Biopsychosocial Predictors of Quality of Life in Paediatric Patients With Sickle Cell Disease.
coping
emergency department visit
executive function
pain burden
sleep
Journal
Frontiers in psychology
ISSN: 1664-1078
Titre abrégé: Front Psychol
Pays: Switzerland
ID NLM: 101550902
Informations de publication
Date de publication:
2021
2021
Historique:
received:
15
03
2021
accepted:
18
08
2021
entrez:
1
10
2021
pubmed:
2
10
2021
medline:
2
10
2021
Statut:
epublish
Résumé
Sickle cell disease (SCD) refers to a group of inherited blood disorders with considerable morbidity that causes severe pain, reduces life expectancy, and requires significant self-management. Acute painful episodes are the hallmark of SCD, but persistent daily pain is also highly prevalent in this population. Characterising the impact and experience of SCD-related morbidity (i.e., sleep disruption, frequent emergency department visits, cognitive dysfunction) on health-related quality of life (HRQOL) requires multiple assessment methods to best capture the underlying mechanisms. To gain a greater understanding of the effect of common symptom categories on HRQOL and to determine potential pain coping targets, the present study investigated whether demographic, socioeconomic, sleepiness, pain burden, frequency of emergency department (ED) visits, and cognition predicted HRQOL in a paediatric sample of patients with SCD. Our study was a secondary analysis of baseline assessment data of children with SCD aged 8-15 years (
Identifiants
pubmed: 34594262
doi: 10.3389/fpsyg.2021.681137
pmc: PMC8476744
doi:
Types de publication
Journal Article
Langues
eng
Pagination
681137Informations de copyright
Copyright © 2021 Hood, Kölbel, Stotesbury, Kawadler, Slee, Inusa, Pelidis, Howard, Chakravorty, Height, Awogbade, Kirkham and Liossi.
Déclaration de conflit d'intérêts
FK has received honoraria from Novartis and Bluebird Bio and has served as a consultant for Global Blood Therapeutics. AS is currently employed by Axio Research LLC and has served as a consultant for Providence Medical Technology, Intuitive Surgical Inc., Laborie, Janssen Pharmaceuticals, Pulse Biosciences, Stryker Corporation. The remaining authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.
Références
Nat Rev Dis Primers. 2018 Mar 15;4:18010
pubmed: 29542687
Pediatr Blood Cancer. 2019 Feb;66(2):e27525
pubmed: 30362236
J Pediatr Psychol. 2018 Sep 1;43(8):882-894
pubmed: 29659914
Am J Occup Ther. 2015 Mar-Apr;69(2):6902350030p1-5
pubmed: 26122692
J Pain. 2002 Dec;3(6):461-70
pubmed: 14622732
Ann Intern Med. 2008 Jan 15;148(2):94-101
pubmed: 18195334
JAMA. 2014 Sep 10;312(10):1033-48
pubmed: 25203083
Mediterr J Hematol Infect Dis. 2020 Sep 01;12(1):e2020064
pubmed: 32952975
Br J Health Psychol. 2002 Sep;7(Part 3):331-344
pubmed: 12614504
J Adolesc Health. 2013 May;52(5):559-65
pubmed: 23298988
J Pediatr Psychol. 2003 Jul-Aug;28(5):363-73
pubmed: 12808013
J Clin Psychol Med Settings. 2020 Dec;27(4):651-661
pubmed: 31463865
J Pediatr Hematol Oncol. 2015 Nov;37(8):577-83
pubmed: 26492583
J Pain Symptom Manage. 2020 Dec;60(6):1079-1091
pubmed: 32777458
Haematologica. 2017 Apr;102(4):666-675
pubmed: 27909222
Health Qual Life Outcomes. 2005 Aug 29;3:50
pubmed: 16129027
