Narrative medicine: feasibility of a digital narrative diary application in oncology.
Narrative-based medicine
chemotherapy
digital diary
digital narrative medicine
personalized care
personalized medicine
radiotherapy
Journal
The Journal of international medical research
ISSN: 1473-2300
Titre abrégé: J Int Med Res
Pays: England
ID NLM: 0346411
Informations de publication
Date de publication:
Feb 2022
Feb 2022
Historique:
entrez:
2
2
2022
pubmed:
3
2
2022
medline:
4
2
2022
Statut:
ppublish
Résumé
We implemented narrative medicine in clinical practice using the Digital Narrative Medicine (DNM) platform. We conducted a preliminary, open, uncontrolled, real-life study in the oncology and radiotherapy departments of Istituto di Ricovero e Cura a Carattere Scientifico National Cancer Institute Regina Elena, Rome, Italy. We recruited adult Italian-speaking patients who then completed the DNM diary from the start of treatment. The primary endpoint was DNM feasibility; secondary endpoints were health care professionals' opinions about communication, therapeutic alliance, and information collection and patients' opinions about therapeutic alliance, awareness, and coping ability. We used open- and closed-ended questions (scores 1 to 5) and a structured interview. Thirty-one patients (67%) used the diary (84% women). Health care professionals' mean scores for feasibility and utility were ≥4.0. Patients' utility scores were related to health care professionals' feedback regarding the narratives. The main advantages for health care professionals were the opportunity to obtain relevant patient data and to strengthen communication and patient relationships (mean scores 4.4-5.0). Both groups strongly encouraged introduction of the diary in clinical practice. Use of the DNM in oncology patients assisted clinicians with understanding their patients experience.
Identifiants
pubmed: 35107030
doi: 10.1177/03000605211045507
pmc: PMC8859529
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
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