'I'm not interested in research; i'm interested in services': How to better health and social services for transgender women living with and affected by HIV.

Canada Community-based participatory research HIV Hard to reach populations Health services Qualitative Transgender health Transgender women

Journal

Social science & medicine (1982)
ISSN: 1873-5347
Titre abrégé: Soc Sci Med
Pays: England
ID NLM: 8303205

Informations de publication

Date de publication:
01 2022
Historique:
received: 23 12 2020
revised: 15 07 2021
accepted: 24 11 2021
pubmed: 20 12 2021
medline: 15 3 2022
entrez: 19 12 2021
Statut: ppublish

Résumé

This paper presents results of a research priority setting process focused on trans women living with and affected by HIV across Canada. It features data from semi-structured interviews and focus groups conducted with a diverse group of 76 trans women in five urban centers across the country on how they have navigated health and social service programming within their geographic context. The results focus on the structure and types of services. Respondents offered simple, yet creative ways to address barriers to vital services based on their individual and collective experiences. Notably, participants stressed the need for 1) trans-friendly and trans-specific services, 2) integrated health services, and aid in navigating complex, overlapping systems, and 3) comprehensive community-based services. They also suggest employing trans women as care coordinators or case managers in order to foster more trans-friendly environments and empower community members. We identify concrete ways to improve health and social services at the level of service delivery and program design, as well as recommendations for future participatory research. We close with an interrogation of trans people, and trans women living with and affected by HIV in particular, as 'hard to reach' populations.

Identifiants

pubmed: 34923191
pii: S0277-9536(21)00942-4
doi: 10.1016/j.socscimed.2021.114610
pii:
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

114610

Subventions

Organisme : CIHR
Pays : Canada

Informations de copyright

Copyright © 2021 The Authors. Published by Elsevier Ltd.. All rights reserved.

Auteurs

Avery R Everhart (AR)

University of Southern California, Dornsife College of Letters, Arts, and Sciences, Spatial Sciences Institute, 3616 Trousdale Parkway, AHF B55, Los Angeles, CA, 90089, USA. Electronic address: everhart@usc.edu.

Hayden Boska (H)

McGill University, School of Social Work, 3506 University St., Suite 300, Wilson Hall, Montreal, Quebec, H3A 2A7, Canada. Electronic address: hayden.boska@gmail.com.

Hagit Sinai-Glazer (H)

McGill University, School of Social Work, 3506 University St., Suite 300, Wilson Hall, Montreal, Quebec, H3A 2A7, Canada. Electronic address: hagit.sinaiglazer@mail.mcgill.ca.

Jia Qing Wilson-Yang (JQ)

REACH Trans Priorities Project, CIHR Center for REACH in HIV/AIDS, HIV Implementation Science and Brain Health Department, St. Michael's Hospital, 30 Bond St, Toronto, Ontario, M5B 1W8, Canada. Electronic address: jiaqingwilsonyang@gmail.com.

Nora Butler Burke (NB)

REACH Trans Priorities Project, CIHR Center for REACH in HIV/AIDS, HIV Implementation Science and Brain Health Department, St. Michael's Hospital, 30 Bond St, Toronto, Ontario, M5B 1W8, Canada. Electronic address: nora.butler.burke@gmail.com.

Gabrielle LeBlanc (G)

REACH Trans Priorities Project, CIHR Center for REACH in HIV/AIDS, HIV Implementation Science and Brain Health Department, St. Michael's Hospital, 30 Bond St, Toronto, Ontario, M5B 1W8, Canada. Electronic address: gabrielle.com.lange@gmail.com.

Yasmeen Persad (Y)

The 519, 519 Church Street, Toronto, Ontario, M4Y 2C9, Canada. Electronic address: ashriapersad@gmail.com.

Evana Ortigoza (E)

REACH Trans Priorities Project, CIHR Center for REACH in HIV/AIDS, HIV Implementation Science and Brain Health Department, St. Michael's Hospital, 30 Bond St, Toronto, Ontario, M5B 1W8, Canada. Electronic address: evanajortigoza@gmail.com.

Ayden I Scheim (AI)

Drexel University, Dornsife School of Public Health, Department of Biostatistics and Epidemiology, 3215 Market St., Philadelphia, PA, 19104, USA; Li Ka Shing Knowledge Institute, Unity Health Toronto, St. Michael's Hospital, 209 Victoria St, Toronto, Ontario, M5B 1T8, Canada. Electronic address: ais63@drexel.edu.

Zack Marshall (Z)

McGill University, School of Social Work, 3506 University St., Suite 300, Wilson Hall, Montreal, Quebec, H3A 2A7, Canada. Electronic address: marshall.zack@mcgill.ca.

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