'What is the risk to me from COVID-19?': Public involvement in providing mortality risk information for people with 'high-risk' conditions for COVID-19 (OurRisk.CoV).
coronavirus
mortality
patient and public involvement
risk information
Journal
Clinical medicine (London, England)
ISSN: 1473-4893
Titre abrégé: Clin Med (Lond)
Pays: England
ID NLM: 101092853
Informations de publication
Date de publication:
Nov 2021
Nov 2021
Historique:
entrez:
4
12
2021
pubmed:
5
12
2021
medline:
15
12
2021
Statut:
ppublish
Résumé
Patients and public have sought mortality risk information throughout the pandemic, but their needs may not be served by current risk prediction tools. Our mixed methods study involved: (1) systematic review of published risk tools for prognosis, (2) provision and patient testing of new mortality risk estimates for people with high-risk conditions and (3) iterative patient and public involvement and engagement with qualitative analysis. Only one of 53 (2%) previously published risk tools involved patients or the public, while 11/53 (21%) had publicly accessible portals, but all for use by clinicians and researchers.Among people with a wide range of underlying conditions, there has been sustained interest and engagement in accessible and tailored, pre- and postpandemic mortality information. Informed by patient feedback, we provide such information in 'five clicks' (https://covid19-phenomics.org/OurRiskCoV.html), as context for decision making and discussions with health professionals and family members. Further development requires curation and regular updating of NHS data and wider patient and public engagement.
Identifiants
pubmed: 34862222
pii: 21/6/e620
doi: 10.7861/clinmed.2021-0386
pmc: PMC8806292
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
e620-e628Subventions
Organisme : Medical Research Council
ID : G0902393
Pays : United Kingdom
Organisme : Medical Research Council
ID : MC_PC_13041
Pays : United Kingdom
Organisme : Medical Research Council
ID : MR/K006584/1
Pays : United Kingdom
Informations de copyright
© Royal College of Physicians 2021. All rights reserved.
Références
BMJ. 2017 Sep 20;358:j4208
pubmed: 28931509
BMJ Open. 2020 Nov 17;10(11):e043828
pubmed: 33203640
Eur Heart J Qual Care Clin Outcomes. 2019 Oct 1;5(4):292-297
pubmed: 31050720
Lancet Diabetes Endocrinol. 2020 Oct;8(10):813-822
pubmed: 32798472
BMJ. 2020 Aug 25;370:m3223
pubmed: 32843355
JAMA Netw Open. 2020 Oct 1;3(10):e2018104
pubmed: 33125494
BMJ. 2020 Apr 7;369:m1328
pubmed: 32265220
BMJ. 2012 Jan 27;344:e256
pubmed: 22286508
Lancet Oncol. 2016 Sep;17(9):1203-16
pubmed: 27599138
Nature. 2020 Aug;584(7821):430-436
pubmed: 32640463
Qual Manag Health Care. 2020 Jul/Sep;29(3):176-177
pubmed: 32590495
PLoS One. 2016 Jul 19;11(7):e0158982
pubmed: 27434641
Eur J Prev Cardiol. 2021 Dec 20;28(14):1599-1609
pubmed: 33611594
BMJ. 2013 Feb 05;346:e5595
pubmed: 23386360
BMJ. 2021 Feb 16;372:n434
pubmed: 33593753
BMJ. 2020 May 14;369:m1835
pubmed: 32409488
J Health Serv Res Policy. 2018 Apr;23(2):98-106
pubmed: 29653504
BMJ. 2020 May 28;369:m2063
pubmed: 32467287
Nature. 2021 Jan;589(7840):158-159
pubmed: 33349714
BMJ. 2020 Oct 20;371:m3731
pubmed: 33082154
Clin Med (Lond). 2020 Jul;20(4):e120-e122
pubmed: 32628127
J Med Internet Res. 2020 May 26;22(5):e19357
pubmed: 32408267
Lancet. 2020 May 30;395(10238):1715-1725
pubmed: 32405103
Nat Med. 2020 Jul;26(7):1037-1040
pubmed: 32393804
Lancet. 2016 Oct 8;388(10053):1459-1544
pubmed: 27733281
J Am Coll Radiol. 2018 Mar;15(3 Pt B):563-568
pubmed: 29396125
J Am Med Inform Assoc. 2019 Dec 1;26(12):1545-1559
pubmed: 31329239
BMJ. 2020 Jun 11;369:m2295
pubmed: 32527731
BMJ Open. 2019 Sep 12;9(9):e027680
pubmed: 31515414
J Gen Intern Med. 2012 May;27(5):568-75
pubmed: 22127798
BMJ Open Qual. 2020 Jul;9(3):
pubmed: 32699082
BMC Cardiovasc Disord. 2018 Feb 7;18(1):19
pubmed: 29409444
BMJ. 2021 Apr 7;373:n826
pubmed: 33827854
BMJ. 2020 Sep 9;370:m3339
pubmed: 32907855