Influence of Genetic Information on Neonatologists' Decisions: A Psychological Experiment.


Journal

Pediatrics
ISSN: 1098-4275
Titre abrégé: Pediatrics
Pays: United States
ID NLM: 0376422

Informations de publication

Date de publication:
01 03 2022
Historique:
accepted: 01 09 2021
pubmed: 17 2 2022
medline: 19 4 2022
entrez: 16 2 2022
Statut: ppublish

Résumé

Genetic testing is expanding among ill neonates, yet the influence of genetic results on medical decision-making is not clear. With this study, we sought to determine how different types of genetic information with uncertain implications for prognosis influence clinicians' decisions to recommend intensive versus palliative care. We conducted a national study of neonatologists using a split sample experimental design. The questionnaire contained 4 clinical vignettes. Participants were randomly assigned to see one of 2 versions that varied only regarding whether they included the following genetic findings: (1) a variant of uncertain significance; (2) a genetic diagnosis that affects neurodevelopment but not acute survival; (3) a genetic versus nongenetic etiology of equally severe pathology; (4) a pending genetic testing result. Physicians answered questions about recommendations they would make for the patient described in each vignette. Vignette versions that included a variant of uncertain significance, a diagnosis foreshadowing neurodevelopmental impairment, or a genetic etiology of disease were all associated with an increased likelihood of recommending palliative rather than intensive care. A pending genetic test result did not have a significant effect on care recommendations. Findings from this study of hypothetical cases suggest neonatologists apply uncertain genetic findings or those that herald neurodevelopmental disability in problematic ways. As genetic testing expands, understanding how it is used in decision-making and educating clinicians regarding appropriate use are paramount.

Sections du résumé

BACKGROUND AND OBJECTIVES
Genetic testing is expanding among ill neonates, yet the influence of genetic results on medical decision-making is not clear. With this study, we sought to determine how different types of genetic information with uncertain implications for prognosis influence clinicians' decisions to recommend intensive versus palliative care.
METHODS
We conducted a national study of neonatologists using a split sample experimental design. The questionnaire contained 4 clinical vignettes. Participants were randomly assigned to see one of 2 versions that varied only regarding whether they included the following genetic findings: (1) a variant of uncertain significance; (2) a genetic diagnosis that affects neurodevelopment but not acute survival; (3) a genetic versus nongenetic etiology of equally severe pathology; (4) a pending genetic testing result. Physicians answered questions about recommendations they would make for the patient described in each vignette.
RESULTS
Vignette versions that included a variant of uncertain significance, a diagnosis foreshadowing neurodevelopmental impairment, or a genetic etiology of disease were all associated with an increased likelihood of recommending palliative rather than intensive care. A pending genetic test result did not have a significant effect on care recommendations.
CONCLUSIONS
Findings from this study of hypothetical cases suggest neonatologists apply uncertain genetic findings or those that herald neurodevelopmental disability in problematic ways. As genetic testing expands, understanding how it is used in decision-making and educating clinicians regarding appropriate use are paramount.

Identifiants

pubmed: 35169841
pii: 184790
doi: 10.1542/peds.2021-052130
pmc: PMC8892772
mid: NIHMS1777708
pii:
doi:

Types de publication

Journal Article Randomized Controlled Trial Research Support, N.I.H., Extramural

Langues

eng

Sous-ensembles de citation

IM

Subventions

Organisme : NHGRI NIH HHS
ID : T32 HG009496
Pays : United States

Informations de copyright

Copyright © 2022 by the American Academy of Pediatrics.

Déclaration de conflit d'intérêts

CONFLICT OF INTEREST DISCLOSURES: Dr Joffe received research funding from Pfizer through the University of Pennsylvania until May 2020. All other authors have no conflicts of interest to disclose.

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Auteurs

Katharine Press Callahan (KP)

Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.
Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania.

John Flibotte (J)

Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.

Cara Skraban (C)

Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.

Katherine Taylor Wild (KT)

Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.

Steven Joffe (S)

Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.
Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania.

David Munson (D)

Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.

Chris Feudtner (C)

Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.
Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania.

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Classifications MeSH