Curr Probl Pediatr Adolesc Health Care. 2006 Nov-Dec;36(10):346-76
pubmed: 17055417
Int J Infect Dis. 2010 Jan;14(1):e2-e12
pubmed: 19497774
J Pediatr Hematol Oncol. 2015 Mar;37(2):128-33
pubmed: 24942019
J Pain Symptom Manage. 2016 Feb;51(2):163-77
pubmed: 26596876
J Pain. 2016 Jun;17(6):642-53
pubmed: 26804583
J Pediatr Hematol Oncol. 2019 Apr;41(3):194-201
pubmed: 30720675
Clin J Pain. 2016 Jun;32(6):527-33
pubmed: 26379074
Ethn Dis. 2019 Feb 21;29(Suppl 1):57-64
pubmed: 30906150
Child Neuropsychol. 2017 Nov;23(8):889-906
pubmed: 27439898
Curr Psychiatry Rep. 2007 Apr;9(2):114-21
pubmed: 17389120
Pediatr Blood Cancer. 2020 Oct;67(10):e28492
pubmed: 32697889
Clin J Pain. 2020 Feb;36(2):117-123
pubmed: 31789829
Neurology. 2018 Jun 5;90(23):e2042-e2050
pubmed: 29752305
Blood. 2016 Feb 18;127(7):829-38
pubmed: 26758917
JMIR Mhealth Uhealth. 2018 Mar 19;6(3):e66
pubmed: 29555620
Haematologica. 2009 Jul;94(7):1006-10
pubmed: 19570752
Pediatr Blood Cancer. 2018 Aug;65(8):e27081
pubmed: 29693797
J Pediatr Hematol Oncol. 2011 May;33(4):251-4
pubmed: 21516020
Br J Anaesth. 2019 Aug;123(2):e359-e371
pubmed: 30916012
J Natl Black Nurses Assoc. 2001 Dec;12(2):6-14
pubmed: 11902023
Brain Sci. 2020 Dec 14;10(12):
pubmed: 33327459
J Child Adolesc Psychiatr Nurs. 2014 Aug;27(3):109-20
pubmed: 24934076
J Health Care Poor Underserved. 2018;29(2):814-829
pubmed: 29805142
J Pediatr Psychol. 1991 Oct;16(5):643-63
pubmed: 1744811
Trials. 2019 Jul 18;20(1):442
pubmed: 31319882
J Psychosom Res. 2007 Feb;62(2):145-51
pubmed: 17270572
Pediatr Blood Cancer. 2016 Sep;63(9):1578-85
pubmed: 27227457
J Pain. 2017 May;18(5):490-498
pubmed: 28065813
Child Neuropsychol. 2012;18(5):432-48
pubmed: 21961955
Lancet. 2013 Jan 12;381(9861):142-51
pubmed: 23103089
J Pediatr Hematol Oncol. 2008 Sep;30(9):659-65
pubmed: 18776757
Am J Hematol. 2015 Feb;90(2):139-43
pubmed: 25345798
Blood Adv. 2019 Dec 10;3(23):3982-4001
pubmed: 31809538
Pediatr Nurs. 2016 May-Jun;42(3):113-9, 144
pubmed: 27468512
Pediatr Blood Cancer. 2013 Mar;60(3):451-4
pubmed: 23023789
J Pediatr Oncol Nurs. 2014 Jan-Feb;31(1):6-17
pubmed: 24378816
Pediatr Blood Cancer. 2013 Aug;60(8):1338-44
pubmed: 23441057
Pediatr Blood Cancer. 2019 Sep;66(9):e27823
pubmed: 31131984
Sleep. 1991 Dec;14(6):540-5
pubmed: 1798888
J Natl Med Assoc. 2011 Feb;103(2):131-7
pubmed: 21443065
Lancet. 2010 Dec 11;376(9757):2018-31
pubmed: 21131035
Contemp Clin Trials. 2018 Nov;74:88-96
pubmed: 30316999
Health Qual Life Outcomes. 2008 Aug 09;6:60
pubmed: 18691422
Child Neuropsychol. 2000 Sep;6(3):235-8
pubmed: 11419452
Pain. 2008 Sep 30;139(1):1-4
pubmed: 18755548
J Pediatr Psychol. 2018 Nov 1;43(10):1160-1169
pubmed: 30053072
J Pediatr Psychol. 2019 Sep 1;44(8):948-958
pubmed: 31050352
Annu Rev Psychol. 2007;58:119-44
pubmed: 16903804
J Nurs Scholarsh. 2005;37(4):336-42
pubmed: 16396406
Ann Emerg Med. 2009 May;53(5):587-93
pubmed: 18926599
J Dev Behav Pediatr. 2012 Apr;33(3):244-51
pubmed: 22343483
Clin J Pain. 2015 Jun;31(6):536-47
pubmed: 25503599
J Pediatr Psychol. 2020 Mar 1;45(2):145-155
pubmed: 31968106
Trials. 2018 Jan 22;19(1):55
pubmed: 29357947
Pediatr Blood Cancer. 2019 Oct;66(10):e27899
pubmed: 31267645
Pediatrics. 2016 Nov;138(5):
pubmed: 27940762
Transl Behav Med. 2021 May 05;:
pubmed: 33949674