What Does "Good" Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research.

patient and public involvement power dynamics research relationships research stakeholders respecting community

Journal

Frontiers in public health
ISSN: 2296-2565
Titre abrégé: Front Public Health
Pays: Switzerland
ID NLM: 101616579

Informations de publication

Date de publication:
2021
Historique:
received: 14 09 2021
accepted: 31 12 2021
entrez: 14 2 2022
pubmed: 15 2 2022
medline: 28 4 2022
Statut: epublish

Résumé

Community and public engagement (CPE) is increasingly becoming a key component in global health research. The National Institute for Health Research (NIHR) is one of the leading funders in the UK of global health research and requires a robust CPE element in the research it funds, along with CPE monitoring and evaluation. But what does "good" CPE look like? And what factors facilitate or inhibit good CPE? Addressing these questions would help ensure clarity of expectations of award holders, and inform effective monitoring frameworks and the development of guidance. The work reported upon here builds on existing guidance and is a first step in trying to identify the key components of what "good" CPE looks like, which can be used for all approaches to global health research and in a range of different settings and contexts. This article draws on data collected as part of an evaluation of CPE by 53 NIHR-funded award holders to provide insights on CPE practice in global health research. This data was then debated, developed and refined by a group of researchers, CPE specialists and public contributors to explore what "good" CPE looks like, and the barriers and facilitators to good CPE. A key finding was the importance, for some research, of investing in and developing long term relationships with communities, perhaps beyond the life cycle of a project; this was regarded as crucial to the development of trust, addressing power differentials and ensuring the legacy of the research was of benefit to the community.

Identifiants

pubmed: 35155342
doi: 10.3389/fpubh.2021.776940
pmc: PMC8830293
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

776940

Subventions

Organisme : Department of Health
Pays : United Kingdom

Informations de copyright

Copyright © 2022 Hickey, Porter, Tembo, Rennard, Tholanah, Beresford, Chandler, Chimbari, Coldham, Dikomitis, Dziro, Ekiikina, Khattak, Montenegro, Mumba, Musesengwa, Nelson, Nhunzvi, Ramirez and Staniszewska.

Déclaration de conflit d'intérêts

The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

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Auteurs

Gary Hickey (G)

Wessex Institute, Faculty of Medicine, University of Southampton, Southampton, United Kingdom.
School of Health Sciences, University of Brighton, Brighton, United Kingdom.

Katie Porter (K)

Wessex Institute, Faculty of Medicine, University of Southampton, Southampton, United Kingdom.

Doreen Tembo (D)

Wessex Institute, Faculty of Medicine, University of Southampton, Southampton, United Kingdom.

Una Rennard (U)

Public Contributor, Oxfordshire, United Kingdom.

Martha Tholanah (M)

AIDS Clinical Trial Group Clinical Research Site Community Advisory Board, Clinical Trials Research Centre, University of Zimbabwe, Harare, Zimbabwe.
Making Waves Network, Harare, Zimbabwe.

Peter Beresford (P)

School of Health Sciences, University of East Anglia, Norwich, United Kingdom.

David Chandler (D)

The Psoriasis and Psoriatic Arthritis Alliance, St Albans, United Kingdom.

Moses Chimbari (M)

School of Nursing and Public Health, College of Health Sciences, University of KwaZulu-Natal, Durban, South Africa.
Department of Public Health, Great Zimbabwe University, Masvingo, Zimbabwe.

Tina Coldham (T)

National Institute for Health Research Centre for Engagement and Dissemination, London, United Kingdom.
School for Social Care Research, National Institute for Health Research, London, United Kingdom.

Lisa Dikomitis (L)

Kent and Medway Medical School, University of Kent and Canterbury Christ Church University, Canterbury, United Kingdom.

Biggy Dziro (B)

African Mental Health Research Initiative (AMARI), Harare, Zimbabwe.

Peter O Ekiikina (PO)

Foundation for Open Development, Tororo, Uganda.

Maria I Khattak (MI)

Institute of Public Health & Social Sciences, Khyber Medical University, Peshawar, Pakistan.

Cristian R Montenegro (CR)

Wellcome Centre for Cultures and Environments of Health, University of Exeter, Exeter, United Kingdom.
Escuela de Enfermería, Pontificia Universidad Católica de Chile, Santiago, Chile.

Noni Mumba (N)

KEMRI Wellcome Trust Research Programme, Kilifi, Kenya.

Rosemary Musesengwa (R)

Medical Sciences Division, Department of Psychiatry, University of Oxford, Oxford, United Kingdom.

Erica Nelson (E)

Health and Nutrition Cluster, The Institute of Development Studies, University of Sussex, Brighton, United Kingdom.

Clement Nhunzvi (C)

College of Health Sciences, University of Zimbabwe, Harare, Zimbabwe.

Caroline M Ramirez (CM)

School of Medicine and Public Health, Ateneo de Manila University, Pasig, Philippines.
Harvard Medical School, Boston, MA, United States.

Sophie Staniszewska (S)

Warwick Research in Nursing, Warwick Medical School, University of Warwick, Coventry, United Kingdom.

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Classifications MeSH