Client experiences with holistic neuropsychological rehabilitation: "It is an ongoing process".

Focus groups Holistic Identity Neuropsychological rehabilitation Outcome measurement

Journal

Neuropsychological rehabilitation
ISSN: 1464-0694
Titre abrégé: Neuropsychol Rehabil
Pays: England
ID NLM: 9112672

Informations de publication

Date de publication:
Sep 2022
Historique:
pubmed: 2 10 2021
medline: 12 10 2022
entrez: 1 10 2021
Statut: ppublish

Résumé

The effectiveness of holistic neuropsychological rehabilitation for people with acquired brain injury has previously been demonstrated by means of standardized and routinely administered outcome measures. However, the most important outcomes from the perspective of former clients are largely unknown. This study explored the experience of participating in a holistic neuropsychological rehabilitation programme by conducting three focus groups with twelve former clients who had sustained a brain injury. Data were transcribed verbatim and analysed using thematic analysis. "It is an ongoing process" emerged as the overarching theme for the experience of recovery from brain injury. Four subthemes, or phases, were identified. Participants went through (1) a phase of confrontation, after which they (2) trained their skills and strategies, and (3) experimented with these in daily life. In the end, clients reached a phase of (4) coming to terms with their injury. Participants described increased levels of self-esteem, sense of competence, and adaptation as the most important outcomes of the programme, as these factors helped them regain a sense of identity. The results indicate that including these factors in outcome evaluations of complex interventions after brain injury may be important as they appear essential for capturing the client's perspective on change.

Identifiants

pubmed: 34596002
doi: 10.1080/09602011.2021.1976222
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

2147-2169

Auteurs

Anne-Fleur Domensino (AF)

School for Mental Health and Neuroscience, Faculty of Health, Medicine and Life Sciences, Maastricht University Medical Center, Maastricht, Netherlands.
Limburg Brain Injury Center, Maastricht, Netherlands.

Daan Verberne (D)

School for Mental Health and Neuroscience, Faculty of Health, Medicine and Life Sciences, Maastricht University Medical Center, Maastricht, Netherlands.
Limburg Brain Injury Center, Maastricht, Netherlands.

Leyla Prince (L)

The Oliver Zangwill Centre for Neuropsychological Rehabilitation, Ely, UK.

Jessica Fish (J)

Mental Health and Wellbeing, Institute of Health and Wellbeing, University of Glasgow, Glasgow, UK.

Jill Winegardner (J)

University Hospitals Cleveland Medical Center, Cleveland, OH, USA.

Andrew Bateman (A)

School of Health and Social Care, University of Essex, Colchester, UK.

Barbara Wilson (B)

The Oliver Zangwill Centre for Neuropsychological Rehabilitation, Ely, UK.

Rudolf Ponds (R)

School for Mental Health and Neuroscience, Faculty of Health, Medicine and Life Sciences, Maastricht University Medical Center, Maastricht, Netherlands.
Limburg Brain Injury Center, Maastricht, Netherlands.

Caroline van Heugten (C)

School for Mental Health and Neuroscience, Faculty of Health, Medicine and Life Sciences, Maastricht University Medical Center, Maastricht, Netherlands.
Limburg Brain Injury Center, Maastricht, Netherlands.
Department of Neuropsychology and Psychopharmacology, Faculty of Psychology and Neuroscience, Maastricht University, Maastricht, Netherlands.

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Classifications MeSH