Barriers and facilitators to providing CBT for people living with dementia: Perceptions of psychological therapists.

anxiety cognitive behavioural therapy dementia depression mild cognitive impairment service experience

Journal

Clinical psychology & psychotherapy
ISSN: 1099-0879
Titre abrégé: Clin Psychol Psychother
Pays: England
ID NLM: 9416196

Informations de publication

Date de publication:
May 2022
Historique:
revised: 04 10 2021
received: 24 08 2021
accepted: 05 10 2021
pubmed: 10 10 2021
medline: 18 6 2022
entrez: 9 10 2021
Statut: ppublish

Résumé

Many people living with dementia or mild cognitive impairment (MCI) experience anxiety and depression. Cognitive behavioural therapy (CBT) is a recommended treatment for adults, commonly provided through primary care psychological therapies services. This study explored the facilitators and barriers to providing CBT interventions for people living with dementia or MCI, as perceived by therapists working in such services. Structured interviews were conducted with 14 clinicians recruited through primary care psychological therapies services about their experiences of working with people living with dementia or MCI and their ideas about factors that enhance or hinder offering and delivering CBT to this population. Interview recordings were transcribed and analysed using thematic analysis. Credibility checks were incorporated throughout. Three themes were identified: 'attitudes towards dementia', 'competing demands', and 'pressure without support'. Perceived facilitators and barriers occurred across individual, service, and system levels. Facilitators were positive engagement and outcomes for people living with dementia or MCI, positive attitudes of clinicians, and flexibility within some services. In contrast, perceived barriers were stigma towards dementia and mental health in older adults, high pressure on staff to perform with a lack of support to do so, exclusion based on diagnosis, and inflexibility within some services. Clinicians were confident that people living with dementia or MCI could benefit from CBT, with some adaptations to delivery. There are implications for staff support and training, and for commissioning practices relating to the tension between minimal resources, equitable access, and person-centred care.

Identifiants

pubmed: 34626445
doi: 10.1002/cpp.2674
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

950-961

Subventions

Organisme : UCLH NIHR BRC
Organisme : Alzheimer's Society
Pays : United Kingdom

Informations de copyright

© 2021 John Wiley & Sons, Ltd.

