Conception and development of Self-Management indicators to advance the quality of spinal cord injury rehabilitation: SCI-High Project.

Health service delivery Healthcare quality indicator Rehabilitation Self-management Spinal cord injuries

Journal

The journal of spinal cord medicine
ISSN: 2045-7723
Titre abrégé: J Spinal Cord Med
Pays: England
ID NLM: 9504452

Informations de publication

Date de publication:
2021
Historique:
entrez: 15 11 2021
pubmed: 16 11 2021
medline: 15 12 2021
Statut: ppublish

Résumé

Although self-management is linked to reduced secondary health complications (SHCs) and enhanced overall quality of life post-spinal cord injury or disease (SCI/D), it is poorly integrated into the current rehabilitation process. Promoting self-management and assuring equity in care delivery is critical. Herein, we describe the selection of Self-Management structure, process and outcome indicators for adults with SCI/D in the first 18 months after rehabilitation admission. Experts in self-management across Canada completed the following tasks: (1) defined the Self-Management construct; (2) conducted a systematic search of available outcomes and their psychometric properties; and (3) created a Driver diagram summarizing available evidence related to Self-Management. Facilitated meetings allowed development and selection following rapid-cycle evaluations of proposed structure, process and outcome indicators. The structure indicator is the proportion of staff with appropriate education and training in self-management principles. The process indicator is the proportion of SCI/D inpatients who have received a self-management assessment related to specific patient self-management goal(s) within 30 days of admission. The outcome indicator is the Skill and Technique Acquisition, and Self-Monitoring and Insight subscores of the modified Health Education Impact Questionnaire. The structure indicator will heighten awareness among administrators and policy makers regarding the need to provide staff with ongoing training related to promoting self-management skill acquisition. Successful implementation of the Self-Management process and outcome indicators will promote self-management education and skill acquisition as a rehabilitation priority, allow for personalization of skills related to the individual's self-management goal(s), and empower individuals with SCI/D to manage their health and daily activities while successfully integrating into the community.

Identifiants

pubmed: 34779736
doi: 10.1080/10790268.2021.1961054
pmc: PMC8604486
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

S94-S117

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Auteurs

Gaya Jeyathevan (G)

KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.

Susan B Jaglal (SB)

KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.
Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.
Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada.

Sander L Hitzig (SL)

St. John's Rehab Research Program, Sunnybrook Research Institute, Sunnybrook Health Sciences Centre, Toronto, Ontario, Canada.
Department of Occupational Science and Occupational Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
Rehabilitation Sciences Institute, Department of Medicine, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.

Gary Linassi (G)

Department of Physical Medicine and Rehabilitation, College of Medicine, University of Saskatchewan, Saskatoon, Saskatchewan, Canada.

Sandra Mills (S)

Brain and Spinal Cord Rehabilitation Program, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.

Vanessa K Noonan (VK)

Praxis Spinal Cord Institute, Vancouver, British Columbia, Canada.

Karen Anzai (K)

GF Strong Rehab Centre, Vancouver, British Columbia, Canada.

Teren Clarke (T)

Spinal Cord Injury Alberta, Edmonton, Canada.

Dalton Wolfe (D)

Parkwood Institute Research, Lawson Health Research Institute, London, Ontario, Canada.
School of Health Studies, Western University, London, Ontario, Canada.

Mark Bayley (M)

KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.
Brain and Spinal Cord Rehabilitation Program, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.
Division of Physical Medicine and Rehabilitation, Department of Medicine, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.

Lubna Aslam (L)

Spinal Cord Injury Ontario, Toronto, Ontario, Canada.

Farnoosh Farahani (F)

KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.

S Mohammad Alavinia (SM)

KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.

Maryam Omidvar (M)

KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.

B Catharine Craven (BC)

KITE Research Institute, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.
Brain and Spinal Cord Rehabilitation Program, Toronto Rehabilitation Institute - University Health Network, Toronto, Ontario, Canada.
Division of Physical Medicine and Rehabilitation, Department of Medicine, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.

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