Service user perspectives of community mental health services for people with complex emotional needs: a co-produced qualitative interview study.

Co-production Community mental health services Personality disorders Qualitative research

Journal

BMC psychiatry
ISSN: 1471-244X
Titre abrégé: BMC Psychiatry
Pays: England
ID NLM: 100968559

Informations de publication

Date de publication:
27 01 2022
Historique:
received: 21 06 2021
accepted: 09 11 2021
entrez: 27 1 2022
pubmed: 28 1 2022
medline: 11 3 2022
Statut: epublish

Résumé

There is consensus that services supporting people with complex emotional needs are part of a mental health care system in which change is needed. To date, service users' views and co-production initiatives have had little impact on the development of interventions and care. This needs to change, and our paper evidences the experiences and perspectives of a diverse range of people on how community services can best address the needs of people with complex emotional needs. A co-produced qualitative research study. Lived experience researchers led data collection and analysis. Individual interviews were conducted with 30 people across England who had a diverse range of experiences and perspectives of using community services for complex emotional needs. Participants were asked about their experiences of using community services for their mental health, and views on how community services can best address their needs. Thematic analysis was used to analyse the data. Participants reported some experiences of good practice but also of experiences of severely stigmatising interventions, a lack of effective support and service fragmentation. Relational Practice was identified as the central overarching theme and describes how community services can best support people with complex emotional needs. This approach involves care delivered in a non-stigmatising, individualised and compassionate way and care that is trauma-informed. It involves care that is planned collaboratively with service users to ensure their multiple needs are addressed in a flexible, holistic and consistent way which accounts for the long-term and fluctuating nature of their needs. Relational practice approaches have potential to facilitate better community care for people with complex emotional needs. Research and service development are needed to examine how best to implement such approaches across the mental health service system. This work must be co-produced with people with relevant lived experience, their carers and the professionals who support them.

Sections du résumé

BACKGROUND
There is consensus that services supporting people with complex emotional needs are part of a mental health care system in which change is needed. To date, service users' views and co-production initiatives have had little impact on the development of interventions and care. This needs to change, and our paper evidences the experiences and perspectives of a diverse range of people on how community services can best address the needs of people with complex emotional needs.
METHODS
A co-produced qualitative research study. Lived experience researchers led data collection and analysis. Individual interviews were conducted with 30 people across England who had a diverse range of experiences and perspectives of using community services for complex emotional needs. Participants were asked about their experiences of using community services for their mental health, and views on how community services can best address their needs. Thematic analysis was used to analyse the data.
RESULTS
Participants reported some experiences of good practice but also of experiences of severely stigmatising interventions, a lack of effective support and service fragmentation. Relational Practice was identified as the central overarching theme and describes how community services can best support people with complex emotional needs. This approach involves care delivered in a non-stigmatising, individualised and compassionate way and care that is trauma-informed. It involves care that is planned collaboratively with service users to ensure their multiple needs are addressed in a flexible, holistic and consistent way which accounts for the long-term and fluctuating nature of their needs.
CONCLUSIONS
Relational practice approaches have potential to facilitate better community care for people with complex emotional needs. Research and service development are needed to examine how best to implement such approaches across the mental health service system. This work must be co-produced with people with relevant lived experience, their carers and the professionals who support them.

Identifiants

pubmed: 35081929
doi: 10.1186/s12888-021-03605-4
pii: 10.1186/s12888-021-03605-4
pmc: PMC8791764
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

55

Informations de copyright

© 2022. The Author(s).

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Auteurs

Kylee Trevillion (K)

Health Service and Population Research Department, NIHR Mental Health Policy Research Unit, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK. kylee.trevillion@kcl.ac.uk.
David Goldberg Centre, Institute of Psychiatry, Psychology & Neuroscience Kings College London, De Crespigny Park, Denmark Hill, Room H3.06, London, SE5 8AF, UK. kylee.trevillion@kcl.ac.uk.

Ruth Stuart (R)

Health Service and Population Research Department, NIHR Mental Health Policy Research Unit, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

Josephine Ocloo (J)

Implementation Science, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
National Institute for Health Research (NIHR) Applied Research Collaboration, South London, London, UK.

Eva Broeckelmann (E)

NIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

Stephen Jeffreys (S)

NIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

Tamar Jeynes (T)

NIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

Dawn Allen (D)

NIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

Jessica Russell (J)

NIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

Jo Billings (J)

Division of Psychiatry, NIHR Mental Health Policy Research Unit, University College London, London, UK.

Mike J Crawford (MJ)

Division of Psychiatry, Imperial College London, London, UK.

Oliver Dale (O)

West London Mental Health Trust, London, UK.

Rex Haigh (R)

Berkshire Healthcare NHS Foundation Trust, Bracknell, UK.

Paul Moran (P)

Bristol Medical School, University of Bristol, Bristol, UK.

Shirley McNicholas (S)

Camden and Islington NHS Foundation Trust, London, UK.

Vicky Nicholls (V)

Division of Psychiatry, NIHR Mental Health Policy Research Unit, University College London, London, UK.

Una Foye (U)

Health Service and Population Research Department, NIHR Mental Health Policy Research Unit, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

Alan Simpson (A)

Health Service and Population Research, Institute of Psychiatry, Psychology & Neuroscience, and Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King's College London, London, UK.

Brynmor Lloyd-Evans (B)

Division of Psychiatry, NIHR Mental Health Policy Research Unit, University College London, London, UK.

Sonia Johnson (S)

Division of Psychiatry, NIHR Mental Health Policy Research Unit, University College London, London, UK.
Camden and Islington NHS Foundation Trust, London, UK.

Sian Oram (S)

Health Service and Population Research Department, NIHR Mental Health Policy Research Unit, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.

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