Development of community participation indicators to advance the quality of spinal cord injury rehabilitation: SCI-High Project.

Community integration Community participation Health service delivery Healthcare quality indicator Rehabilitation Self-efficacy Spinal cord injuries

Journal

The journal of spinal cord medicine
ISSN: 2045-7723
Titre abrégé: J Spinal Cord Med
Pays: England
ID NLM: 9504452

Informations de publication

Date de publication:
2021
Historique:
entrez: 15 11 2021
pubmed: 16 11 2021
medline: 15 12 2021
Statut: ppublish

Résumé

Community participation following spinal cord injury/disease (SCI/D) can be challenging due to associated primary impairments and secondary health conditions as well as difficulties navigating both the built and social-emotional environment. To improve the quality of SCI/D rehabilitation care to optimize community participation, the SCI-High Project developed a set of structure, process and outcome indicators for adults with SCI/D in the first 18 months after rehabilitation admission. A pan-Canadian Working Group of diverse stakeholders: (1) defined the community participation construct; (2) conducted a systematic review of available outcomes and their psychometric properties; (3) constructed a Driver diagram summarizing available evidence associated with community participation; and (4) prepared a process map. Facilitated meetings allowed selection and review of a set of structure, process and outcome indicators. The structure indicator is the proportion of SCI/D rehabilitation programs with availability of transition living setting/independent living unit. The process indicators are the proportion of SCI/D rehabilitation inpatients who experienced: (a) a therapeutic community outing prior to rehabilitation discharge; and, (b) those who received a pass to go home for the weekend. The intermediary and final outcome measures are the Moorong Self-Efficacy Scale and the Reintegration to Normal Living Index. The proposed indicators have the potential to inform whether inpatient rehabilitation for persons with SCI/D can improve self-efficacy and lead to high levels of community participation post-rehabilitation discharge.

Identifiants

pubmed: 34779731
doi: 10.1080/10790268.2021.1955204
pmc: PMC8604477
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't Systematic Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

S79-S93

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Auteurs

Sander L Hitzig (SL)

St. John's Rehab Research Program, Sunnybrook Research Institute, Sunnybrook Health Sciences Centre, Toronto, Ontario, Canada.
Department of Occupational Science and Occupational Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
Rehabilitation Sciences Institute, Department of Medicine, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.

Gaya Jeyathevan (G)

KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.

Farnoosh Farahani (F)

KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.

Vanessa K Noonan (VK)

Praxis Spinal Cord Institute, Vancouver, British Columbia, Canada.

Gary Linassi (G)

Department of Physical Medicine and Rehabilitation, College of Medicine, University of Saskatchewan, Saskatoon, Saskatchewan, Canada.

François Routhier (F)

Department of Rehabilitation, Faculty of Medicine, Université Laval, Quebec City, Québec, Canada.
Center for Interdisciplinary Research in Rehabilitation and Social Integration, Centre intégré universitaire de santé et de services sociaux de la Capitale-Nationale, Québec City, Québec, Canada.

Arif Jetha (A)

Institute for Work & Health, Toronto, Ontario, Canada.
Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.

Diana McCauley (D)

Spinal Cord Injury Ontario, Toronto, Ontario, Canada.

S Mohammad Alavinia (SM)

KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.

Maryam Omidvar (M)

KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.

B Catharine Craven (BC)

KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.
Division of Physical Medicine and Rehabilitation, Department of Medicine, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
Brain and Spinal Cord Rehabilitation Program, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.

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