbia University Medical Center, New York, New York, USA.

Amy Kelly (A)

Devereux Advanced Behavioral Health, Villanova, Pennsylvania, USA.

Cheryl Klaiman (C)

Department of Pediatrics, Emory School of Medicine, Atlanta, Georgia, USA.

Meng-Chuan Lai (MC)

The Margaret and Wallace McCain Centre for Child, Youth & Family Mental Health and Azrieli Adult Neurodevelopmental Centre, Campbell Family Mental Health Research Institute, Centre for Addiction and Mental Health, Toronto, Ontario, Canada.
Department of Psychiatry and Autism Research Unit, The Hospital for Sick Children, Toronto, Ontario, Canada.
Department of Psychiatry, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
Autism Research Centre, Department of Psychiatry, University of Cambridge, Cambridge, UK.
Department of Psychiatry, National Taiwan University Hospital and College of Medicine, Taipei, Taiwan.

Meghan Miller (M)

Department of Psychiatry & Behavioral Sciences and MIND Institute, University of California, Davis, California, USA.

Celine Saulnier (C)

Department of Pediatrics, Emory School of Medicine, Atlanta, Georgia, USA.
Neurodevelopmental Assessment & Consulting Services, Decatur, Georgia, USA.

Paige Siper (P)

Seaver Autism Center for Research and Treatment, Icahn School of Medicine at Mount Sinai, New York, New York, USA.
Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, New York, USA.
Mindich Child Health and Development Institute, Icahn School of Medicine at Mount Sinai, New York, New York, USA.

Kristin Sohl (K)

Department of Child Health, University of Missouri School of Medicine, Columbia, Missouri, USA.

Zachary Warren (Z)

Department of Pediatrics, Vanderbilt University Medical Center, Nashville, Tennessee, USA.

Amy Wetherby (A)

Department of Clinical Sciences, College of Medicine, Florida State University, Tallahassee, Florida, USA.

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