A new scale informed by the Reciprocal-Engagement Model for quality evaluation of genetic counselling by patients: Development and initial validation.


Journal

European journal of medical genetics
ISSN: 1878-0849
Titre abrégé: Eur J Med Genet
Pays: Netherlands
ID NLM: 101247089

Informations de publication

Date de publication:
Dec 2021
Historique:
received: 13 03 2021
revised: 28 09 2021
accepted: 27 10 2021
pubmed: 7 11 2021
medline: 3 3 2022
entrez: 6 11 2021
Statut: ppublish

Résumé

Monitoring the quality of genetic counselling is essential to ensure appropriate provision. This study describes the development and initial psychometric validation of a novel scale for genetic counselling quality evaluation by patients. A deductive approach was taken to formulate scale items. Exploratory factor analysis with the principal axis factoring method was used to assess the scale's factor structure (n = 118). Internal consistency (Cronbach's Alpha) was also examined. Exploratory factor analysis resulted in a single overarching construct consisting of seven factors, which account for 59% of the variance explained. Items showed, in general, strong factor loadings (>0.5). Some items focused on patient satisfaction with services provision did not load onto the factors. Thus, another factor analysis was performed with these items, which resulted in one-factor. The identified factor accounted for 57% of variance explained, and communalities were strong (≥0.5) for most items. Cronbach's alpha score for the scale was 0.85, indicating high internal consistency. Factors were significantly and moderately interrelated (from r = 0.31 to r = 0.71). Further studies are needed to establish the psychometric validity of the scale.

Identifiants

pubmed: 34740860
pii: S1769-7212(21)00241-X
doi: 10.1016/j.ejmg.2021.104375
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

104375

Informations de copyright

Copyright © 2021 Elsevier Masson SAS. All rights reserved.

Auteurs

Milena Paneque (M)

i3S - Instituto de Investigação e Inovação em Saúde, Universidade do Porto, Portugal; IBMC - Institute for Molecular and Cell Biology, Universidade do Porto, Portugal; Centre for Predictive and Preventive Genetics (CGPP), Universidade do Porto, Portugal. Electronic address: milenaph@ibmc.up.pt.

Márcia Carvalho (M)

i3S - Instituto de Investigação e Inovação em Saúde, Universidade do Porto, Portugal; IBMC - Institute for Molecular and Cell Biology, Universidade do Porto, Portugal; Centre for Predictive and Preventive Genetics (CGPP), Universidade do Porto, Portugal; Faculty of Psychology and Education Sciences, University of Porto, Porto, Portugal.

Fidjy Rodrigues (F)

CHUC - Medical Genetics Unit, Hospital Pediátrico, Centro Hospitalar e Universitário de Coimbra, Portugal.

Jorge Saraiva (J)

CHUC - Medical Genetics Unit, Hospital Pediátrico, Centro Hospitalar e Universitário de Coimbra, Portugal.

Alexandra Leonardo (A)

CHULN-HSM - Serviço de Genética Médica, Centro Hospitalar Universitário de Lisboa Norte - Hospital de Santa Maria, Portugal.

Ana B Sousa (AB)

CHULN-HSM - Serviço de Genética Médica, Centro Hospitalar Universitário de Lisboa Norte - Hospital de Santa Maria, Portugal.

Vânia Machado (V)

EPER - Hospital de Santo Espírito da Ilha Terceira, Portugal.

Miguel Gonçalves-Rocha (M)

HB - Unidade de Genética Médica, Hospital de Braga, Portugal.

Jorge Sequeiros (J)

i3S - Instituto de Investigação e Inovação em Saúde, Universidade do Porto, Portugal; IBMC - Institute for Molecular and Cell Biology, Universidade do Porto, Portugal; Centre for Predictive and Preventive Genetics (CGPP), Universidade do Porto, Portugal; ICBAS - Instituto de Ciências Biomédicas Abel Salazar, Universidade do Porto, Portugal.

Patrício Soares Costa (PS)

Faculty of Psychology and Education Sciences, University of Porto, Porto, Portugal; ICVS/3B's, PT Government Associate Laboratory, Braga/Guimarães, Portugal; Life and Health Sciences Research Institute (ICVS), School of Medicine, University of Minho, Braga, Portugal.

Marina Serra de Lemos (M)

Faculty of Psychology and Education Sciences, University of Porto, Porto, Portugal; Centro de Psicologia, Universidade do Porto, Porto, Portugal.

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Classifications MeSH