Références

American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders. 5th ed., American Psychiatric Association.
Ballard, C., Bannister, C., Solis, M., Oyebode, F., & Wilcock, G. (1996). The prevalence, associations and symptoms of depression amongst dementia sufferers. Journal of Affective Disorders, 36(3), 135-144. https://doi.org/10.1016/0165-0327(95)00072-0
Banerjee, S., Hellier, J., Dewey, M., Romeo, R., Ballard, C., Baldwin, R., Bentham, P., Fox, C., Holmes, C., Katona, C., Knapp, M., Lawton, C., Lindesay, J., Livingston, G., McCrae, N., Moniz-Cook, E., Murray, J., Nurock, S., Orrell, M., … Burns, A. (2011). Sertraline or mirtazapine for depression in dementia (HTA-SADD): A randomised, multicentre, double-blind, placebo-controlled trial. The Lancet, 378(9789), 403-411. https://doi.org/10.1016/S0140-6736(11)60830-1
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101. https://doi.org/10.1191/1478088706qp063oa
Cahill, S., Pierce, M., Werner, P., Darley, A., & Bobersky, A. (2015). A systematic review of the public's knowledge and understanding of Alzheimer's disease and dementia. Alzheimer Disease and Associated Disorders, 29, 255-275. https://doi.org/10.1097/WAD.0000000000000102
Carroll, S., Moss-Morris, R., Hulme, K., & Hudson, J. (2020). Therapists' perceptions of barriers and facilitators to uptake and engagement with therapy in long-term conditions. British Journal of Health Psychology, 26(2), 307-324. https://doi.org/10.1111/bjhp.12475
Chaplin, R., Farquharson, L., Clapp, M., & Crawford, M. (2015). Comparison of access, outcomes and experiences of older adults and working age adults in psychological therapy. International Journal of Geriatric Psychiatry, 30(2), 178-184. https://doi.org/10.1002/gps.4122
Charlesworth, G., Sadek, S., Schepers, A., & Spector, A. (2014). Cognitive behavior therapy for anxiety in people with dementia: A clinician guideline for a person-centered approach. Behavior Modification, 39(3), 390-412. https://doi.org/10.1177/0145445514561317
Chen, C., Hu, Z., Jiang, Z., & Zhou, F. (2018). Prevalence of anxiety in patients with mild cognitive impairment: A systematic review and meta-analysis. Journal of Affective Disorders, 236, 211-221. https://doi.org/10.1016/j.jad.2018.04.110
Cheston, R., & Ivanecka, A. (2017). Individual and group psychotherapy with people diagnosed with dementia: A systematic review of the literature. International Journal of Geriatric Psychiatry, 32(1), 3-31. https://doi.org/10.1002/gps.4529
Chinn, D., & Abraham, E. (2016). Using ‘candidacy’ as a framework for understanding access to mainstream psychological treatment for people with intellectual disabilities and common mental health problems within the English Improving Access to Psychological Therapies service. Journal of Intellectual Disability Research, 60(6), 571-582. https://doi.org/10.1111/jir.12274
Clark, D. M. (2011). Implementing NICE guidelines for the psychological treatment of depression and anxiety disorders: The IAPT experience. International Review of Psychiatry (Abingdon, England), 23(4), 318-327. https://doi.org/10.3109/09540261.2011.606803
Collins, N., & Corna, L. (2018). General practitioner referral of older patients to Improving Access to Psychological Therapies (IAPT): An exploratory qualitative study. BJPsych Bulletin, 42(3), 115-118. https://doi.org/10.1192/bjb.2018.10
Delgadillo, J., Saxon, D., & Barkham, M. (2018). Associations between therapists' occupational burnout and their patients' depression and anxiety treatment outcomes. Depression and Anxiety, 35(9), 844-850. https://doi.org/10.1002/da.22766
Elliott, R., Fischer, C. T., & Rennie, D. L. (1999). Evolving guidelines for publication of qualitative research studies in psychology and related fields. British Journal of Clinical Psychology, 38(3), 215-229. https://doi.org/10.1348/014466599162782
Frost, R., Beattie, A., Bhanu, C., Walters, K., & Ben-Shlomo, Y. (2019). Management of depression and referral of older people to psychological therapies: A systematic review of qualitative studies. The British Journal of General Practice, 69(680), e171-e181. https://doi.org/10.3399/bjgp19X701297
Grol, R., & Wensing, M. (2004). What drives change? Barriers to and incentives for achieving evidence-based practice. The Medical Journal of Australia, 180(S6), S57-S60. https://doi.org/10.5694/j.1326-5377.2004.tb05948.x
