Is Tourette syndrome a rare condition?

Tourette syndrome orphan disease rare disease tics

Journal

F1000Research
ISSN: 2046-1402
Titre abrégé: F1000Res
Pays: England
ID NLM: 101594320

Informations de publication

Date de publication:
2021
Historique:
accepted: 07 10 2021
entrez: 23 11 2021
pubmed: 24 11 2021
medline: 15 12 2021
Statut: epublish

Résumé

Based on its prevalence, Tourette syndrome cannot be considered a rare condition. However, in this opinion article, we make the claim that it should nonetheless be considered as an orphan or neglected disease.

Identifiants

pubmed: 34804496
doi: 10.12688/f1000research.53134.2
pmc: PMC8567683.2
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

434

Informations de copyright

Copyright: © 2021 Hartmann A et al.

Déclaration de conflit d'intérêts

Competing interests: Andreas Hartmann has received consultant's honoraria from Lundbeck and Noema Pharma. Natalia Szejko: None. Nanette Mol Debes: None. Andrea E. Cavanna: None. Kirsten Müller-Vahl: Financial or material research support from EU (FP7-HEALTH-2011 No. 278367, FP7-PEOPLE-2012-ITN No. 316978) DFG: GZ MU 1527/3-1 and GZ MU 1527/3-2, BMBF: 01KG1421, National Institute of Mental Health (NIMH), Tourette Gesellschaft Deutschland e.V. Else-Kröner-Fresenius-Stiftung, GW pharmaceuticals, Almirall Hermal GmbH, Abide Therapeutics, and Therapix Biosiences. She has received consultant's honoraria from Abide Therapeutics, Boehringer Ingelheim International GmbH, Bionorica Ethics GmbH, CannaMedical Pharma GmbH, Canopy Grouth, Columbia Care, CTC Communications Corp., Demecan, Eurox Deutschland GmbH, Global Praxis Group Limited, IMC Germany, Lundbeck, Sanity Group, Stadapharm GmbH, Synendos Therapeutics AG, and Tilray. She is an advisory/scientific board member for CannaMedical Pharma GmbH, Bionorica Ethics GmbH, CannaXan GmbH, Canopy Growth, Columbia Care, IMC Germany, Leafly Deutschland GmbH, Sanity Group, Syqe Medical Ltd., Therapix Biosciences Ltd., and Wayland Group. She has received speaker’s fees from Aphria Deutschland GmbH, Almirall, Cogitando GmbH, Emalex, Eurox Deutschland GmbH, Ever pharma GmbH, Meinhardt Congress GmbH, PR Berater, Spectrum Therapeutics GmbH, Takeda GmbH, Tilray, Wayland Group. She has received royalties fromDeutsches Ärzteblatt, Der Neurologie und Psychiater, Elsevier, Medizinisch Wissenschaftliche Verlagsgesellschaft Berlin, and Kohlhammer. She served as a guest editor for Frontiers in Neurology on the research topic “The neurobiology and genetics of Gilles de la Tourette syndrome: new avenues through large-scale collaborative projects”, is an associate editor for “Cannabis and Cannabinoid Research” and an Editorial Board Member of “Medical Cannabis and Cannabinoids” und “MDPI-Reports” and a Scientific board member for “Zeitschrift für Allgemeinmedizin”.

Auteurs

Andreas Hartmann (A)

National Reference Center for Tourette Syndrome, Department of Neurology, Groupe Hospitalier Pitié-Salpêtrière, Paris, 75013, France.

Natalia Szejko (N)

Department of Neurology, Medical University of Warsaw, Warsaw, Poland.
Department of Bioethics, Medical University of Warsaw, Waraw, Poland.

Nanette Mol Debes (N)

Department of Pediatrics, Herlev University Hospital, Copenhagen, Denmark.

Andrea E Cavanna (AE)

Department of Neuropsychiatry, BSMHFT and University of Birmingham, Birmingham, UK.
School of Life and Health Sciences, Aston University, Birmingham, UK.
Institute of Neurology, University College London, London, UK.

Kirsten Müller-Vahl (K)

Clinic of Psychiatry, Socialpsychiatry and Psychotherapy, Hannover Medical School, Hannover, Germany.

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Classifications MeSH