Facing Muscular Dystrophy During Covid-19 Pandemic: The Role of Support Associations and Spirituality.
Associations
Covid-19 pandemic
Muscular Dystrophy
Qualitative study
Spirituality
Journal
Pastoral psychology
ISSN: 0031-2789
Titre abrégé: Pastoral Psychol
Pays: United States
ID NLM: 19520700R
Informations de publication
Date de publication:
2022
2022
Historique:
accepted:
19
12
2021
pubmed:
9
2
2022
medline:
9
2
2022
entrez:
8
2
2022
Statut:
ppublish
Résumé
Several researches in scientific literature analyze the theme of Muscular Dystrophy (MD), As well as many others focus on the theme of the Covid-19 pandemic; however, there is a rather limited number of studies that analyse how the pandemic has affected the life of people suffering from MD, especially during the time of the first lockdown in the spring of 2020. The present study has applied a qualitative research design with the aim to investigate how patients with MD have lived the social restrictions imposed for the contagion containment and whether the assistance of associations for their support has contributed to make the participants feel closer or more distant from the spiritual dimension. The analysis involved 12 participants, and they were presented with a semi-structured interview. The data obtained from the interviews have been analysed through a thematic analysis from which 4 thematic areas have emerged: (1) the impact of the pandemic on an emotional level; (2) the illness management and the role of family; (3) the role of the associations; (4) aspects related to spirituality. The crucial role that the closeness of family and the activities promoted remotely by the associations for patients' support has emerged, since they have allowed the participants to feel united by something beyond, to discover new aspects of themselves, to give more value to Life and to move closer to their spiritual dimension.
Identifiants
pubmed: 35132281
doi: 10.1007/s11089-022-00997-2
pii: 997
pmc: PMC8811345
doi:
Types de publication
Journal Article
Langues
eng
Pagination
217-231Informations de copyright
© The Author(s) 2022.
Déclaration de conflit d'intérêts
Conflict of interestThe authors declare that they have no conflict of interest.
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