Guest, G., Bunce, A., & Johnson, L. (2006). How many interviews are enough?: An experiment with data saturation and variability. Field Methods, 18(1), 59-82. https://doi.org/10.1177/1525822X05279903
Gutzmann, H., & Qazi, A. (2015). Depression associated with dementia. Zeitschrift für Gerontologie Und Geriatrie, 48(4), 305-311. https://doi.org/10.1007/s00391-015-0898-8
Hardy, G. E., Bishop-Edwards, L., Chambers, E., Connell, J., Dent-Brown, K., Kothari, G., O'hara, R., & Parry, G. D. (2019). Risk factors for negative experiences during psychotherapy. Psychotherapy Research, 29(3), 403-414. https://doi.org/10.1080/10503307.2017.1393575
Hassan, S., Bennett, K., & Serfaty, M. (2018). Delivering cognitive behavioural therapy to advanced cancer patients: A qualitative exploration into therapists' experiences within a UK psychological service. Clinical Psychology & Psychotherapy, 25(4), 565-574. https://doi.org/10.1002/cpp.2190
Herrmann, L. K., Welter, E., Leverenz, J., Lerner, A. J., Udelson, N., Kanetsky, C., & Sajatovic, M. (2018). A systematic review of dementia-related stigma research: Can we move the stigma dial? American Journal of Geriatric Psychiatry, 26(3), 316-331. https://doi.org/10.1016/j.jagp.2017.09.006
Ismail, Z., Elbayoumi, H., Fischer, C. E., Hogan, D. B., Millikin, C. P., Schweizer, T., Mortby, M. E., Smith, E. E., Patten, S. B., & Fiest, K. M. (2017). Prevalence of depression in patients with mild cognitive impairment: A systematic review and meta-analysis. JAMA Psychiatry, 74(1), 58-67. https://doi.org/10.1001/jamapsychiatry.2016.3162
Livingston, G., Sommerlad, A., Orgeta, V., Costafreda, S. G., Huntley, J., Ames, D., Ballard, C., Banerjee, S., Burns, A., Cohen-Mansfield, J., Copper, C., Fox, N., Gitlin, L. N., Howard, R., Kales, H. C., Larson, E. B., Ritchie, K., Rockwood, K., Sampson, E. L., … Cohen-Mansfield, J. (2017). Dementia prevention, intervention, and care. The Lancet., 390, 2673-2734. https://doi.org/10.1016/S0140-6736(17)31363-6
Low, L., & Purwaningrum, F. (2020). Negative stereotypes, fear and social distance: A systematic review of depictions of dementia in popular culture in the context of stigma. BMC Geriatrics, 20, 477. https://doi.org/10.1186/s12877-020-01754-x
Marwood, H., Chinn, D., Gannon, K., & Scior, K. (2018). The experiences of high intensity therapists delivering cognitive behavioural therapy to people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 31(1), 76-86. https://doi.org/10.1111/jar.12328
Miranda-Castillo, C., Woods, B., & Orrell, M. (2013). The needs of people with dementia living at home from user, caregiver and professional perspectives: A cross-sectional survey. BMC Health Services Research, 13(1), 43. https://doi.org/10.1186/1472-6963-13-43
Mitchell, A. J., & Shiri-Feshki, M. (2009). Rate of progression of mild cognitive impairment to dementia-Meta-analysis of 41 robust inception cohort studies. Acta Psychiatrica Scandinavica, 119(4), 252-265. https://doi.org/10.1111/j.1600-0447.2008.01326.x
Mourao, R. J., Mansur, G., Malloy-Diniz, L. F., Castro Costa, E., & Diniz, B. S. (2016). Depressive symptoms increase the risk of progression to dementia in subjects with mild cognitive impairment: Systematic review and meta-analysis. International Journal of Geriatric Psychiatry, 31(8), 905-911. https://doi.org/10.1002/gps.4406
National Institute for Health and Care Excellence. (2018). Dementia: Assessment, management and support for people living with dementia and their carers. NICE guideline [NG97]. https://www.nice.org.uk/guidance/ng97/chapter/Recommendations#managing-non-cognitive-symptoms
National Institute for Health and Care Excellence. (2019). Suspected neurological conditions: recognition and referral. NICE guideline [NG127]. https://www.nice.org.uk/guidance/ng127/chapter/Recommendations-for-adults-aged-over-16#memory-failure-and-cognitive-deterioration
NVivo. (2018). Qualitative data analysis software. QSR International Pty Ltd.
Orgeta, V., Qazi, A., Spector, A., & Orrell, M. (2015). Psychological treatments for depression and anxiety in dementia and mild cognitive impairment: Systematic review and meta-analysis. British Journal of Psychiatry, 207(4), 293-298. https://doi.org/10.1192/bjp.bp.114.148130
Prince, M., Comas-Herrera, A., Knapp, M., Guerchet, M., & Karagiannidou, M. (2016). The world Alzheimer report improving healthcare for people living with dementia: Coverage, quality and costs now and in the future. Alzheimer's Disease International (ADI).
