Data collection for outbreak investigations: process for defining a minimal data set using a Delphi approach.


Journal

BMC public health
ISSN: 1471-2458
Titre abrégé: BMC Public Health
Pays: England
ID NLM: 100968562

Informations de publication

Date de publication:
13 12 2021
Historique:
received: 07 06 2021
accepted: 08 11 2021
entrez: 13 12 2021
pubmed: 14 12 2021
medline: 9 3 2022
Statut: epublish

Résumé

Timely but accurate data collection is needed during health emergencies to inform public health responses. Often, an abundance of data is collected but not used. When outbreaks and other health events occur in remote and complex settings, operatives on the ground are often required to cover multiple tasks whilst working with limited resources. Tools that facilitate the collection of essential data during the early investigations of a potential public health event can support effective public health decision-making. We proposed to define the minimum set of quantitative information to collect whilst using electronic device or not. Here we present the process used to select the minimum information required to describe an outbreak of any cause during its initial stages and occurring in remote settings. A working group of epidemiologists took part in two rounds of a Delphi process to categorise the variables to be included in an initial outbreak investigation form. This took place between January-June 2019 using an online survey. At a threshold of 75 %, consensus was reached for nineteen (23.2%) variables which were all classified as 'essential'. This increased to twenty-six (31.7%) variables when the threshold was reduced to 60% with all but one variable classified as 'essential'. Twenty-five of these variables were included in the 'Time zero initial case investigation' '(T0)' form which was shared with the members of the Rapid Response Team Knowledge Network for field testing and feedback. The form has been readily available online by WHO since September 2019. This is the first known Delphi process used to determine the minimum variables needed for an outbreak investigation. The subsequent development of the T0 form should help to improve the efficiency and standardisation of data collection during emergencies and ultimately the quality of the data collected during field investigation.

Sections du résumé

BACKGROUND
Timely but accurate data collection is needed during health emergencies to inform public health responses. Often, an abundance of data is collected but not used. When outbreaks and other health events occur in remote and complex settings, operatives on the ground are often required to cover multiple tasks whilst working with limited resources. Tools that facilitate the collection of essential data during the early investigations of a potential public health event can support effective public health decision-making. We proposed to define the minimum set of quantitative information to collect whilst using electronic device or not. Here we present the process used to select the minimum information required to describe an outbreak of any cause during its initial stages and occurring in remote settings.
METHODS
A working group of epidemiologists took part in two rounds of a Delphi process to categorise the variables to be included in an initial outbreak investigation form. This took place between January-June 2019 using an online survey.
RESULTS
At a threshold of 75 %, consensus was reached for nineteen (23.2%) variables which were all classified as 'essential'. This increased to twenty-six (31.7%) variables when the threshold was reduced to 60% with all but one variable classified as 'essential'. Twenty-five of these variables were included in the 'Time zero initial case investigation' '(T0)' form which was shared with the members of the Rapid Response Team Knowledge Network for field testing and feedback. The form has been readily available online by WHO since September 2019.
CONCLUSION
This is the first known Delphi process used to determine the minimum variables needed for an outbreak investigation. The subsequent development of the T0 form should help to improve the efficiency and standardisation of data collection during emergencies and ultimately the quality of the data collected during field investigation.

Identifiants

pubmed: 34895199
doi: 10.1186/s12889-021-12206-5
pii: 10.1186/s12889-021-12206-5
pmc: PMC8666343
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

2269

Subventions

Organisme : World Health Organization
ID : 001
Pays : International

Investigateurs

Anne Perrocheau (A)
Srinivas Murthy (S)
Karl Schenkel (K)
Hannah Brindle (H)
Chrissy Roberts (C)
Michael Marks (M)

Informations de copyright

© 2021. The Author(s).

Références

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pubmed: 31104603
PLoS Negl Trop Dis. 2018 Apr 25;12(4):e0006425
pubmed: 29694372
J Public Health (Oxf). 2008 Mar;30(1):82-90
pubmed: 18089585
Clin Infect Dis. 2020 Feb 3;70(4):696-697
pubmed: 31406989
Philos Trans R Soc Lond B Biol Sci. 2017 May 26;372(1721):
pubmed: 28396480
Front Public Health. 2016 Aug 08;4:163
pubmed: 27551675
J Clin Epidemiol. 2014 Apr;67(4):401-9
pubmed: 24581294
Emerg Infect Dis. 2018 Sep;24(9):
pubmed: 30124424

Auteurs

Anne Perrocheau (A)

World Health Organisation, Geneva, Switzerland. perrocheaua@who.int.

Hannah Brindle (H)

London School of Hygiene & Tropical Medicine, London, UK.

Chrissy Roberts (C)

London School of Hygiene & Tropical Medicine, London, UK.

Srinivas Murthy (S)

World Health Organisation, Geneva, Switzerland.

Sharmila Shetty (S)

Centers for Disease Control, Atlanta, USA.

Antonio Isidro Carrion Martin (AIC)

Médecins Sans Frontières, London, UK.

Michael Marks (M)

London School of Hygiene & Tropical Medicine, London, UK.

Karl Schenkel (K)

World Health Organisation, Geneva, Switzerland.

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