'People listen more to what actors say': A qualitative study of tuberculosis-related knowledge, behaviours, stigma, and potential interventions in Puducherry, India.


Journal

Global public health
ISSN: 1744-1706
Titre abrégé: Glob Public Health
Pays: England
ID NLM: 101256323

Informations de publication

Date de publication:
11 2022
Historique:
pubmed: 19 10 2021
medline: 16 11 2022
entrez: 18 10 2021
Statut: ppublish

Résumé

India has made substantial advancements in reducing the burden of tuberculosis (TB), but persons living with active TB (PLWATB) still face myriad challenges in seeking and receiving care, including TB-related stigma. To meet the END TB targets, it is critical that PLWATB engage in care and are able to adhere to treatment. This qualitative study aimed to understand TB-related stigma (perceived, enacted, and internalised) and possible interventions to reduce stigma in Puducherry and Tamil Nadu, India. We conducted 47 in-depth interviews with PLWATB and household members and eight focus group discussions: two each with PLWATB, their household members, healthcare workers, and key informants. We found varying TB-related knowledge: the vast majority of interview participants reported incorrect modes of transmission, although most were also aware that TB is curable. Participants reported high levels of perceived stigma, with nearly two-thirds of PLWATB choosing to hide their disease to avoid being stigmatised in their community. Participants supported interventions including celebrity advocacy and school-based programming to increase community knowledge and reduce enacted stigma as well as support groups and counselling to reduce internalised stigma in PLWATB. This study has the potential to inform future interventions to reduce TB-related stigma in India.

Identifiants

pubmed: 34657567
doi: 10.1080/17441692.2021.1990372
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

2898-2910

Auteurs

Lora L Sabin (LL)

Department of Global Health, Boston University School of Public Health, Boston, MA, USA.

Mahalakshmy Thulasingam (M)

Department of Preventive and Social Medicine, JIPMER, Puducherry, India.

Madeline Carwile (M)

Department of Global Health, Boston University School of Public Health, Boston, MA, USA.

Senbagavalli Prakash Babu (SP)

Department of Preventive and Social Medicine, JIPMER, Puducherry, India.

Selby Knudsen (S)

Section of Infectious Diseases, Department of Medicine, Boston University School of Medicine, Boston, MA, USA.

Lijia Dong (L)

Department of Global Health, Boston University School of Public Health, Boston, MA, USA.

Jessie Stephens (J)

Department of Global Health, Boston University School of Public Health, Boston, MA, USA.

Priyanka Fernandes (P)

Department of Medicine, University of California, Los Angeles, Los Angeles, CA, USA.

Chelsie Cintron (C)

Section of Infectious Diseases, Department of Medicine, Boston University School of Medicine, Boston, MA, USA.

C Robert Horsburgh (CR)

Department of Global Health, Boston University School of Public Health, Boston, MA, USA.
Department of Epidemiology, Boston University School of Public Health, Boston, MA, USA.

Padmini Salgame (P)

Rutgers New Jersey Medical School, Newark, NJ, USA.

Jerrold J Ellner (JJ)

Rutgers New Jersey Medical School, Newark, NJ, USA.

Sonali Sarkar (S)

Department of Preventive and Social Medicine, JIPMER, Puducherry, India.

Natasha S Hochberg (NS)

Section of Infectious Diseases, Department of Medicine, Boston University School of Medicine, Boston, MA, USA.
Department of Epidemiology, Boston University School of Public Health, Boston, MA, USA.

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