Investigating the role of somatic sequencing platforms for phaeochromocytoma and paraganglioma in a large UK cohort.


Journal

Clinical endocrinology
ISSN: 1365-2265
Titre abrégé: Clin Endocrinol (Oxf)
Pays: England
ID NLM: 0346653

Informations de publication

Date de publication:
10 2022
Historique:
revised: 24 09 2021
received: 04 08 2021
accepted: 21 10 2021
pubmed: 7 12 2021
medline: 14 9 2022
entrez: 6 12 2021
Statut: ppublish

Résumé

Phaeochromocytomas and paragangliomas (PPGL) are rare neuroendocrine tumours with malignant potential and a hereditary basis in almost 40% of patients. Germline genetic testing has transformed the management of PPGL enabling stratification of surveillance approaches, earlier diagnosis and predictive testing of at-risk family members. Recent studies have identified somatic mutations in a further subset of patients, indicating that molecular drivers at either a germline or tumour level can be identified in up to 80% of PPGL cases. The aim of this study was to investigate the clinical utility of somatic sequencing in a large cohort of patients with PPGL in the United Kingdom. Prospectively collected matched germline and tumour samples (development cohort) and retrospectively collected tumour samples (validation cohort) of patients with PPGL were investigated. Clinical characteristics of patients were assessed and tumour and germline DNA was analysed using a next-generation sequencing strategy. A screen for variants within 'mutation hotspots' in 68 human cancer genes was performed. Of 141 included patients, 45 (32%) had a germline mutation. In 37 (26%) patients one or more driver somatic variants were identified including 26 likely pathogenic or pathogenic variants and 19 variants of uncertain significance. Pathogenic somatic variants, observed in 25 (18%) patients, were most commonly identified in the VHL, NF1, HRAS and RET genes. Pathogenic somatic variants were almost exclusively identified in patients without a germline mutation (all but one), suggesting that somatic sequencing is likely to be most informative for those patients with negative germline genetic test results. Somatic sequencing may further stratify surveillance approaches for patients without a germline genetic driver and may also inform targeted therapeutic strategies for patients with metastatic disease.

Identifiants

pubmed: 34870338
doi: 10.1111/cen.14639
pmc: PMC9543043
doi:

Types de publication

Journal Article Review Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

448-459

Subventions

Organisme : Medical Research Council
ID : MR/W001101/1
Pays : United Kingdom
Organisme : Department of Health
Pays : United Kingdom

Informations de copyright

© 2021 The Authors. Clinical Endocrinology published by John Wiley & Sons Ltd.

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Auteurs

Bettina Winzeler (B)

Department of Endocrinology, Diabetology and Metabolism, University Hospital Basel, Basel, Switzerland.
Department of Clinical Research, University of Basel, Basel, Switzerland.
Department of Medical Genetics, and Cancer Research, UK Cambridge Centre, University of Cambridge, Cambridge Biomedical Campus, Cambridge, UK.

Nicola Tufton (N)

Department of Endocrinology, St. Bartholomew's Hospital, Barts Health NHS Trust, London, UK.
Department of Endocrinology, William Harvey Research Institute, Queen Mary University of London, London.

Eugenie S Lim (E)

Department of Endocrinology, St. Bartholomew's Hospital, Barts Health NHS Trust, London, UK.
Department of Endocrinology, William Harvey Research Institute, Queen Mary University of London, London.

Ben G Challis (BG)

Department of Endocrinology, Cambridge University Hospital, NHS Foundation Trust, Cambridge, UK.

Soo-Mi Park (SM)

Department of Clinical Genetics, Cambridge University Hospital, NHS Foundation Trust, Cambridge, UK.

Louise Izatt (L)

Department of Clinical Genetics, Guy's and St. Thomas' NHS Foundation Trust, London, UK.

Paul V Carroll (PV)

Department of Endocrinology, Guy's and St. Thomas' NHS Foundation Trust, London, UK.

Anand Velusamy (A)

Department of Endocrinology, Guy's and St. Thomas' NHS Foundation Trust, London, UK.

Tony Hulse (T)

Department of Paediatric Endocrinology, Evelina London Children's Hospital, Guy's and St. Thomas' NHS Foundation Trust, London, UK.

Benjamin C Whitelaw (BC)

Department of Endocrinology, King's College Hospital NHS Foundation Trust, London, UK.

Ezequiel Martin (E)

Department of Medical Genetics, and Cancer Research, UK Cambridge Centre, University of Cambridge, Cambridge Biomedical Campus, Cambridge, UK.
Oncology Department, Cancer Molecular Diagnostics Laboratory, University of Cambridge, Cambridge, UK.

Fay Rodger (F)

Department of Medical Genetics, and Cancer Research, UK Cambridge Centre, University of Cambridge, Cambridge Biomedical Campus, Cambridge, UK.

Melanie Maranian (M)

Department of Medical Genetics, and Cancer Research, UK Cambridge Centre, University of Cambridge, Cambridge Biomedical Campus, Cambridge, UK.

Graeme R Clark (GR)

Department of Medical Genetics, and Cancer Research, UK Cambridge Centre, University of Cambridge, Cambridge Biomedical Campus, Cambridge, UK.

Scott A Akker (S)

Department of Endocrinology, St. Bartholomew's Hospital, Barts Health NHS Trust, London, UK.
Department of Endocrinology, William Harvey Research Institute, Queen Mary University of London, London.

Eamonn R Maher (ER)

Department of Medical Genetics, and Cancer Research, UK Cambridge Centre, University of Cambridge, Cambridge Biomedical Campus, Cambridge, UK.

Ruth T Casey (RT)

Department of Medical Genetics, and Cancer Research, UK Cambridge Centre, University of Cambridge, Cambridge Biomedical Campus, Cambridge, UK.
Department of Endocrinology, Cambridge University Hospital, NHS Foundation Trust, Cambridge, UK.

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