Changing the culture of care for children and adolescents with functional neurological disorder.
Children and adolescents
Clinical ethics
Cultural change
Functional neurological disorder (FND)
Functional seizures
Stigma
Journal
Epilepsy & behavior reports
ISSN: 2589-9864
Titre abrégé: Epilepsy Behav Rep
Pays: United States
ID NLM: 101750909
Informations de publication
Date de publication:
2021
2021
Historique:
received:
27
07
2021
revised:
31
08
2021
accepted:
15
09
2021
entrez:
11
11
2021
pubmed:
12
11
2021
medline:
12
11
2021
Statut:
epublish
Résumé
As members of a multidisciplinary team of professionals who treat children and adolescents with functional neurological (conversion) disorder (FND), we highlight the pressing need to develop an FND-informed culture of care that takes into account recent advances in our understanding of this group of patients. Stories of clinical encounters in health care settings from around the world-told by children and adolescents with FND, their parents, and health professionals-portray an outdated culture of care characterized by iatrogenic stigma, erosion of empathy and compassion within the clinician-patient relationship, and a lack of understanding of FND and its complex neurobiology. After a brief exploration of the outdated culture, we share our
Identifiants
pubmed: 34761194
doi: 10.1016/j.ebr.2021.100486
pii: S2589-9864(21)00060-5
pmc: PMC8567196
doi:
Types de publication
Journal Article
Langues
eng
Pagination
100486Informations de copyright
© 2021 The Author(s).
Déclaration de conflit d'intérêts
The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
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