GA4GH Passport standard for digital identity and access permissions.

access authorization data federation genomics identity infrastructure regulation security standard

Journal

Cell genomics
ISSN: 2666-979X
Titre abrégé: Cell Genom
Pays: United States
ID NLM: 9918284260106676

Informations de publication

Date de publication:
10 Nov 2021
Historique:
received: 18 03 2021
revised: 08 07 2021
accepted: 02 09 2021
entrez: 25 11 2021
pubmed: 26 11 2021
medline: 26 11 2021
Statut: epublish

Résumé

The Global Alliance for Genomics and Health (GA4GH) supports international standards that enable a federated data sharing model for the research community while respecting data security, ethical and regulatory frameworks, and data authorization and access processes for sensitive data. The GA4GH Passport standard (Passport) defines a machine-readable digital identity that conveys roles and data access permissions (called "visas") for individual users. Visas are issued by data stewards, including data access committees (DACs) working with public databases, the entities responsible for the quality, integrity, and access arrangements for the datasets in the management of human biomedical data. Passports streamline management of data access rights across data systems by using visas that present a data user's digital identity and permissions across organizations, tools, environments, and services. We describe real-world implementations of the GA4GH Passport standard in use cases from ELIXIR Europe, National Institutes of Health, and the Autism Sharing Initiative. These implementations demonstrate that the Passport standard has provided transparent mechanisms for establishing permissions and authorizing data access across platforms.

Identifiants

pubmed: 34820660
doi: 10.1016/j.xgen.2021.100030
pii: S2666-979X(21)00037-9
pmc: PMC8591913
doi:

Types de publication

Journal Article

Langues

eng

Pagination

None

Subventions

Organisme : Wellcome Trust
Pays : United Kingdom
Organisme : NHGRI NIH HHS
ID : U24 HG010262
Pays : United States

Informations de copyright

© 2021 The Author(s).

Déclaration de conflit d'intérêts

A.A.P. is a venture partner at GV and an employee of Alphabet Corporation and has received funding from MSFT, Verily, IBM, Intel, Bayer, and Novartis.

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Auteurs

Craig Voisin (C)

Google LLC, Kitchener, ON N2H 5G5, Canada.

Mikael Linden (M)

CSC-IT Center for Science, Espoo 02101, Finland.
ELIXIR Finland, Espoo 02101, Finland.

Stephanie O M Dyke (SOM)

McGill Centre for Integrative Neuroscience, McGill University, Montreal, QC H3A 2B4, Canada.

Sarion R Bowers (SR)

Wellcome Sanger Institute, Hinxton, Cambridgeshire CB10 1SA, UK.

Pinar Alper (P)

ELIXIR Luxembourg, Luxembourg Centre for Systems Biomedicine, University of Luxembourg, 4367 Belvaux, Luxembourg.

Maxmillian P Barkley (MP)

DNAstack, Toronto, ON M5H 1T1, Canada.

David Bernick (D)

Broad Institute of MIT and Harvard, Cambridge, MA 02142, USA.

Jianpeng Chao (J)

Google LLC, Kitchener, ON N2H 5G5, Canada.

Mélanie Courtot (M)

European Molecular Biology Laboratory, European Bioinformatics Institute (EMBL-EBI), Hinxton, Cambridgeshire CB10 1SD, UK.

Francis Jeanson (F)

Datadex Inc., Toronto, ON M5V 0C4, Canada.

Melissa A Konopko (MA)

Wellcome Sanger Institute, Hinxton, Cambridgeshire CB10 1SA, UK.
Global Alliance for Genomics and Health, Toronto, ON M5G 0A3, Canada.

Martin Kuba (M)

Masaryk University, Brno 602 00, Czech Republic.

Jonathan Lawson (J)

Broad Institute of MIT and Harvard, Cambridge, MA 02142, USA.

Jaakko Leinonen (J)

CSC-IT Center for Science, Espoo 02101, Finland.

Stephanie Li (S)

Broad Institute of MIT and Harvard, Cambridge, MA 02142, USA.
Global Alliance for Genomics and Health, Toronto, ON M5G 0A3, Canada.

Vivian Ota Wang (V)

National Cancer Institute, National Institutes of Health, Bethesda, MD 20892, USA.

Anthony A Philippakis (AA)

Broad Institute of MIT and Harvard, Cambridge, MA 02142, USA.

Kathy Reinold (K)

Broad Institute of MIT and Harvard, Cambridge, MA 02142, USA.

Gregory A Rushton (GA)

Broad Institute of MIT and Harvard, Cambridge, MA 02142, USA.

J Dylan Spalding (JD)

CSC-IT Center for Science, Espoo 02101, Finland.
ELIXIR Finland, Espoo 02101, Finland.

Juha Törnroos (J)

CSC-IT Center for Science, Espoo 02101, Finland.
ELIXIR Finland, Espoo 02101, Finland.

Ilya Tulchinsky (I)

Verily Life Sciences, South San Francisco, CA 94080, USA.

Jaime M Guidry Auvil (JM)

National Cancer Institute, National Institutes of Health, Bethesda, MD 20892, USA.

Tommi H Nyrönen (TH)

CSC-IT Center for Science, Espoo 02101, Finland.
ELIXIR Finland, Espoo 02101, Finland.

Classifications MeSH