How to do things with words: Two seminars on the naming of functional (psychogenic, non-epileptic, dissociative, conversion, …) seizures.


Journal

Seizure
ISSN: 1532-2688
Titre abrégé: Seizure
Pays: England
ID NLM: 9306979

Informations de publication

Date de publication:
Dec 2021
Historique:
received: 12 07 2021
revised: 18 10 2021
accepted: 19 10 2021
pubmed: 6 11 2021
medline: 15 12 2021
entrez: 5 11 2021
Statut: ppublish

Résumé

Amongst the most important conditions in the differential diagnosis of epilepsy is the one that manifests as paroxysms of altered behaviour, awareness, sensation or sense of bodily control in ways that often resemble epileptic seizures, but without the abnormal excessive or synchronous electrical activity in the brain that defines these. Despite this importance, there remains little agreement - and frequent debate - on what to call this condition, known inter alia as psychogenic non-epileptic seizures (PNES), dissociative seizures (DS), functional seizures (FS), non-epileptic attack disorder (NEAD), pseudoseizures, conversion disorder with seizures, and by many other labels besides. This choice of terminology is not merely academic - it affects patients' response to and understanding of their diagnosis, and their ability to navigate health care systems.This paper summarises two recent discussions hosted by the American Epilepsy Society and Functional Neurological Disorders Society on the naming of this condition. These discussions are conceptualised as the initial step of an exploration of whether it might be possible to build consensus for a new diagnostic label.

Identifiants

pubmed: 34740139
pii: S1059-1311(21)00344-7
doi: 10.1016/j.seizure.2021.10.016
pmc: PMC9308960
mid: NIHMS1824932
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

102-110

Subventions

Organisme : Intramural NIH HHS
ID : Z99 NS999999
Pays : United States

Informations de copyright

Copyright © 2021 British Epilepsy Association. All rights reserved.

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Auteurs

Alistair Wardrope (A)

Department of Neuroscience, University of Sheffield, Sheffield, United Kingdom; Department of Clinical Neurology, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, United Kingdom. Electronic address: a.wardrope@sheffield.ac.uk.

Barbara A Dworetzky (BA)

The Edward B. Bromfield Epilepsy Center, Department of Neurology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.

Gregory L Barkley (GL)

Department of Neurology, Henry Ford Hospital, Detroit, MI, United States; Department of Neurology, Wayne State University, Detroit, MI, United States.

Gaston Baslet (G)

Center for Brain/Mind Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.

Jeffrey Buchhalter (J)

Section of Pediatric Neurology, University of Calgary, Calgary, Alberta, Canada.

Julia Doss (J)

Doss Clinic of Health Psychology, Minneapolis, MN, United States; Children's Hospitals and Clinics of Minnesota, Minneapolis, MN, United States.

Laura H Goldstein (LH)

King's College London Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience, London, United Kingdom.

Mark Hallett (M)

Human Motor Control Section, National Institute of Neurological Disorders and Stroke, National Institutes of Health, Bethesda, MD, United States.

Kasia Kozlowska (K)

Children's Hospital at Westmead, Westmead, NSW, Australia; Discipline of Psychiatry and Discipline of Child & Adolescent Health, University of Sydney Medical School, Sydney, Australia; Westmead Institute for Medical Research, Westmead, NSW, Australia.

W Curt LaFrance (WC)

Alpert Medical School, Brown University, Providence, RI, United States; Department of Neuropsychiatry and Behavioral Neurology, Rhode Island Hospital, Providence, RI, United States.

Aileen McGonigal (A)

Aix Marseille Univ, Inserm, INS, Institut de Neurosciences des Systèmes, Marseille, France; APHM, Timone Hospital, Clinical Neurophysiology, Marseille, France.

Bridget Mildon (B)

FND Hope International, Salmon, ID, United States.

Maria Oto (M)

Scottish Epilepsy Centre, Glasgow, United Kingdom.

David L Perez (DL)

Departments of Neurology and Psychiatry, Massachusetts General Hospital, Harvard Medical School, Boston, MA, United States.

Ellen Riker (E)

National Association of Epilepsy Centers, Washington, DC, United States.

Nicole A Roberts (NA)

School of Social and Behavioural Sciences, Arizona State University, Phoenix, AZ, United States.

Jon Stone (J)

Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, United Kingdom.

Benjamin Tolchin (B)

Yale New Haven Health System Center for Bioethics, Yale School of Medicine, New Haven, CT, United States.

Markus Reuber (M)

Department of Neuroscience, University of Sheffield, Sheffield, United Kingdom; Department of Clinical Neurology, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, United Kingdom.

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Classifications MeSH