The impact of early stages of COVID-19 on the mental health of autistic adults in the United Kingdom: A longitudinal mixed-methods study.
COVID-19
adults
anxiety
autism spectrum disorders
depression
health services
mental health
qualitative research
Journal
Autism : the international journal of research and practice
ISSN: 1461-7005
Titre abrégé: Autism
Pays: England
ID NLM: 9713494
Informations de publication
Date de publication:
10 2022
10 2022
Historique:
pubmed:
28
1
2022
medline:
21
9
2022
entrez:
27
1
2022
Statut:
ppublish
Résumé
During the COVID-19 pandemic, high levels of depression, anxiety and stress have been reported in the general population. However, much less has been reported about the impact of COVID-19 on the mental health of autistic people. What we did: In the present study, we investigated how the mental health of autistic adults in the United Kingdom changed during the early stages of the COVID-19 pandemic. In total, 133 participants completed an online survey at two different time points. Of the 133 participants, 70 completed the survey at the first time point just before the onset of the national lockdown. This allowed us to look at changes in their mental health, from before the lockdown to 10 to 15 weeks during lockdown. All participants (133) told us about their experiences of the pandemic. What we found: While many autistic adults told us that their mental health worsened, people's experience varied. For some autistic adults, aspects of mental health (e.g. anxiety, stress) actually improved. Participants also described social changes that had occurred, at home and in the outside world. They described feelings of uncertainty during the pandemic, and discussed how the pandemic had affected some of their previous coping strategies. Participants also told us about their difficulties in accessing healthcare services and food during the early stages of the pandemic. In our article, we discuss these findings and focus on what needs to change to ensure that autistic people are better supported as the pandemic continues.
Identifiants
pubmed: 35083922
doi: 10.1177/13623613211065543
pmc: PMC9483192
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
1765-1782Références
Brain Behav Immun. 2020 Oct;89:531-542
pubmed: 32485289
J Am Acad Child Adolesc Psychiatry. 2013 Jul;52(7):679-88
pubmed: 23800481
Disabil Health J. 2017 Apr;10(2):264-270
pubmed: 27899267
Autism. 2022 May;26(4):914-927
pubmed: 34362263
Autism. 2021 Apr;25(3):774-785
pubmed: 33910390
PLoS One. 2011;6(11):e27176
pubmed: 22110612
Res Autism Spectr Disord. 2019 Jul;63:34-41
pubmed: 31768189
Mol Autism. 2018 Jul 31;9:42
pubmed: 30083306
J Autism Dev Disord. 2019 Aug;49(8):3387-3400
pubmed: 31124030
Mol Autism. 2017 Mar 16;8:12
pubmed: 28331571
Autism. 2018 Oct;22(7):784-793
pubmed: 28683578
J Child Psychol Psychiatry. 2016 Mar;57(3):271-92
pubmed: 26782158
J Affect Disord. 2020 Dec 1;277:55-64
pubmed: 32799105
J Autism Dev Disord. 2017 Aug;47(8):2410-2424
pubmed: 28516422
J Consult Clin Psychol. 1991 Feb;59(1):12-9
pubmed: 2002127
Behav Res Ther. 1995 Mar;33(3):335-43
pubmed: 7726811
Psychiatry Res. 2020 Sep;291:113300
pubmed: 32763554
Autism. 2020 Aug;24(6):1311-1327
pubmed: 32106698
Mol Autism. 2021 Mar 3;12(1):21
pubmed: 33658046
Perspect Sex Reprod Health. 2020 Mar;52(1):39-48
pubmed: 32189427
Global Health. 2020 Jul 6;16(1):57
pubmed: 32631403
Pediatrics. 2012 Jun;129(6):1042-9
pubmed: 22585766
J Autism Dev Disord. 2014 Dec;44(12):3033-44
pubmed: 24915932
Lancet Psychiatry. 2019 Oct;6(10):819-829
pubmed: 31447415
J Intellect Disabil. 2018 Mar;22(1):96-108
pubmed: 27623754
J Dev Behav Pediatr. 2011 May;32(4):277-83
pubmed: 21285894
J Autism Dev Disord. 2022 Jan;52(1):89-102
pubmed: 33635422
Mol Autism. 2019 Mar 29;10:16
pubmed: 30976383
J Appl Res Intellect Disabil. 2020 Sep;33(5):1059-1068
pubmed: 32187783
Lancet Oncol. 2020 Aug;21(8):1023-1034
pubmed: 32702310
PLoS One. 2020 Jul 23;15(7):e0236415
pubmed: 32702017
Autism. 2017 Oct;21(7):896-906
pubmed: 27407040
Autism. 2015 Oct;19(7):824-31
pubmed: 25882392
Autism. 2016 Jul;20(5):580-90
pubmed: 26304678
Lancet Psychiatry. 2021 Feb;8(2):141-149
pubmed: 33308420
J Autism Dev Disord. 2020 Dec;50(12):4280-4296
pubmed: 32274604
Autism. 2021 Oct;25(7):2140-2145
pubmed: 33845620
J Autism Dev Disord. 2014 Jun;44(6):1391-402
pubmed: 24272526
J Med Internet Res. 2021 Jan 20;23(1):e22619
pubmed: 33326409
Autism. 2020 Aug;24(6):1309-1310
pubmed: 32423232
Autism Res. 2021 Jun;14(6):1209-1219
pubmed: 33559334
Autism. 2020 May;24(4):822-833
pubmed: 32429818
J Autism Dev Disord. 2017 Aug;47(8):2519-2534
pubmed: 28527095
Autism. 2015 Oct;19(7):785-93
pubmed: 26019306
J Abnorm Child Psychol. 2018 Jan;46(1):183-192
pubmed: 28417276
Autism. 2019 Nov;23(8):1879-1881
pubmed: 31552745
J Autism Dev Disord. 2003 Oct;33(5):509-17
pubmed: 14594330
J Epidemiol Community Health. 2020 Aug;74(8):617-619
pubmed: 32385125
Telemed J E Health. 2020 Apr;26(4):377-379
pubmed: 32202977
Lancet Psychiatry. 2020 Oct;7(10):883-892
pubmed: 32707037
Physiol Rev. 2021 Jan 1;101(1):303-318
pubmed: 32969772
Autism. 2016 Apr;20(3):276-94
pubmed: 25948598
J Autism Dev Disord. 2016 Apr;46(4):1441-54
pubmed: 26762115
Br J Surg. 2020 Sep;107(10):1250-1261
pubmed: 32350857