Regan, B., & Varanelli, L. (2013). Adjustment, depression, and anxiety in mild cognitive impairment and early dementia: A systematic review of psychological intervention studies. International Psychogeriatrics, 25(12), 1963-1984. https://doi.org/10.1017/s104161021300152x
Sachdev, P. S., Lipnicki, D. M., Kochan, N. A., Crawford, J. D., Thalamuthu, A., Andrews, G., Brayne, C., Matthews, F. E., Stephan, B. C. M., Lipton, R. B., Katz, M. J., Ritchie, K., Carrière, I., Ancelin, M.-L., Lam, L. C. W., Wong, C. H. Y., Fung, A. W. T., Guaita, A., Vaccaro, R., … Cohort Studies of Memory in an International Consortium (COSMIC). (2015). The prevalence of mild cognitive impairment in diverse geographical and ethnocultural regions: The COSMIC collaboration. PLoS ONE, 10(11), e0142388. https://doi.org/10.1371/journal.pone.0142388
Seignourel, P. J., Kunik, M. E., Snow, L., Wilson, N., & Stanley, M. (2008). Anxiety in dementia: A critical review. Clinical Psychology Review, 28(7), 1071-1082. https://doi.org/10.1016/j.cpr.2008.02.008
Spector, A., Charlesworth, G., King, M., Lattimer, M., Sadek, S., Marston, L., Rehill, A., Hoe, J., Qazi, A., Knapp, M., & Orrell, M. (2018). Cognitive-behavioural therapy for anxiety in dementia: Pilot randomised controlled trial. British Journal of Psychiatry, 206(6), 509-516. https://doi.org/10.1192/bjp.bp.113.140087
Stanley, M. A., Calleo, J., Bush, A. L., Wilson, N., Snow, A. L., Kraus-Schuman, C., Paukert, A. L., Petersen, N. J., Brenes, G. A., Schulz, P. E., Williams, S. P., & Kunik, M. E. (2013). The peaceful mind program: A pilot test of a cognitive-behavioral therapy-based intervention for anxious patients with dementia. The American Journal of Geriatric Psychiatry, 21(7), 696-708. https://doi.org/10.1016/j.jagp.2013.01.007
Stern, Y. (2009). Cognitive reserve. Neuropsychologia, 47(10), 2015-2028. https://doi.org/10.1016/j.neuropsychologia.2009.03.004
Stott, J., Cadman, T., Scior, K., Brede, J., & Charlesworth, G. (2020). Role of anxiety, depression and neurocognition for cognitive behavioural therapy pre-therapy skills in people living with dementia, older and younger adults. Journal of affective disorders. Accepted for publication
Teri, L., Logsdon, R. G., Uomoto, J., & McCurry, S. M. (1997). Behavioral treatment of depression in dementia patients: A controlled clinical trial. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 52(4), P159-P166. https://doi.org/10.1093/geronb/52b.4.p159
Tuijt, R., Rees, J., Frost, R., Wilcock, J., Manthorpe, J., Rait, G., & Walters, K. (2020). Exploring how triads of people living with dementia, carers and health care professionals function in dementia health care: A systematic qualitative review and thematic synthesis. Dementia, 20(3), 1080-1104. https://doi.org/10.1177/1471301220915068
Westwood, S., Morison, L., Allt, J., & Holmes, N. (2017). Predictors of emotional exhaustion, disengagement and burnout among improving access to psychological therapies (IAPT) practitioners. Journal of Mental Health, 26(2), 172-179. https://doi.org/10.1080/09638237.2016.1276540
Winblad, B., Palmer, K., Kivipelto, M., Jelic, V., Fratiglioni, L., Wahlund, L. O., Nordberg, A., Bäckman, L., Albert, M., Almkvist, O., Arai, H., Basun, H., Blennow, K., De Leon, M., DeCarli, C., Erkinjuntti, T., Giacobini, E., Graff, C., Hardy, J., … Petersen, R. C. (2004). Mild cognitive impairment-Beyond controversies, towards a consensus: Report of the International Working Group on Mild Cognitive Impairment. Journal of Internal Medicine, 256(3), 240-246. https://doi.org/10.1111/j.1365-2796.2004.01380.x

Auteurs

Samatha Baker (S)

Research Department of Clinical, Educational and Health Psychology, University College London, London, UK.

Janina Brede (J)

Research Department of Clinical, Educational and Health Psychology, University College London, London, UK.

Rebecca Cooper (R)

Research Department of Clinical, Educational and Health Psychology, University College London, London, UK.

Georgina Charlesworth (G)

Research Department of Clinical, Educational and Health Psychology, University College London, London, UK.
Research and Development, North East London NHS Foundation Trust (NELFT), Ilford, UK.

Joshua Stott (J)

Research Department of Clinical, Educational and Health Psychology, University College London, London, UK.

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