"Hey, I'm still here!": Maintaining, managing and rebuilding social connections after brain tumour.


Journal

Neuropsychological rehabilitation
ISSN: 1464-0694
Titre abrégé: Neuropsychol Rehabil
Pays: England
ID NLM: 9112672

Informations de publication

Date de publication:
Apr 2023
Historique:
medline: 20 4 2023
pubmed: 17 2 2022
entrez: 16 2 2022
Statut: ppublish

Résumé

It is well recognized that social networks can buffer the adverse effects of chronic illness on psychological wellbeing. However, the functional impairments associated with brain tumour often affect social participation, which may reduce people's capacity to draw upon their social capital for support. This qualitative phenomenological study aimed to understand how brain tumour influences people's ability to manage, maintain, and rebuild their social networks. Participants were 20 individuals (65% female) aged 22-69 years with diverse types of primary brain tumour (50% high grade or malignant) who were on average 35 months post-diagnosis. Two semi-structured interviews, conducted three months apart, comprised a Social Identity Mapping exercise and questions exploring changes in social groups since diagnosis. Two overarching and interrelated themes emerged:

Identifiants

pubmed: 35168498
doi: 10.1080/09602011.2022.2028640
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

454-479

Auteurs

Lee Cubis (L)

School of Applied Psychology and The Hopkins Centre, Menzies Health Institute Queensland, Griffith University, Mt Gravatt, Australia.
Summer Foundation Ltd, Melbourne, Australia.

Tamara Ownsworth (T)

School of Applied Psychology and The Hopkins Centre, Menzies Health Institute Queensland, Griffith University, Mt Gravatt, Australia.

Mark B Pinkham (MB)

Princess Alexandra Hospital, University of Queensland, Woolloongabba, Australia.

Matthew Foote (M)

Princess Alexandra Hospital, University of Queensland, Woolloongabba, Australia.

Heather Green (H)

School of Applied Psychology and The Hopkins Centre, Menzies Health Institute Queensland, Griffith University, Mt Gravatt, Australia.

Suzanne Chambers (S)

School of Applied Psychology and The Hopkins Centre, Menzies Health Institute Queensland, Griffith University, Mt Gravatt, Australia.
Faculty of Health, University of Technology Sydney, Sydney, Australia.

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Classifications MeSH