Audiobooks from terminally ill parent for their children - a qualitative evaluation.
Bereaved children
Biography
Legacy
Palliative care
Reminiscence
Journal
BMC palliative care
ISSN: 1472-684X
Titre abrégé: BMC Palliat Care
Pays: England
ID NLM: 101088685
Informations de publication
Date de publication:
09 Nov 2021
09 Nov 2021
Historique:
received:
02
03
2021
accepted:
25
10
2021
entrez:
10
11
2021
pubmed:
11
11
2021
medline:
12
11
2021
Statut:
epublish
Résumé
Improving the quality of life is one of the main objectives of palliative care. Biographical approaches are often used in combination with leaving a legacy in a range of different interventions such as Dignity Therapy or Life Review. This study presents an evaluation of audiobook biographies for palliative care patients with young children. Young parents diagnosed with a life-limiting disease could participate and create an audiobook for their young children. The audiobook itself was recorded over several days and edited by qualified radio journalists. After providing informed consent participants were interviewed twice over the course of the intervention regarding expectations, concerns, motivation, and experiences. Interviews and notes were transcribed verbatim and were analyzed using content analysis. The contents of the audiobooks are not part of the evaluation. The data were collected from February 2017 till September 2020. Fifty-four patients with ninety-six children at a mean age of 7 years were included and created an audiobook. The main theme of all interviews were the children. Within this field identified main topics were legacy, motivation, usage, benefit, aims, difficulties and worries in descending order. All patients would recommend the intervention. Creating an audiobook as a legacy to their children seemed to help the diseased parents to cope with their limited life span.
Sections du résumé
BACKGROUND
BACKGROUND
Improving the quality of life is one of the main objectives of palliative care. Biographical approaches are often used in combination with leaving a legacy in a range of different interventions such as Dignity Therapy or Life Review. This study presents an evaluation of audiobook biographies for palliative care patients with young children.
METHODS
METHODS
Young parents diagnosed with a life-limiting disease could participate and create an audiobook for their young children. The audiobook itself was recorded over several days and edited by qualified radio journalists. After providing informed consent participants were interviewed twice over the course of the intervention regarding expectations, concerns, motivation, and experiences. Interviews and notes were transcribed verbatim and were analyzed using content analysis. The contents of the audiobooks are not part of the evaluation.
RESULTS
RESULTS
The data were collected from February 2017 till September 2020. Fifty-four patients with ninety-six children at a mean age of 7 years were included and created an audiobook. The main theme of all interviews were the children. Within this field identified main topics were legacy, motivation, usage, benefit, aims, difficulties and worries in descending order. All patients would recommend the intervention.
CONCLUSION
CONCLUSIONS
Creating an audiobook as a legacy to their children seemed to help the diseased parents to cope with their limited life span.
Identifiants
pubmed: 34753456
doi: 10.1186/s12904-021-00872-6
pii: 10.1186/s12904-021-00872-6
pmc: PMC8576307
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
172Informations de copyright
© 2021. The Author(s).
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