Identifying gaps in consumer health library collections: a retrospective review.

Consumer Health Information Humans Libraries Retrospective Studies
collection development consumer health gap analysis neoplasm

Journal

Journal of the Medical Library Association : JMLA
ISSN: 1558-9439
Titre abrégé: J Med Libr Assoc
Pays: United States
ID NLM: 101132728

Informations de publication

Date de publication:
01 Oct 2021
Historique:
entrez: 3 12 2021
pubmed: 4 12 2021
medline: 15 12 2021
Statut: ppublish

Résumé

The objective of this study was to determine if search request forms, which are used when a patron's request for information cannot be fulfilled at the time of contact with the library team, can be used to identify gaps in consumer health library collections. Search request forms were collected from 2013 to 2020 and analyzed independently by two reviewers. Search request forms were included if they were complete and contained a record of how the request was fulfilled. Descriptive statistics were used to summarize patron characteristics. Search request forms were iteratively coded to identify themes in the data and determine if resources provided to patrons could be found within the library collection. The study team subsequently reviewed search request forms to determine reasons for identified gaps. Two hundred and forty-nine search request forms were analyzed. Six main content themes were identified: 1) understanding the cancer diagnosis, 2) cancer treatments, 3) understanding disease prognosis, 4) support during and after treatment, 5) natural health products and therapeutic effects in oncology, and 6) research literature. The majority of patrons were patients (53%). Over half (60%) of the submitted search request forms reflected collection gaps, and many (16%) contained queries for information about rare cancer diagnoses. The main reason that queries could not be satisfied was that there was limited consumer health information on the requested topics (53%). Search request forms are a useful resource for assessing gaps in consumer health library collections.

Sections du résumé

BACKGROUND BACKGROUND
The objective of this study was to determine if search request forms, which are used when a patron's request for information cannot be fulfilled at the time of contact with the library team, can be used to identify gaps in consumer health library collections.
CASE PRESENTATION METHODS
Search request forms were collected from 2013 to 2020 and analyzed independently by two reviewers. Search request forms were included if they were complete and contained a record of how the request was fulfilled. Descriptive statistics were used to summarize patron characteristics. Search request forms were iteratively coded to identify themes in the data and determine if resources provided to patrons could be found within the library collection. The study team subsequently reviewed search request forms to determine reasons for identified gaps. Two hundred and forty-nine search request forms were analyzed. Six main content themes were identified: 1) understanding the cancer diagnosis, 2) cancer treatments, 3) understanding disease prognosis, 4) support during and after treatment, 5) natural health products and therapeutic effects in oncology, and 6) research literature. The majority of patrons were patients (53%). Over half (60%) of the submitted search request forms reflected collection gaps, and many (16%) contained queries for information about rare cancer diagnoses. The main reason that queries could not be satisfied was that there was limited consumer health information on the requested topics (53%).
CONCLUSIONS CONCLUSIONS
Search request forms are a useful resource for assessing gaps in consumer health library collections.

Identifiants

DOI: 10.5195/jmla.2021.895 PMID: 34858098 PMC: PMC8608165
pubmed: 34858098
doi: 10.5195/jmla.2021.895
pii: jmla.2021.895
pmc: PMC8608165
doi:

Types de publication

Case Reports Journal Article Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

656-666

Informations de copyright

Copyright © 2021 Eleni Giannopoulos, Michelle Snow, Mollie Manley, Katie McEwan, Andrew Stechkevich, Meredith Elana Giuliani, Janet Papadakos.

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Auteurs

Eleni Giannopoulos (E)

eleni.giannopoulos@uhnresearch.ca, Research Analyst, Cancer Health Literacy Research Centre, Cancer Education, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.

Michelle Snow (M)

michelle.snow@uhn.ca, Librarian, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.

Mollie Manley (M)

mollie.manley@gmail.com, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.

Katie McEwan (K)

highlandkate@sympatico.ca, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.

Andrew Stechkevich (A)

andrew.stechkevich@uhnresearch.ca, Cancer Health Literacy Research Centre, Cancer Education, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.

Meredith Elana Giuliani (ME)

meredith.giuliani@rmp.uhn.on.ca, Radiation Oncologist, Medical Director Cancer Education, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.

Janet Papadakos (J)

janet.papadakos@uhnresearch.ca, Codirector, Cancer Health Literacy Research Centre, Cancer Education, Princess Margaret Cancer Centre; Provincial Head, Patient Education Cancer Care Ontario; Assistant Professor, University of Toronto, Toronto, Ontario, Canada.
ORCID: 0000-0001-6320-4156

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Classifications MeSH

questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Services de santé › Services de médecine préventive › Éducation pour la santé › Information en santé des consommateurs › Identifying gaps in consumer health library...
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Identifying gaps in consumer health library...
questionsmedicales.fr › Sciences de l'information › Sources d'information › Centres d'information › Bibliothèques › Identifying gaps in consumer health library...
questionsmedicales.fr › Environnement et santé publique › Santé publique › Méthodes épidémiologiques › Caractéristiques des études épidémiologiques › Études épidémiologiques › Études de cohortes › Études rétrospectives › Identifying gaps in consumer health library...