Psychosocial profiles of risk and resiliency in neurofibromatoses: a person-centered analysis of illness adaptation.
Adaptation to illness
Emotional distress
Neurofibromatosis
Resiliency
Journal
Journal of neuro-oncology
ISSN: 1573-7373
Titre abrégé: J Neurooncol
Pays: United States
ID NLM: 8309335
Informations de publication
Date de publication:
Feb 2022
Feb 2022
Historique:
received:
03
11
2021
accepted:
11
12
2021
pubmed:
23
1
2022
medline:
30
3
2022
entrez:
22
1
2022
Statut:
ppublish
Résumé
We sought to characterize psychosocial profiles of adaptation to neurofibromatosis (NF). Participants (N = 224) completed self-report measures of psychosocial functioning, including risk (i.e., perceived stress, depression, anxiety) and resiliency (i.e., gratitude, optimism, coping, social support, mindfulness, empathy). We used a TwoStep hierarchical cluster analysis to determine clusters reflecting adaptation to NF. The analysis revealed two distinct groups, with the "Low Adaptation" group defined by high emotional distress and low resiliency (n = 130; 57% of participants), and the "High Adaptation" group defined by low emotional distress and high resiliency (n = 85; 37% of participants). Clusters differed significantly across nearly all criterion variables, as well as quality of life and pain interference. Both risk and resiliency factors are important for understanding psychosocial adaptation to NF. Findings suggest that clinical providers should prioritize screening and intervention methods targeting these variables to promote positive adaptation to NF. ClinicalTrials.gov NCT03406208; https://clinicaltrials.gov/ct2/show/NCT03406208 (Archived by WebCite at http://www.webcitation.org/72ZoTDQ6h ).
Identifiants
pubmed: 35064449
doi: 10.1007/s11060-021-03928-y
pii: 10.1007/s11060-021-03928-y
doi:
Banques de données
ClinicalTrials.gov
['NCT03406208']
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
519-527Subventions
Organisme : U.S. Department of Defense
ID : W81XWH-17-1-0121
Informations de copyright
© 2021. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.
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