How are family caregivers of people with a serious illness supported by healthcare professionals in their caregiving tasks? A cross-sectional survey of bereaved family caregivers.


Journal

Palliative medicine
ISSN: 1477-030X
Titre abrégé: Palliat Med
Pays: England
ID NLM: 8704926

Informations de publication

Date de publication:
03 2022
Historique:
pubmed: 30 1 2022
medline: 2 4 2022
entrez: 29 1 2022
Statut: ppublish

Résumé

Due to medical advances and an increasingly ageing population, the number of people living with a serious illness is rising. This has major implications for the burden on family members of assisting with care. Support of family caregivers by healthcare professionals is needed to ensure they can provide quality care for people with serious illness. To investigate how family caregivers of people with serious illness are supported by healthcare professionals in their caregiving tasks. Population-based cross-sectional survey of bereaved family caregivers of people with serious illness ( Response rate was 55.0%. Most family caregivers received support from one or more healthcare professionals for family caregiving tasks, ranging from 71% for promoting social interaction to 95% for managing symptoms. The type of support mostly involved providing information. Use of palliative care services was the strongest predictor of such support across physical, psychosocial and practical tasks. Most family caregivers of those with serious illness get some form of support from healthcare professionals for their tasks. However, an empowering support strategy for example one aimed at increasing self-efficacy of the family caregiver is rare and end-of-life communication between healthcare professionals and family caregivers needs improvement.

Sections du résumé

BACKGROUND
Due to medical advances and an increasingly ageing population, the number of people living with a serious illness is rising. This has major implications for the burden on family members of assisting with care. Support of family caregivers by healthcare professionals is needed to ensure they can provide quality care for people with serious illness.
AIM
To investigate how family caregivers of people with serious illness are supported by healthcare professionals in their caregiving tasks.
DESIGN/PARTICIPANTS
Population-based cross-sectional survey of bereaved family caregivers of people with serious illness (
RESULTS
Response rate was 55.0%. Most family caregivers received support from one or more healthcare professionals for family caregiving tasks, ranging from 71% for promoting social interaction to 95% for managing symptoms. The type of support mostly involved providing information. Use of palliative care services was the strongest predictor of such support across physical, psychosocial and practical tasks.
CONCLUSION
Most family caregivers of those with serious illness get some form of support from healthcare professionals for their tasks. However, an empowering support strategy for example one aimed at increasing self-efficacy of the family caregiver is rare and end-of-life communication between healthcare professionals and family caregivers needs improvement.

Identifiants

pubmed: 35090372
doi: 10.1177/02692163211070228
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

529-539

Auteurs

Orphé Matthys (O)

End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), Brussel, Belgium.
Ghent University, Ghent, Belgium.
Department of Public Health and Primary Care, Ghent University, Ghent, Belgium.

Sigrid Dierickx (S)

End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), Brussel, Belgium.
Ghent University, Ghent, Belgium.
Department of Public Health and Primary Care, Ghent University, Ghent, Belgium.

Luc Deliens (L)

End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), Brussel, Belgium.
Ghent University, Ghent, Belgium.
Department of Public Health and Primary Care, Ghent University, Ghent, Belgium.
Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel (VUB), Brussel, Belgium.

Lore Lapeire (L)

Department of Medical Oncology, Ghent University Hospital, Ghent, Belgium.

Peter Hudson (P)

End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), Brussel, Belgium.
Ghent University, Ghent, Belgium.
Centre for Palliative Care, The University of Melbourne, Melbourne, VIC, Australia.

Chantal Van Audenhove (C)

LUCAS, Center for Care Research and Consultancy, KULeuven, Leuven, Belgium.

Aline De Vleminck (A)

End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), Brussel, Belgium.
Ghent University, Ghent, Belgium.
Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel (VUB), Brussel, Belgium.

Joachim Cohen (J)

End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), Brussel, Belgium.
Ghent University, Ghent, Belgium.
Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel (VUB), Brussel, Belgium.

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